Development and Validation of the Russian Version of the Questionnaire for the Utilitarian Indexes Evaluation in Pediatrician Practice

Баранов, А. А.; Альбицкий, В. Ю.; Винярская, И В; Chernikov, V.V.; Устинова, Н. В.; Simonova, O.; Горинова, Ю. В.; Samsonova, M. S.

doi:10.15690/pf.v9i1.156

Cited by 3 publications

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References 5 publications

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“…и Ионова Т.И. (2002,2007) дают следующее определение: «Качество жизниинтегральная характеристика физического, психологического, эмоционального и социального функционирования человека, основанная на его субъективном восприятии» [2].…”

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“…Проводимые исследования динамики качества жизни в Российской Федерации в качестве основных показателей включали анализ заболеваемости и смертности [5]. По мнению целого ряда авторов, качество жизни может стать дополнительным критерием, позволяющим обеспечить комплексный подход к оценке состояния здоровья детей, оценить психологическую и социальную дезадаптацию ребенка, его отношение к своему состоянию [1,2]. Учитывая тот факт, что здоровье оказывает влияние на качество жизни, а само качество жизни характеризует развитие медицинской и социальной помощи, можно говорить о том, что качество жизни является интегральным показателем здоровья [6].…”

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Quality of Life in the Evaluation of Adolescent`s Health

Ignatova¹,

Menshikova²,

Dyachkova³

2017

Zdor. obraz. XXI veke (Ž. naučn. statej)

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Северный государственный медицинский университет, г. Архангельск, Российская Федерация Аннотация. Представлены результаты анализа данных профилактических медицинских осмотров несовершеннолетних и диспансеризации подростков, пребывающих в стационарных учреждениях и находящихся в трудной жизненной ситуации, за период с 2013 по 2015 годы в Архангельской области. Выявлены различия в состоянии здоровья и структуре заболеваемости. Обоснована необходимость оценки качества жизни в комплексном обследовании подростков.

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Quality of Life in the Evaluation of Adolescent`s Health

Ignatova¹,

Menshikova²,

Dyachkova³

2017

Zdor. obraz. XXI veke (Ž. naučn. statej)

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Possibilities of the Health Utilities Index questionnaire in assessing the quality of life of children with disabilities

Vinyarskaya

Terletskaya²,

Chernikov³

et al. 2022

Kazan Med J

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Background. Currently, in the Russian Federation, the criteria for establishing disability do not take into account the assessment of the quality of life, while in developed countries this indicator is a mandatory component of examination programs and evaluation of the effectiveness of treatment and rehabilitation. In Russian pediatrics, research on the development of indicators of the quality of life in children with chronic disabling diseases has begun, this work is a continuation of this direction. Aim. To assess the quality of life of disabled children with various somatic diseases using all the possibilities of the Health Utilities Index questionnaire. Material and methods. A survey of 213 patients aged 5 to 18 years with chronic diseases with the status of a disabled child and their legal representatives was conducted using the Russian version of the international general questionnaire Health Utilities Index. Statistical analysis was performed using the SPSS software package version 26.0. The KruskalWallis test and Dunn's posterior test were used. Results. During the study, multi-attribute utilitarian indices were developed for each group of children, which ranged from 0.670.3 (95% confidence interval 0.550.78) in patients with rheumatological diseases to 0.850.21 (95% confidence interval 0.790.91) in children with heart disease and statistically significantly (p 0.001) were lower than in healthy children (0.90.17; 95% confidence interval 0.870.92). The features of one-attribute utilitarian indices depending on the class of the disease have been established. An analysis of the level and degree of functioning disorders showed that the most common and frequent for children with disabilities in the studied groups were emotional disorders; problems associated with the presence of pain; disability caused by a sense of cognitive deficit. For the first time, to determine the categories of the severity of violations an approach according to a multi-attribute utilitarian index was used. Conclusion. The quality of life in children with disabilities, reduced compared to healthy peers, has nosological features; the most pronounced decrease in the quality of life was noted in children with skin diseases and rheumatological diseases.

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Features of changes in the quality of life in cystic fibrosis patients against the background of its effective treatment

Samsonova¹,

Simonova²,

Vinyarskaya³

et al. 2019

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For the determination of characteristics of LQ ofpatients with cystic fibrosis (CF) and evaluation of the efficacy of the management there was used Health Utilities Index (HUI) questionnaire. The study involved 99 CF patients at the age of from 5 to 18 years. The comparison group - 102 conditionally healthy peers of the same age. All children underwent to a comprehensive medical examination and treatment. LQ assessment was carried with the aid of the HUI questionnaire. CF patients were found to have a significant decline in overall LQ in 84,8% of cases in comparison with their healthy peers. Analysis of the «way of life cohort» showed the fall in multiattribute utility indices in children at the age of 6.12 and 16 years. There was also noted a pronounced decline of indices on attributes: «pain» in 55,6%, «emotions» - in 65,6% and the «self-care» - in 20,2% of cases. Factors significantly affecting on LQ of CF patients were established to be: the presence of homozygous or heterozygous delta F508 mutation, disturbances of the respiratory function and malnutrition, which contributed to a decrease as in the overall index as well in specific aspects of LQ. Against the background of the management during the one hospitalization there was noted the positive dynamics due to the gain in the index of the emotional background. A similar situation was revealed after 6 months in re-hospitalization. Pronounced positive dynamics was noted after the management of patients with severe course of the disease, the worst values of radiological indices and a decline in FEV1 indices. The authors believe the study of LQ of CF patients to be important not only for the evaluation of the impact of the disease on the patient’s LQ, but also for the determination of the efficacy of the management.

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Development and Validation of the Russian Version of the Questionnaire for the Utilitarian Indexes Evaluation in Pediatrician Practice

Cited by 3 publications

References 5 publications

Quality of Life in the Evaluation of Adolescent`s Health

Quality of Life in the Evaluation of Adolescent`s Health

Possibilities of the Health Utilities Index questionnaire in assessing the quality of life of children with disabilities

Features of changes in the quality of life in cystic fibrosis patients against the background of its effective treatment

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