Dementia wellbeing and COVID‐19: Review and expert consensus on current research and knowledge gaps

Liu, Kathy; Howard, Robert; Banerjee, Sube; Comas-Herrera, Adelina; Goddard, Joanne; Knapp, Martín; Livingston, Gill; Manthorpe, Jill; O’Brien, John; Paterson, Ross W.; Robinson, Louise; Rossor, Martin N.; Rowe, James B.; Sharp, David J.; Sommerlad, Andrew; Suárez‐González, Aida; Burns, Alistair

doi:10.1002/gps.5567

Cited by 60 publications

(56 citation statements)

References 121 publications

(70 reference statements)

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“…Therefore, conclusions drawn from this review should be interpreted with caution and follow-up systematic reviews with higher quality data are warranted. It is worth noting that evidence provided in this review are in accordance with more recent findings being published on an ongoing basis (e.g., [ 71 , 72 , 73 , 74 , 75 , 76 , 77 , 78 , 79 ]). Despite these limitations, the current systematic review allowed to highlight the extent of the effects of the pandemic, and the results established should be taken into consideration by healthcare practitioners, institutions, and policymakers to ensure that proper measures are employed to protect this population from additional harm.…”

Section: Discussionsupporting

confidence: 90%

Systematic Review on the Mental Health and Treatment Impacts of COVID-19 on Neurocognitive Disorders

Dellazizzo

Léveillé

Landry

et al. 2021

JPM

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Objectives. The COVID-19 pandemic has had many public health impacts, especially on vulnerable individuals including adults with neurocognitive disorders (NCD). With increasing literature, this systematic literature review aimed to address the mental health effects of COVID-19 on people with NCD in addition to examine the impact of the pandemic on treatments/resources for NCD. Methods. A literature search was conducted in the electronic databases of PubMed, PsycINFO, Web of Science and Google Scholar. Studies were included so long as they assessed the mental health or therapeutic effects of COVID-19 on NCD. Results. Among the retrieved articles, 59 met eligibility criteria. First, the pandemic and resulting self-isolation led to many detrimental effects on psychological well-being. Exacerbation and relapses of neurocognitive and behavioral symptoms were observed, as well as emergences of new psychological symptoms (i.e., depression, anxiety). Second, therapeutic and community services for individuals suffering from NCD, such as social support services and outpatient clinics, were disrupted or reduced leading to postponed appointments and evaluations, as well as reduced access to medications. These issues were somewhat palliated with the growth of telemedicine. Conclusion. This systematic review highlights the extent of the effects of the pandemic, and the topics addressed should be taken into consideration by healthcare practitioners, institutions, and policymakers to ensure that proper measures are employed to protect this population from additional harm.

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Section: Discussionsupporting

confidence: 90%

Systematic Review on the Mental Health and Treatment Impacts of COVID-19 on Neurocognitive Disorders

Dellazizzo

Léveillé

Landry

et al. 2021

JPM

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“…Considering that this pandemic could be long-lasting and that the mental health of caregivers of patients with cognitive decline/dementia has been demonstrated to be at risk regardless of the COVID-19 emergency (De Fazio et al, 2015;Corrêa et al, 2019;Lloyd et al, 2019), there is a need to investigate the real effects of the current emergency on caregivers of patients with dementia to identify and address adequate interventions (Liu et al, 2021).…”

Section: Introductionmentioning

confidence: 99%

The Mental Health of Caregivers and Their Patients With Dementia During the COVID-19 Pandemic: A Systematic Review

