Development and Validation of a Patient Reported Experience Measure (PREM) for Patients with Rheumatoid Arthritis (RA) and other Rheumatic Conditions

Bosworth, Ailsa; Cox, Maureen; O’Brien, Anne; Jones, Peter; Sargeant, Ify; Elliott, Alison M; Bukhari, Marwan

doi:10.2174/1573397111666150522093712

Cited by 25 publications

(24 citation statements)

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“…This suggests that some questions are redundant within domains. However, our results for internal consistency did not differ from the original development study, both in RA patients (α = 0.65 to α = 0.93 (DREAM-RA) versus α = 0.61 to α = 0.90) and in SpA patients (α = 0.70 to α = 0.90 (SpA-Net) versus α = 0.76 to α = 0.91) [10]. Interpretability of the CQRA-PREM showed ceiling effects for the domains needs and preferences, daily living and physical comfort, and emotional support, which implies that the interpretability of the CQRA-PREM is not valid enough.…”

Section: Discussioncontrasting

confidence: 89%

“…Answers are given on a 5-point Likert scale ranging from "strongly disagree" to "strongly agree" (online resources 1 and 2) [15]. Detailed information on the development and validation of the CQRA-PREM can be found elsewhere [10].…”

Section: Prem Translationmentioning

confidence: 99%

“…The NPEF domains can be used to identify specific areas of improvement from the patients' perspective within care departments. The implementation of the CQRA-PREM in rheumatology units was found to be effective in this regard [10].…”

Section: Introductionmentioning

confidence: 99%

“…In the United Kingdom (UK), a PREM has been developed by the Commissioning for Quality in Rheumatoid Arthritis Patient-Reported Experience Measure (CQRA-PREM) to evaluate patients' perspectives on care provided in rheumatology units in the UK National Health Service (NHS) [10]. This questionnaire has been developed and validated in RA, modified and validated in other rheumatic conditions, and has been in use since 2015 [10,11].…”

Section: Introductionmentioning

confidence: 99%

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Validation and implementation of a patient-reported experience measure for patients with rheumatoid arthritis and spondyloarthritis in the Netherlands

et al. 2020

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Objectives To test the psychometric properties of the United Kingdom’s Commissioning for Quality in Rheumatoid Arthritis Patient-Reported Experience Measure (CQRA-PREM) in patients with spondyloarthritis (SpA) and rheumatoid arthritis (RA) and to implement this questionnaire in daily practice in the Netherlands. Methods After a forward-backward translation procedure into Dutch, the CQRA-PREM was tested into two quality registries in daily practice. Face validity was assessed with focus group interviews. Feasibility was evaluated through completion times and interpretability of domain scores through floor and ceiling effects. Internal consistency (Cronbach’s α coefficients) and homogeneity (corrected item-total correlations) were determined. Divergent validity was assessed by Spearman’s rank correlation coefficients (rs) between the average scores of domains and outcome measures. The CQRA-PREM was implemented in daily practice, and the results were used in quality improvement cycles. Results Face validity of the CQRA-PREM was good. The CQRA-PREM was completed by 282 patients with SpA and 376 with RA. Median time to complete the CQRA-PREM was 4.7 min. Ceiling effects were found in three out of seven domains. Internal consistency of nearly all domains was considered good (0.65 ≤ α ≤ 0.95). Thresholds for homogeneity were exceeded within three domains (rp > 0.7), suggesting item redundancy. Divergent validity showed that nearly all domains of the CQRA-PREM were at most weakly correlated with outcomes measures (− 0.3 ≤ rs ≤ 0.3). The CQRA-PREM could identify areas of improvement for providing patient-centered care. Conclusion The CQRA-PREM has acceptable psychometric properties and has shown to be a useful tool in evaluating quality of care from the patients’ perspective in the Netherlands. Trial registration SpA-Net is registered in the Netherlands Trial Registry (NTR6740). Key Points • The Commissioning for Quality in Rheumatoid Arthritis Patient-Reported Experience Measure (CQRA-PREM) is a valid measure for assessing patient-centeredness of rheumatology care. • The Dutch version of the CQRA-PREM shows acceptable psychometric properties. • The CQRA-PREM shows to be a useful tool in Plan-Do-Check-Act quality improvement cycles in the Netherlands. • The CQRA-PREM can be used for benchmarking and quality improvement of rheumatology services.

