Effect of physical training in children and adolescents with congenital heart disease

Fredriksen, Per Morten; Kahrs, Nina; Blaasvaer, S; Sigurdsen, E; Gundersen, Odd Erik; Roeksund, O; Norgaand, G; Vik, J T; Soerbye, O; Ingjer, E; Thaulow, Erik

doi:10.1017/s1047951100006557

Cited by 125 publications

(102 citation statements)

References 10 publications

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“…These findings have led to calls for the provision of exercise-based programmes of rehabilitation. 6,7 Few studies have directly sought the views of young people with congenital cardiac disease or their parents. Studies with parents 8,9 show that they experience raised levels of psychological distress, and less adequate strategies for coping, in comparison to normative reference groups.…”

Section: O Ver the Last Decade There Has Been Anmentioning

confidence: 99%

The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease

et al. 2003

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Article:Kendall, L, Sloper, P, Lewin, R. J. P et al.(1 more author) (2003) The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease. Cardiology in the Young. pp. 20-27. ISSN 1047-9511 https://doi.org/10.1017/S1047951103000052 eprints@whiterose.ac.uk https://eprints.whiterose.ac.uk/ Reuse Items deposited in White Rose Research Online are protected by copyright, with all rights reserved unless indicated otherwise. They may be downloaded and/or printed for private study, or other acts as permitted by national copyright laws. The publisher or other rights holders may allow further reproduction and re-use of the full text version. This is indicated by the licence information on the White Rose Research Online record for the item. TakedownIf you consider content in White Rose Research Online to be in breach of UK law, please notify us by emailing eprints@whiterose.ac.uk including the URL of the record and the reason for the withdrawal request.O VER THE LAST DECADE, THERE HAS BEEN AN increasing interest in the psychosocial issues affecting children with congenital cardiac disease. Studies have been conducted of the emotional and intellectual functioning of patients 1-5 and physical aspects of the children's quality of life. These findings have led to calls for the provision of exercise-based programmes of rehabilitation. 6,7 Few studies have directly sought the views of young people with congenital cardiac disease or their parents. Studies with parents 8,9 show that they experience raised levels of psychological distress, and less adequate strategies for coping, in comparison to normative reference groups. Similar findings were noted in the recent Kennedy report. 10a Studies which have consulted young people directly 11-13 have also suggested that they had needs for rehabilitation that were not met. A recent survey of all centres for paediatric cardiology in the United Kingdom indicated that, whilst the health professionals agreed that rehabilitation was required, only one centre reported having a formal programme serving this purpose. 14 Two of the most commonly reported barriers to providing a service were scarce resources, and the distance that patients would have to travel for a hospital-based service. There has been no research on the form of rehabilitation service that patients and parents would find most useful. Our preliminary work 14 suggests that a traditional hospital-based service may not be the most suitable means of delivering the help required. In adults with ischaemic heart disease following myocardial infarction, a solution to such problems has been developed in the form of home-based, self help, programmes facilitated by telephone from the hospital, Abstract Background and purpose: Although much previous research has focused on the medical aspects of congenital cardiac disease, there is a growing body of research which suggests that families may need help and support with the wider issues associated with the medical conditio...

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Section: O Ver the Last Decade There Has Been Anmentioning

confidence: 99%

The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease

et al. 2003

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“…More recent reviews concluded that a number showed worthwhile change in work capacity, self-esteem and psychological status, but recruitment and retention of patients is a major problem. 14,15 Much of the research into congenital cardiac disease is very medical in its approach, and also relies heavily on the parental perspective of the child's condition. A study by Lightfoot et al 16 investigated the views of pupils, parents, and teachers regarding the service support needs of pupils with a chronic physical condition in mainstream schools, including some children with congenital cardiac disease.…”

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confidence: 99%

The views of young people with congenital cardiac disease on designing the services for their treatment

et al. 2003

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Background and purpose:There is little documented evidence of young people with congenital cardiac disease being consulted as to what help, if any, they really need in relation to their condition. Most research concentrates on the medical aspects of the condition. There are studies of psychological and social functioning, but few have directly sought the opinions of the young people. More recent research has indicated a need for health professionals to develop services to meet both psychosocial and physical needs of young people with congenital cardiac disease. The findings of the recent Kennedy Report support this need. The purpose of this study was to explore the views of young people with a range of congenital cardiac conditions, on what would help them better deal with their condition, and when and how help might be provided.Methods:This was a qualitative study using semi-structured interviews. We interviewed 16 young people in their own home. Interviews were tape-recorded and transcribed. Analysis was conducted using the “Framework” method.Results:Whilst most of the young people interviewed actively manage their condition, they think more support from others would be beneficial. Issues of activity and communication were cited most often as areas requiring more understanding from people they interact with, for example teachers and peers. The discussion focuses on how health professionals might change or develop their practice to help young people better cope with their condition.Conclusions:Most of the young people interviewed in this study had developed their own strategies for coping with their condition. Although this is a small study, the young people provided important suggestions as to how health professionals could better develop current services.

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“…In the work of O.I. Yankelevich [12] it is noted that posture disorders were found in more than 50% of examined before hospitalizing children with CHD: scoliotic posture; slouch; scoliosis of 1 st , 2 nd and 3 rd category. In the research of L.V.…”

Section: Pedagogics Psychologymentioning

confidence: 99%

“…Scientists note that patients with FOV lag in physical development [3] have reduced functional potentials of respiratory system [9,12,19,22] and tolerance to physical loads [11,14,24,30]. As on to day the problems of physical rehabilitation of children with CHD are paid insufficient attention to.…”

mentioning

confidence: 99%

Dynamic of bio-geometric profile indicators of children’s with functionally one ventricle posture at stage of physical rehabilitation

Vitomskiy¹,

Лазарєва

Imas

et al. 2017

PPS

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Purpose:to assess dynamic of bio-geometric profile quantitative indicators in children with functionally one ventricular at stages of physical rehabilitation. Material:35 patients were examined during hospital stay and when leaving hospital. Indicators were registered with the help of photo metering and program Ergotherapy. Results:in children we registered great number of posture disorders in frontal (94.3%) and sagittal planes (97.1%). In frontal plane the angles, pointing at significant asymmetry of upper limbs in respect to horizontal plane, were increased. In sagittal plane we received angles, which pointed at presence of thoracic kyphosis and lumbar lordosis. After surgery and stationary stage of rehabilitation static changes were registered in insignificant quantity of the studied angles. After post-clinical physical rehabilitation stage we registered reduction of angles' values and their approaching to norm. Conclusions:physical rehabilitation at stationary and port clinical stages with the help of correcting exercises positively influence on restoration of posture after surgery and its improvement in the future.

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Effect of physical training in children and adolescents with congenital heart disease

Cited by 125 publications

References 10 publications

The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease

The views of parents concerning the planning of services for rehabilitation of families of children with congenital cardiac disease

The views of young people with congenital cardiac disease on designing the services for their treatment

Dynamic of bio-geometric profile indicators of children’s with functionally one ventricle posture at stage of physical rehabilitation

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