et al. 2021

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Background: Coronavirus Disease 2019 (COVID-19) is a worldwide public health concern. It continues to spread rapidly throughout the world causing multiple physical and psychological consequences in the population. Especially, people affected by severe psychiatric or neurological diseases are highly susceptible to serious health complications not only due to the direct effect of the infection but also to the indirect effect of COVID-19 following social distancing during lockdowns and its general social consequences. Indeed, lockdown and difficulties in using the care services produced psychological consequences in caregivers such as depression, anxiety, and worsening of the quality of life which in turn affected the ability to manage patients. Our aim was to systematically review the psychological consequences of the COVID-19 lockdown in caregivers of patients with cognitive impairment and dementia and the impact on the health of their patients.Methods: A systematic literature search was conducted by searching in MEDLINE/PubMed, Scopus, and Web of Science by two independent researchers following the Preferred Reporting Items for Systematic Reviews and Meta-Analyses (PRISMA) statement guidelines. Data extraction and quality assessment were also performed. Papers were screened for eligibility by abstract and then those which met inclusion criteria were included in this review.Results: The initial search returned 410 records. After the abstract screening and the inclusion/exclusion criteria were applied, 315 were excluded because they were irrelevant, 30 because they were reviews, meta-analyses, letters to editors, editorials, guidelines, or case reports, and 10 because they were duplicates. Then, 38 out of 55 abstracts/full-text articles were excluded because they did not simultaneously assess mental health of patients and caregivers. In the end, 17 papers were deemed eligible and included in the present review.Conclusion: Based on current literature, the COVID-19 pandemic and the ensuing lockdown caused severe psychological consequences for caregivers of patients with dementia, worsening their mental health, and increasing the psychological and physical burden, independently from the severity of the disease of their relatives, which resulted also independently globally worsened.

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“…Caregivers have emphasized person-centered care, staying close to older PWD to carefully understand their facial expressions, conversations, behaviors, and surrounding environment. However, in the wake of COVID-19, social and physical contact between older PWD and their caregivers decreased, and it was difficult for caregivers to implement the same contact-based care as before [ 20 ]. In order to provide continued dementia care and support while adhering to infection control measures for older PWD, family members and formal caregivers such as healthcare and long-term care professionals need to seek best practices and collaborate with each other.…”

Section: Introductionmentioning

confidence: 99%

Person-centered dementia care during COVID-19: a qualitative case study of impact on and collaborations between caregivers

et al. 2022

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Background Little is known about the actual impact of COVID-19 on caregivers of older people with dementia and resultant collaborations among them to provide continued person-centered care while undertaking infection control measures. In this study, we explored the impact of providing dementia care during COVID-19 on caregivers involved in dementia care. Methods This is an exploratory qualitative case study. The participants were family members living with older people with dementia, care managers, and the medical and long-term care facility staff. Data were collected from 46 caregivers via face-to-face and semi-structured interviews and analyzed using thematic analysis. Results The interviews identified 22 themes related to the impact of COVID-19 on different positions of the caregivers involved in dementia care and their collaboration, and we categorized them into six categories. The core themes were “re-acknowledgement of care priorities” and “rebuilding of relationships.” When caregivers’ perceptions were aligned in the decision-making processes regarding care priorities, “reaffirmation of trust” and “strengthening of intimate relationships” emerged as positive changes in their relationships. Furthermore, the differences in the ability of each caregiver to access and select correct and appropriate information about COVID-19, and the extent of infection spread in the region were related to “anxiety during COVID-19 pandemic” and caused a “gap in perception” regarding infection control. Conclusions The present study clarified that the process of aligning the perceptions of caregivers to the objectives and priorities of care for older people with dementia during COVID-19 pandemic strengthened the relationships among caregivers. The findings of this study are useful for caregivers involved in person-centered dementia care.

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Dementia wellbeing and COVID‐19: Review and expert consensus on current research and knowledge gaps

Cited by 60 publications

References 121 publications

Systematic Review on the Mental Health and Treatment Impacts of COVID-19 on Neurocognitive Disorders

Systematic Review on the Mental Health and Treatment Impacts of COVID-19 on Neurocognitive Disorders

The Mental Health of Caregivers and Their Patients With Dementia During the COVID-19 Pandemic: A Systematic Review

Person-centered dementia care during COVID-19: a qualitative case study of impact on and collaborations between caregivers

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