Educação Inclusiva: Olhar dos Profissionais Sobre as Crianças Com Síndrome Congênita do Zika Vírus na Gerência Regional de Educação Cajazeiras e Pirajá: um Estudo Transversal

Avelino, Monique Ornellas de Almeida; Ferraz, Priscila Correia da Silva

doi:10.1590/1980-54702021v27e0056

Cited by 2 publications

(2 citation statements)

References 13 publications

(21 reference statements)

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“…This was consistent with some perceptions and experiences of mothers in the present study regarding the attitudes of education professionals. Investments in continuing education, structural changes, inclusive equipment and new pedagogical strategies have been suggested to face this scenario and contribute to more inclusive educational spaces for children with disabilities 56 . Masonbrink and Hurley 57 further emphasized the need for careful planning for safe and equitable school reopening and strategies that ensure additional support for children with disabilities.…”

Section: Discussionmentioning

confidence: 99%

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

de Lima Nascimento Coutinho,

Feldner,

Coelho

et al. 2023

Health Expectations

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IntroductionIn Brazil, more than 3500 children with congenital Zika syndrome (CZS) face difficulties participating in activities of daily living, which may be aggravated by health emergencies, such as the COVID‐19 pandemic. Participation could be defined as the individual's involvement in daily life situations, and participation restrictions are problems that may arise in involvement in everyday situations.AimTo explore the daily lives of children with CZS during the COVID‐19 pandemic using photographic narratives captured by mothers and discuss possible strategies to improve participation results.MethodsIn this participatory action research, seven young Brazilian mothers acted as co‐researchers using photovoice to describe the experiences of their children with CZS (from 2 to 5 years old). Also, mothers contributed to validate the contents. The research was conducted online and included the following steps: pilot study, recruitment, individualized training, sociodemographic interview, photovoice training, photo taking, focus group for contextualization, data transcription and analysis and validation of analyses by the mothers.ResultsContent analysis revealed five categories that influenced the participation of the children: participation preferences, family relationships, access to healthcare, access to education and social isolation. Regarding participation preferences, mothers reported their children's desire to play with peers and family members and have autonomy. Mothers described the family environment as a happy, peaceful and safe place for the children. Lack of therapy was perceived to negatively impact the health of children; thus, treatments were considered essential for child development. Access to education included accessibility of remote education and a perceived lack of infrastructure and pedagogical preparation. Last, social isolation due to COVID‐19 directly affected the daily lives and behaviour of the children, interrupting therapies and medical appointments.ConclusionThe photos and narratives captured several aspects of the daily lives of children with CZS impacted by the COVID‐19 pandemic, reinforcing the importance of considering the negative effects of social isolation and offering education and social assistance to promote participation and integral health.Patient/Public ContributionConsistent with a participatory action research framework, Mothers acted as co‐researchers and participated in all stages of the research, especially in validating the data analysed by the researchers.

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Section: Discussionmentioning

confidence: 99%

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

de Lima Nascimento Coutinho,

Feldner,

Coelho

et al. 2023

Health Expectations

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“…Importante mencionarmos que, com a epidemia do Zika Vírus que acometeu mulheres grávidas fortemente entre os anos de 2015 e 2016, tivemos o nascimento de inúmeras crianças com a Síndrome Congênita do Zika Vírus (SCZV) com deficiência múltipla severa (PLETSCH; SÁ; ROCHA, 2021;SÁ;PLETSCH, 2021). Os dados de algumas investigações revelam que as práticas educativas e do sistema de apoio especializado têm sido insuficientes para atender às especificidades de aprendizagem desses alunos, sobretudo nos casos que demandam intervenções mais sistematizadas com comunicação alternativa que podem favorecer a participação educacional e social desses sujeitos, assim como a sua qualidade de vida (LIMA; ANDRADE; APARÍCIO, 2021;FREITAS;JACOB, 2019;AVELINO;FERRAZ, 2021). Há falta de formação e de conhecimento entre os profissionais da educação sobre as implicações da deficiência múltipla para a escolarização e de discussões sobre estratégias para que esses alunos participem das atividades e das práticas educativas (ROCHA;PLETSCH, 2018).…”

Section: Introductionunclassified

O que revelam as políticas e os indicadores sobre a escolarização de alunos com deficiência múltipla no Brasil (1974-2021)?

Rebelo¹,

Pletsch

2023

Rev. Educ. Espec.

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A escolarização da população com deficiência múltipla ainda enfrenta inúmeros desafios no contexto brasileiro. Nesse sentido, este artigo analisa os indicadores de matrículas de alunos com deficiência múltipla entre 1974 e 2021 e as orientações políticas para a educação dessa parcela da população. Em termos metodológicos, foram analisados documentos normativos e orientadores sobre o público da Educação Especial e levantamentos estatísticos do Instituto Nacional de Estudos e Pesquisas Educacionais Anísio Teixeira (Inep). As análises mostraram, entre outros aspectos, aumento das matrículas de pessoas com deficiência múltipla em escolas comuns de ensino, falta de consenso sobre quem e quantos seriam esses alunos nos documentos oficiais, fragilidades nas diretrizes políticas sobre ações intersetoriais e estratégias educativas, sobretudo daqueles que demandam intervenções pedagógicas mais específicas, como o uso da comunicação alternativa, por exemplo, o caso das crianças acometidas pela Síndrome Congênita do Zika Vírus.

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Educação Inclusiva: Olhar dos Profissionais Sobre as Crianças Com Síndrome Congênita do Zika Vírus na Gerência Regional de Educação Cajazeiras e Pirajá: um Estudo Transversal

Cited by 2 publications

References 13 publications

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

The burden of global outbreaks: Photos of the daily lives of children with congenital Zika syndrome during the COVID‐19 pandemic

O que revelam as políticas e os indicadores sobre a escolarização de alunos com deficiência múltipla no Brasil (1974-2021)?

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