Documenting and Understanding Parent’s Intervention Choices for Their Child with Autism Spectrum Disorder

Shepherd, Daniel; Csako, Rita; Landon, Jason; Goedeke, Sonja; Ty, Kelly

doi:10.1007/s10803-017-3395-7

Cited by 36 publications

(31 citation statements)

References 40 publications

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“…Parental decision-making regarding what interventions to prioritize for their child with ASD is influenced by the available resources and the professionals they meet (Shepherd et al, 2018). Thus, an increased awareness among professionals of the kind of support that is needed in physical activity promotion for adolescents with ASD would benefit the development of healthy physical activity habits in this group.…”

Section: Clinical Implications and Future Researchmentioning

confidence: 99%

Parents’ perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder

Arnell

Jerlinder

Lundqvist

2020

Autism

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The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits, and they possess important knowledge about the adolescents’ needs when it comes to enhancing participation in physical activity. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe parents’ perceptions of their adolescent child’s participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12–16 years with autism spectrum disorder were interviewed. The interviews were analyzed using an inductive content analysis approach. The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents’ physical activity participation. Lay abstract What is already known about the topic? The parents of adolescents with autism spectrum disorder have a vital and proactive role in encouraging healthy physical activity habits. But promoting healthy physical activity habits in adolescents can be difficult. The purpose of this study was thus to describe the parental perceptions of their adolescent child’s participation in physical activity and to describe the parental role in promoting such participation. Twenty-eight parents of adolescents aged 12–16 years with autism spectrum disorder were interviewed. What this paper adds? The parents described how challenging participation in physical activities could be for their adolescents. Despite this, they wanted to see their children participate more in physical activity but found the promotion of physical activity to be an overwhelming task that was difficult to cope with on their own. Implications for practice, research, or policy. The results reveal a need for support and collaborative efforts among different actors to give these issues increased priority in order to promote the adolescents’ physical activity participation.

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Section: Clinical Implications and Future Researchmentioning

confidence: 99%

Parents’ perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder

Arnell

Jerlinder

Lundqvist

2020

Autism

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“…This is not surprising, as children with ASD in Sweden are entitled to free support services ensured by several pieces of national legislation [ 96 ]. Research has shown that parents of children with ASD are more likely to choose government-funded interventions than self-funded [ 97 ]. Indeed, in the present study, some families from an immigrant background mentioned the high cost of available ASD interventions in their home countries.…”

Section: Discussionmentioning

confidence: 99%

Culturally diverse families of young children with ASD in Sweden: Parental explanatory models

et al. 2020

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Background Research suggests that families' knowledge and cultural perceptions of autism spectrum disorder (ASD), and beliefs about its etiology and prognosis, can affect parents' recognition of the first signs of autism in their children and influence help seeking and treatment decisions. Objective This study investigated explanatory models of autism among parents of young children with ASD in the multicultural context of Sweden. Method Seventeen parents from diverse cultural, ethnic and linguistic backgrounds participated in semi-structured interviews. A deductive approach to qualitative content analysis was used to analyze data. Five domains of the Explanatory Model supplementary module of the Cultural Formulation Interview (CFI) were used as coding categories, operationalized as 'Parents' understanding of autism'; 'Autism prototypes'; 'Causal explanations'; 'Course of autism', and 'Help seeking and treatment expectations' Results The results showed that parents' prior knowledge of autism and experience of young children's typical developmental trajectories, as well as the opinions of children's grandparents and preschool teachers, affected symptom recognition and help seeking. There were differences in parents' explanatory models before and after ASD diagnosis. Initial interpretations of the disorder included medical conditions and reaction to environmental influences, while genetic, supernatural/religious factors, and vaccinations were mentioned as definite causes after obtaining a clinical diagnosis. Parents also held multiple explanatory models,

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“…Dünyada bir çok ebeveynin çocuğuna konan otizm tanısı ile baş etmekte zorlandığı bildirilmiştir (14). Bu araştırmada, çocuğuna otizm tanısı konan ebeveynlerin bu süreçte yaşadıkları deneyimlerin ortaya konması planlanmıştır.…”

Section: Discussionunclassified

Oti̇zm Spektrum Bozukluğu Tanisi İle Yaşamak: Ai̇leleri̇n Deneyi̇mleri̇

Akkuş¹,

Saygan²,

Bahadur³

et al. 2020

Turkish Journal of Pediatric Disease

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Sosyal ve iletişimsel kısıtlılık ile tekrarlayıcı ve kısıtlı davranışlarla karakterize bir nörogelişimsel bozukluk olan Otizm Spektrum Bozukluğu'nun (OSB) sıklığı dünyada giderek artmaktadır. OSB tanısı konan çocukların tipik gelişim gösteren yaşıtlarına göre gereksinimlerinin daha fazla olması, bu gereksinimleri karşılama sorumluluğunu da arttırmakta ve bu durum ailelerin hayatını zorlaştırabilmektedir. Bu araştırmada, okul öncesi dönemde OSB tanısı konmuş çocuğu olan ailelerin yaşadıkları deneyimlerin ve tanının yaşamlarına etkisinin derinlemesine incelenmesi hedeflenmiştir. Gereç ve Yöntemler: Bu amaçla OSB tanısı konmuş çocuğu olan 19 anne ile yarı yapılandırılmış bireysel görüşmeler yapılıp, sonrasında veriler tematik analiz yöntemiyle kodlanmıştır. Bulgular: Çalışmanın sonucunda, OSB tanısının aile ilişkileri, sosyal yaşam ve iş hayatı üzerinde yarattığı olumsuz etkiler ortaya konmuştur. Ayrıca, OSB tanısı konmuş çocuğun ve ebeveynlerinin günlük hayatta, okul hayatında ve sağlık hizmeti alırken yaşadıkları zorluklar belirlenmiştir. Sonuç: Bu çalışmanın bulguları, OSB tanısı konmuş çocuğu olan ailelerin deneyimlerini ve yaşadıkları zorlukları derinlemesine anlama olanağı verdiğinden, alanda hizmet verenler ve politika yapıcılar tarafından dikkate alınmasının yararlı olacağı düşünülmektedir.

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Documenting and Understanding Parent’s Intervention Choices for Their Child with Autism Spectrum Disorder

Cited by 36 publications

References 40 publications

Parents’ perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder

Parents’ perceptions and concerns about physical activity participation among adolescents with autism spectrum disorder

Culturally diverse families of young children with ASD in Sweden: Parental explanatory models

Oti̇zm Spektrum Bozukluğu Tanisi İle Yaşamak: Ai̇leleri̇n Deneyi̇mleri̇

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