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Section: Discussioncontrasting

confidence: 89%

Section: Prem Translationmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

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Validation and implementation of a patient-reported experience measure for patients with rheumatoid arthritis and spondyloarthritis in the Netherlands

et al. 2020

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“…There is an increased emphasis in Europe on measures of patient experience as health care quality indicators across different medical disciplines. PREMs have been widely used and integrated in the evaluation of quality of care for chronic heart failure, 18 mental health, 17 diabetes, asthma, and rheumatoid arthritis, 19 in emergency care services, 20 and to measure patients’ experience with medicine use. 21 The NAIC in England and Wales has included PREMs designed specifically for IC since 2013.…”

Section: Introductionmentioning

confidence: 99%

Validation of the Italian version of the Patient Reported Experience Measures for intermediate care services

Cinocca¹,

Rucci²,

Randazzo³

et al. 2017

PPA

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BackgroundIntermediate care (IC) services are a key component of integrated care for elderly people, providing a link between hospital and home through provision of rehabilitation and health and social care. The Patient Reported Experience Measures (PREMs) are designed to measure user experience of care in IC settings.ObjectiveTo examine the feasibility and the scaling properties of the Italian version of PREMs questionnaires for use in IC services.MethodsA cross-sectional survey was conducted on consecutive users of 1 home-based and 4 bed-based IC services in Emilia-Romagna (Italy). The main outcome measure was the PREMs questionnaire results. PREMs for each home- and bed-based IC services were translated, back-translated, and adapted through consensus among the members of the advisory board and pilot testing of face validity in 15 patients. A total of 199 questionnaires were returned from users of bed-based services and 185 were returned by mail from users of home-based services. The return rates and responses were examined. Mokken analysis was used to examine the scaling properties of the PREMs.ResultsAnalysis performed on the bed-based PREMs (N=154) revealed that 13 items measured the same construct and formed a moderate-strength scale (Loevinger H=0.488) with good reliability (Cronbach’s alpha =0.843). Analysis of home-based PREMs (N=134 records) revealed that 15 items constituted a strong scale (Loevinger H=0.543) with good reliability (Cronbach’s alpha =0.875).ConclusionThe Italian versions of the bed- and home-based IC-PREMs questionnaires proved to be valid and reliable tools to assess patients’ experience of care. Future plans include monitoring user experience over time in the same facilities and in other Italian IC settings for between-service benchmarking.

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Patient-Centredness and Patient-Reported Measures (PRMs) in Palliation of Lung Disease

Russell¹,

Saketkoo²

2021

Respiratory Medicine

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Development and Validation of a Patient Reported Experience Measure (PREM) for Patients with Rheumatoid Arthritis (RA) and other Rheumatic Conditions

Abstract: The RA PREM and the modified PREM provide new valuable validated tools for capturing the patient experience in a range of rheumatic conditions. The RA PREM is currently being used in a UK National Clinical Audit of Rheumatoid and Early Inflammatory Arthritis.

Cited by 25 publications

References 0 publications

Validation and implementation of a patient-reported experience measure for patients with rheumatoid arthritis and spondyloarthritis in the Netherlands

Validation and implementation of a patient-reported experience measure for patients with rheumatoid arthritis and spondyloarthritis in the Netherlands

Validation of the Italian version of the Patient Reported Experience Measures for intermediate care services

Patient-Centredness and Patient-Reported Measures (PRMs) in Palliation of Lung Disease

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