Empowering older people with early dementia and family caregivers: A participatory action research study

Nomura, Michie; Makimoto, Kiyoko; Kato, Motoko; Shiba, Tamami; Matsuura, Chieko; Shigenobu, Kazue; Ishikawa, Tomohisa; Matsumoto, Naomi; Ikeda, Manabu

doi:10.1016/j.ijnurstu.2007.09.009

Cited by 54 publications

(73 citation statements)

References 26 publications

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“…they do not involve community co-researchers other than workers in or service users of the particular organisation under study (Bennett-Levy et al, 2014;Ergüner-Tekinalp & Harper, 2011;Esmiol, Knudson-Martin, & Delgado, 2012;Hamlet & Burnes, 2013;McDowell et al, 2003;Nomura et al, 2009;Woodhouse, 2010;West & Graham, 1999). Although these are all examples of participatory research, they do not meet the criteria adopted here for CBPR.…”

Section: Cbpr and Therapymentioning

confidence: 99%

Community-based participatory research in counselling and psychotherapy

Spong

Waters

2015

European Journal of Psychotherapy & Counselling

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Over the last 20 years, there has been an increased interest in communitybased participatory research (CBPR) across a range of disciplines. This approach to research focuses on the empowerment of those for whom the research is relevant by ensuring that they or their representatives have the opportunity for full involvement in developing and undertaking studies, and in disseminating the research findings. However, there is little evidence within counselling and psychotherapy of a substantial engagement with research that includes clients, potential clients and their communities as full partners in the research process. This paper describes CBPR and critically explores its potential for developing knowledge in counselling and psychotherapy.Innerhalb der letzten zwanzig Jahre ist das Interesse an partizipativer Forschung beständig gewachsen -und das disziplinübergreifend. Dieser Ansatz verbindet mit seiner Forschung immer auch eine gewisse Befähigung eben jener, die sie zum Objekt haben. Das soll vor allem durch die vollständige Miteinbeziehung der betreffenden Menschen oder ihrer Vertreter in Entwicklung, Durchführung sowie anschließende Verbreitung der Forschungsergebnisse gewährleistet werden. Jedoch gibt es, etwa für die Beratung oder Psychotherapie, bislang wenig Hinweise dafür, dass (mögli-che) Klienten oder ihr Umfeld auch tatsächlich und wesentlich am Forschungsprozess beteiligt werden. Der vorliegende Aufsatz greift den partizipativen Forschungsansatz auf und setzt sich kritisch mit ihm und seinen Potenzialen für Beratung und Psychotherapie auseinander.En los últimos veinte años ha habido un aumento en el interés en investigaciones participativas basadas en la comunidad, en un gran número de disciplinas. Este método de investigación se focaliza en potentizar a aquéllos para quien la investigación es relevante, asegurándoles que ellos o sus representantes tienen la oportunidad para involucrarse completamente en desarrollar estudios y en divulgar los resultados de las investigaciones. Sin embargo, existe poca evidencia en psicoterapia y en orientación psicológica, de un compromiso substancial con investigaciones que incluya clientes, clientes potenciales y sus comunidades como participantes completos en el proceso de investigación. Este artículo describe investigaciones participativas basadas en la comunidad y explora críticamente su potencial para desarrollar el conocimiento en psicoterapia y en orientación psicológica.Palabras clave: orientación psicológica; investigación participativa comunal; investigación participativa basada en la comunidad; clínica de investigación en orientación psicológica; psicoterapia Negli ultimi 20 anni è molto cresciuto l'interesse per la ricerca partecipativa basata sulla comunità in un'ampia gamma di discipline. Questo approccio alla ricerca si focalizza sul potenziamento di coloro per i quali la ricerca è rilevante, garantendo che essi stessi, o i loro rappresentanti, possano essere pienamente coinvolti nello sviluppo, nell'avvio di studi e nella diffusione dei risultati dell...

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Section: Cbpr and Therapymentioning

confidence: 99%

Community-based participatory research in counselling and psychotherapy

Spong

Waters

2015

European Journal of Psychotherapy & Counselling

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“…The conceptualisation of self-management for dementia is highly focused on improving the subjective experience of living with dementia. The opportunity for people to share strategies is seen as important by people with dementia and can be empowering (LaBarge and Trtanj 1995; Nomura et al 2009). We suggest a sharing memory tips session, focusing on decreasing distress around memory by providing some practical tips to aid perceptions of manageability of memory loss and to introduce the idea of accepting changes to memory.…”

Section: Target 3: Psychological Wellbeingmentioning

confidence: 99%

Conceptualisation of self-management intervention for people with early stage dementia

et al. 2012

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Dementia is a major challenge for health and social care services. People living with dementia in the earlier stages experience a ''care-gap''. Although they may address this gap in care, self-management interventions have not been provided to people with dementia. It is unclear how to conceptualise self-management for this group and few published papers address intervention design. Initial focusing work used a logic mapping approach, interviews with key stakeholders, including people with dementia and their family members. An initial set of self-management targets were identified for potential intervention. Self-management for people living with dementia was conceptualised as covering five targets: (1) relationship with family, (2) maintaining an active lifestyle, (3) psychological wellbeing, (4) techniques to cope with memory changes, and (5) information about dementia. These targets were used to focus literature reviewing to explore an evidence base for the conceptualisation. We discuss the utility of the Corbin and Strauss (Unending work and care: managing chronic illness at home. JosseyBass, Oxford, 1988) model of self-management, specifically that self-management for people living with dementia should be conceptualised as emphasising the importance of ''everyday life work'' (targets 1 and 2) and ''biographical work'' (target 3), with inclusion of but less emphasis on specific ''illness work'' (targets 4, 5). We argue that selfmanagement is possible for people with dementia, with a strengths focus and emphasis on quality of life, which can be achieved despite cognitive impairments. Further development and testing of such interventions is required to provide much needed support for people in early stages of dementia.

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“…An empowerment program in Japan provided education and problem-focused counseling to family caregivers of older adults with early-state dementia that increased their understanding of the symptoms of dementia and reduced behavioral problems (Nomura et al, 2009). After receiving supportive home care services, family caregivers of older adults with dementia in Japan reduced feelings of burden (Kumamoto, Arai & Zarit, 2006).…”

Section: A R E a N D S U P P O R T F O R C A R E G I V E R Smentioning

confidence: 99%