Effect of occurrence of vitiligo in children over quality of life of their families: A hospital-based study using family dermatology life quality index

Gahalaut, Pratik; Chauhan, Suvarcha; Shekhar, Amit; Rastogi, Madhur Kant; Mishra, Nitin

doi:10.4103/ijpd.ijpd_136_16

Cited by 6 publications

(4 citation statements)

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“…Mothers had higher scores than fathers, spouses and other relatives, as also noted by Amer et al 19 probably due to a greater emotional attachment to children. Scale scores were higher when patients had vitiligo on exposed sites leading to greater social stigma, as also observed by Gahalaut et al 20 With increased duration of disease, there was a decrease in scores attributable to the family learning to adjust and acquiring the necessary coping skills. Scores were also higher when the affected patient avoided certain foods as part of treatment regimen, probably reflecting concern about a member having to forgo foods that are part of the family's normal diet.…”

Section: Discussionsupporting

confidence: 74%

“…Scales to measure the impact on family members are available for skin diseases in general 15 and for specific diseases such as psoriasis, 4,5 atopic dermatitis, 6,7 and ichthyosis. 9 Previous studies using a generic scale have documented the psychosocial impact of vitiligo in family members [18][19][20] but there is no disease-specific scale for this purpose.…”

Section: Discussionmentioning

confidence: 99%

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Family vitiligo impact scale: A scale to measure the quality-of-life of family members of patients with vitiligo

Agrawal¹,

Satapathy

Gupta³

et al. 2021

IJDVL

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Background: Vitiligo places a significant psycho-social burden on caregivers and family members. Aims: The aim of the study was to develop and preliminarily validate a scale to measure the psychosocial impact of vitiligo on adult family members. Methods: Themes that emerged from qualitative interviews and a focus group discussion with family members were used to generate items for a preliminary scale, followed by pre-testing and scale development. The new scale was then tested with two comparator scales and a global question. Results: A preliminary scale with 32 items was pilot tested on 30 participants. Following this, the scale was condensed to 16 items in 12 domains that were administered to 159 participants. Scale scores ranged from 0 to 48 with a mean of 19.75 ± 12.41. The scale had excellent internal consistency with Cronbach’s alpha coefficient of 0.92 (0.70–0.95) and also showed good test-retest reliability at two weeks (r = 0.946). The scale showed criterion, convergent and known group validity. Limitations: It was conducted in a large teaching hospital which may have resulted in selection of patients with persistent or progressive disease and more worried family members. Vitiligo is highly stigmatized in our country and the performance of the scale may need to be evaluated in other communities and cultures as well where stigma is less oppressive. Conclusion: Family Vitiligo Impact Scale appears to be an easy-to-complete, reliable and valid instrument to measure the psychosocial impact of vitiligo in family members of patients. It may be useful as an outcome measure in both clinical and research settings.

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Section: Discussionsupporting

confidence: 74%

Section: Discussionmentioning

confidence: 99%

Family vitiligo impact scale: A scale to measure the quality-of-life of family members of patients with vitiligo

Agrawal¹,

Satapathy

Gupta³

et al. 2021

IJDVL

View full text Add to dashboard Cite

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“…Although the devastating impact of vitiligo on patient's quality of life has been studied extensively, only a few studies that assessed the quality of life of family members of patients with vitiligo have been reported so far. 4,7 FDLQI was affected in as high as 98% family members in our study, especially in domains of emotional distress, personal relationships, people's reactions to the disease and social life. Basra et al reported emotional impact and burden of care to be the most influenced domains.…”

mentioning

confidence: 62%

“…Our analysis showed a much higher degree of deterioration of family members' quality of life in comparison to the previous similar studies. 4,7 It could be due to the social discrimination faced by Indian patients due to easy visibility of lesions and various myths prevalent about this condition, leading to greater perception of disability and thus having a profound bearing on entire family's psychology.…”

mentioning

confidence: 99%

Impact on quality of life of family members of vitiligo patients in North India: A cross-sectional study using family dermatology life quality index

Agarwal¹,

Jain²,

Shaafie³

et al. 2021

IJDVL

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Impact on quality of life in family members of patients suffering from vitiligo

Saxena¹,

Dey²,

Chaudhary³

et al. 2020

IJCED

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Vitiligo affects patients profoundly as onlookers tend to stare at individuals with Vitiligo which impacts social life of patients and family members. Family members are hidden patients which are often missed in clinics, they suffer psychologically and never seek consultation for their suffering. To analyze effect of vitiligo on family member’s quality of life and to identify the different aspects of a family member’s FDLQI that may be affected by having a family member with Vitiligo. Consenting adults family members of 50 patients with Vitiligo, attending the OPD of a tertiary care, teaching hospital completed the standard FDLQI questionnaire. Based upon the FDLQI scoring, quality of life of 62% of patient’s family member were found to be affected in varying degrees (mean total score: 11.94±7.721). 10 aspects of FDLQI of family members were identified which were adversely affected the patients skin disease. These were categorized into 10 main topic areas: Emotional distress (70%), Physical well-being (56%), personal relationship (58%), People’s attitude (66%), Social life (56%), Leisure activities (52%), Burden of care (74%), Effect on housework (52%), Financial aspect (78%). Vitiligo can have a profound impact on not just patient’s but his/her family member’s quality of life.

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Effect of occurrence of vitiligo in children over quality of life of their families: A hospital-based study using family dermatology life quality index

Cited by 6 publications

References 0 publications

Family vitiligo impact scale: A scale to measure the quality-of-life of family members of patients with vitiligo

Family vitiligo impact scale: A scale to measure the quality-of-life of family members of patients with vitiligo

Impact on quality of life of family members of vitiligo patients in North India: A cross-sectional study using family dermatology life quality index

Impact on quality of life in family members of patients suffering from vitiligo

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