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Introducción: En dirección a la teoría de Meleis, durante la transición como cuidador familiar, subyacen condiciones que facilitan o limitan la adopción del rol, y pueden afectar la integridad de esta persona. Objetivo: Determinar la relación entre la depresión, ansiedad y soledad con la adopción del rol de cuidadores familiares de personas con enfermedad crónica en Los Patios – Colombia durante el 2021. Materiales: Investigación cuantitativa analítica transversal que incluyó 120 pacientes y 120 cuidadores. Se aplicaron escalas de Soledad de University of California at Los Angeles; hospitalaria de ansiedad y depresión, y de adopción del Rol del cuidador a través de la plataforma Google Forms®; el análisis se realizó con el software SPSS versión 24, usando estadísticos de frecuencia, tendencia central y dispersión, así como bivariados tipo Pearson. Resultados: Se halla correlaciones significativas entre la edad del cuidador con la ansiedad (r=,230; p<0.05) y la depresión (r=,297; p<0.05); las horas que requiere a diario para su cuidado con la ansiedad (r=,255; p<0.05) y depresión del cuidador (r=,328; p<0.05). Conclusión: En un modelo de regresión lineal, se evidencia que la soledad y adopción del rol del cuidador actúan como predictoras de la ansiedad (p<0.05).
Introducción: En dirección a la teoría de Meleis, durante la transición como cuidador familiar, subyacen condiciones que facilitan o limitan la adopción del rol, y pueden afectar la integridad de esta persona. Objetivo: Determinar la relación entre la depresión, ansiedad y soledad con la adopción del rol de cuidadores familiares de personas con enfermedad crónica en Los Patios – Colombia durante el 2021. Materiales: Investigación cuantitativa analítica transversal que incluyó 120 pacientes y 120 cuidadores. Se aplicaron escalas de Soledad de University of California at Los Angeles; hospitalaria de ansiedad y depresión, y de adopción del Rol del cuidador a través de la plataforma Google Forms®; el análisis se realizó con el software SPSS versión 24, usando estadísticos de frecuencia, tendencia central y dispersión, así como bivariados tipo Pearson. Resultados: Se halla correlaciones significativas entre la edad del cuidador con la ansiedad (r=,230; p<0.05) y la depresión (r=,297; p<0.05); las horas que requiere a diario para su cuidado con la ansiedad (r=,255; p<0.05) y depresión del cuidador (r=,328; p<0.05). Conclusión: En un modelo de regresión lineal, se evidencia que la soledad y adopción del rol del cuidador actúan como predictoras de la ansiedad (p<0.05).
Background Caregiving can affect people of all ages and can have significant negative health impacts on family caregivers themselves. Research has shown that social support acts as a buffer against many negative health impacts. A common source of social support is support groups. Although traditionally, these groups were conducted in a face-to-face setting, the advent of the internet, social media applications, and the smartphone have seen online support groups (OSGs) develop as a space where many caregivers seek support. The number of OSGs has increased exponentially, but there is no clear consensus on what factors or characteristics of OSGs contribute to social support development within them or what types of OSGs are available to family caregivers. Objective This study aimed to conduct a scoping review to contribute to the understanding of the types and characteristics of OSGs for family caregivers. Methods Following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses Extension for Scoping Reviews guidelines, the CINAHL, PsychInfo, Psych Articles, Social Sciences, Communication Source, Medline, and Web of Science databases were searched for studies (caregiver focused, adults aged 18 years or older, online social support groups, caring for a living person, peer-reviewed journal publications on empirical research). In total, 19 studies were included in the review. The research questions were (1) what type of social support groups are online for adult family caregivers, (2) what the communication mediums and characteristics of these OSGs are, and (3) what psychosocial or other factors make OSGs successful or unsuccessful for participants. Results In response to the first research question, we found that the majority of OSGs took place on public text-based forums and were illness specific. Where demographics were reported, participants were predominately women, White, and working with university-level education. There were a variety of caregiving relationships. For the second research question, the most common communication medium found was text-based communication, with the use of emojis, photos, and GIF (Graphics Interchange Format) files as part of these exchanges. Most frequently, the OSGs were asynchronous with a degree of anonymity, not time-limited by the frequency of contact or duration, and moderated by peer or professional moderators or facilitators. Results for the third research question explored the overarching categories of safe communication and engagement and group management. These described successful OSGs as having a focus on similar others with shared lived experiences communicated in a nonjudgmental space overseen by trained peer or professional facilitators. Conclusions There are several key considerations for OSGs to be successful for family caregivers. A general recommendation for practitioners is to give importance to building active moderation and multifaceted structures of support to meet different levels of caregiver needs and the ability to engage.
Background Informal caregivers of people living with dementia experience a higher level of physical and mental stress compared with other types of caregivers. Psychoeducation programs are viewed as beneficial for building caregivers’ knowledge and skills and for decreasing caregiver stress. Objective This review aimed to synthesize the experiences and perceptions of informal caregivers of people with dementia when participating in web-based psychoeducation programs and the factors that enable and impede informal caregivers’ engagement in web-based psychoeducation programs. Methods This review followed the Joanna Briggs Institute protocol of systematic review and meta-aggregation of qualitative studies. We searched 4 English databases, 4 Chinese databases, and 1 Arabic database in July 2021. Results A total of 9 studies written in English were included in this review. From these studies, 87 findings were extracted and grouped into 20 categories. These categories were further synthesized into 5 findings: web-based learning as an empowering experience, peer support, satisfactory and unsatisfactory program content, satisfactory and unsatisfactory technical design, and challenges encountered in web-based learning. Conclusions High-quality and carefully designed web-based psychoeducation programs offered positive experiences for informal caregivers of people living with dementia. To meet broader caregiver education and support needs, program developers should consider information quality and relevancy, the support offered, individual needs, flexibility in delivery, and connectedness between peers and program facilitators.
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