Impact on quality of life of family members of vitiligo patients in North India: A cross-sectional study using family dermatology life quality index

Agarwal, Soumya; Jain, Chandni; Shaafie, Harris I.; Khalid, Ayesha N.; Singh, Anukriti

doi:10.25259/ijdvl_933_20

Cited by 3 publications

(4 citation statements)

References 8 publications

(10 reference statements)

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“…There is dearth of data regarding association of QOL indicators in vitiligo with the disease activity and area scores in patients of skin of color, particularly in the Indian scenario, in spite of the fact that highest incidence of the disease has been established in India [ 17 ]. Kim et al and Kostopoulou et al in their studies, have highlighted the fact that in vitiligo, subjective severity is more relevant than physician-rated severity in predicting QOL [ 18 , 19 ].…”

Section: Discussionmentioning

confidence: 99%

“…Five out of eight divorced patients professed to vitiligo being the ground for divorce in this study. It is noteworthy that vitiligo impacts not only the diseased individual but also the QOL of their family members including partners [ 17 ]. L Al-Mubarak et al in their study inferred that married people QOL was not as poorly influenced as that of single people, similar to the present study wherein both VIS-22 and VitiQoL scores were higher in single patients as the disease probably instils a fear of rejection and decreased future prospects of marriage [ 33 ].…”

Section: Discussionmentioning

confidence: 99%

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Impact of Vitiligo on Quality of Life in Patients of Skin of Color and Its Correlation With Clinical Severity Assessment Scores Utilizing Disease Specific Scores: a Cross-Sectional Study

Awal,

Kaur,

Singh

et al. 2024

Dermatology Practical &Amp; Conceptual

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Introduction: Assessment of disease severity of vitiligo is exigent as it is a psychosomatic ailment. VIDA (vitiligo disease activity score) and VASI (vitiligo area severity index) were previously used for this evaluation. Recently, the introduction of two vitiligo specific tools, vitiligo impact scale (VIS)-22 and Vitiligo Quality of Life Index (VitiQoL) has aided in assessing the quality of life (QOL) in a pertinent manner. Objectives: To measure the QOL in vitiligo using disease specific indices (VitiQoL and VIS-22), to assess their relationship with disease severity (VASI and VIDA) and to determine the correlation between QOL scores (VIS-22 and VitiQoL). Methods: This observational cross-sectional study included 195 patients with vitiligo, and their disease severity was calculated using VASI and VIDA scoring. Patients were asked to fill questionnaires for assessing the QOL using validated tools ie VIS-22 and VitiQoL. Results: Significant correlation was demonstrated between both QOL scores and VASI score (P value 0.001) with slightly higher values for VitiQoL (r = 0.824) than with VIS 22 (r = 0.693). Both scores exhibited a significant association with VIDA score (P value < 0.001). Moreover, statistically significant correlation was found between VIS-22 and VitiQoL, thereby proving the concordance between these scores. Conclusions: The study infers that QOL seemed to be remarkably dependent on the clinical severity scores and that higher disease activity corresponds to poorer QOL. It is imperative to precisely assess burden of vitiligo and the impairments caused by it in order to aid multi-modality management and allow more standardized research.

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Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

Impact of Vitiligo on Quality of Life in Patients of Skin of Color and Its Correlation With Clinical Severity Assessment Scores Utilizing Disease Specific Scores: a Cross-Sectional Study

Awal,

Kaur,

Singh

et al. 2024

Dermatology Practical &Amp; Conceptual

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“…As a consequence of the high prevalence of vitiligo among various global races and the social stigma attached with it even among people of high economic status, there is an overwhelming impact on QoL and psychosocial component in the patients suffering from the disease. Despite the fact that India has the highest prevalence of the disease, there is a paucity of studies on the association of QoL indicators in vitiligo with disease activity and area scores in Indian patients 15 . In this particular study, though there was no significant difference among the mean VASI scores between males and females, the mean VitiQoL scores were significantly higher among females as compared to males, statistically (p < 0.05).…”

Section: Discussionmentioning

confidence: 99%

Measurement of quality of life of vitiligo using disease-specific indicator and its association with area severity score

Awal,

Kaur,

Singh

et al. 2023

PJDV

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“…Only one of them is the generic questions for dermatologic diseases, the FDLQI. 17 The FDLQI has been used in family members of patients with epidermolysis bullosa 3 , atopic dermatitis 10,18 , psoriasis 19,20 , vitiligo 21,22 , leg ulcers 23 , and pemphigus. 24 One advantage of FDLQI is that it can be used to compare the QoL of family members under different skin conditions.…”

Section: Discussionmentioning

confidence: 99%

Validity And Reliability of The Thai Version of The Family Dermatology Life Quality Index

et al. 2023

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Objective: This study aimed to investigate the validity and reliability of the Thai version of FDLQI. Materials and Methods: Patients and their accompanying family members attending the Dermatology Outpatient Clinic at Siriraj Hospital were asked to complete the Dermatology Life Quality Index (DLQI), FDLQI, and the global question of their QoL (GQoL). The severity of the disease was assessed by physicians, the patients and the family members of the patients. Results: One hundred family members accompanying 92 patients with dermatological diseases (63% with inflammatory skin diseases and 37% with non-inflammatory skin diseases) were included. The mean age of the family members was 43.5±12.1 years and 70% were women. They had been mostly employed (74%) and graduated from universities (65%). Validity was demonstrated by a positive correlation between FDLQI and GQoL scores (rs=0.695, P<0.001), and between FDLQI and severity of the patient's disease (rs=0.578, P<0.001) as evaluated by family members. The FDLQI showed high internal consistency (Cronbach’s alpha=0.84) and test-retest reliability (ICC= 0.85). Conclusion: The construct validity, internal consistency, and test-retest reliability of the Thai FDLQI demonstrated acceptable validity and reliability. The Thai version of FDLQI can be used to assess the QoL of family members of patients with any dermatological diseases.

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Impact on quality of life of family members of vitiligo patients in North India: A cross-sectional study using family dermatology life quality index

Cited by 3 publications

References 8 publications

Impact of Vitiligo on Quality of Life in Patients of Skin of Color and Its Correlation With Clinical Severity Assessment Scores Utilizing Disease Specific Scores: a Cross-Sectional Study

Impact of Vitiligo on Quality of Life in Patients of Skin of Color and Its Correlation With Clinical Severity Assessment Scores Utilizing Disease Specific Scores: a Cross-Sectional Study

Measurement of quality of life of vitiligo using disease-specific indicator and its association with area severity score

Validity And Reliability of The Thai Version of The Family Dermatology Life Quality Index

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