Person-centered dementia care during COVID-19: a qualitative case study of impact on and collaborations between caregivers

Kazawa, Kana; Kodama, Atsuko; Sugawara, Kaoru; Hayashi, Mikio; Ota, Hidetaka; Son, Daisuke; Ishii, Shinya

doi:10.1186/s12877-022-02794-1

Cited by 10 publications

(14 citation statements)

References 29 publications

(28 reference statements)

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Providing person and family-centered care that was safe and effective was central across participants in the choices and the decisions they made to plan and provide quality care. The alignment of perspectives is shown to be important to person-centered care specifically during the pandemic ( 24 ). Data from the surveys and focus groups/interviews highlighted the difficulties related to the pandemic and the consequences on the quality of life for families impacted by dementia.…”

Section: Discussionmentioning

confidence: 99%

A Multiple Stakeholder Perspective on the Impact of COVID-19 on Dementia Care

Masoud

Glassner

Rhodes

et al. 2022

Journal of Patient Experience

View full text Add to dashboard Cite

The aim of this study was to describe the impact of the COVID-19 pandemic on dementia care from a multiple stakeholder perspective. We used a multi-method design, with a cross-sectional survey followed by focus groups/interviews. Surveys were completed by people living with dementia (n = 27), family caregivers (n = 161), and health and social care professionals (n = 77). A sub-sample (n = 55) participated in an interview or one of 9 focus groups. Surveys were analyzed with descriptive statistics and focus group/interview data were analyzed using a thematic approach. Participants reported an impact of COVID-19 on dementia care, including less access to care and resources for care. Telehealth and tele-support/education were reported to be effective alternatives to support care. Themes from the qualitative data about dementia care were: (1) planning and providing care, (2) making choices around risk and safety, (3) experiences of loss, and (4) technology and dementia care. The results of this study present opportunities to improve the quality of care through addressing inequities and identifying improved and innovative approaches to address social isolation and virtual care for this vulnerable population.

show abstract

Section: Discussionmentioning

confidence: 99%

A Multiple Stakeholder Perspective on the Impact of COVID-19 on Dementia Care

Masoud

Glassner

Rhodes

et al. 2022

Journal of Patient Experience

View full text Add to dashboard Cite

show abstract

“…In contrast, family caregivers of home‐dwelling PWD might be conflicted regarding the advantages of using long‐term care insurance services and social interaction, such as maintaining the functions of PWD and reducing the burden of care, and the disadvantages of the risk of infection during the COVID‐19 pandemic 15 . During the difficult decision‐making process of considering the use of long‐term care insurance services by families of PWD, detailed explanations of infection control measures by healthcare providers and discussions about care priority have been shown to reduce caregiver conflicts and lead to cooperative, person‐centered dementia care 16 . These results suggest the necessity of these practices among PWD, family caregivers and healthcare providers as appropriate during repeated infection epidemics.…”

Section: Discussionmentioning

confidence: 99%

Long‐term impact of the COVID‐19 pandemic on facility‐ and home‐dwelling people with dementia: Perspectives from professionals involved in dementia care

Kazawa

Kubo

Akishita

et al. 2022

Geriatrics Gerontology Int

Self Cite

View full text Add to dashboard Cite

The present study aimed to investigate the impact of the coronavirus disease 2019 (COVID-19) pandemic on facility-and home-dwelling people with dementia (PWD).Methods: This observational study included two anonymous online survey questionnaires to explore the impact of the first wave of the COVID-19 pandemic in Japan and the long-term impact during the 2 years from the onset of the pandemic. The participants were medical and long-term care facilities representatives for older people (945 facilities in the first survey, 686 in the second), and care managers (751 in the first survey, 241 in the second). A χ 2 -test was carried out between the two surveys.Results: For facility-dwelling PWD, activities that stimulate cognitive and physical functioning increased significantly compared with the first wave of the pandemic (P < 0.05). Also, a decline in cognitive and walking functions and falls increased in the second survey compared with the first (P < 0.01). For home-dwelling PWD, the broader impact of the pandemic on support for activities of daily living, social interaction and provision of medical care did not mitigate. The high prevalence of cognitive and physical functional decline in the first survey was similar in the second. Conclusions:The prolonged COVID-19 pandemic produced changes in the lives of homeand facility-dwelling PWD, with widespread negative consequences for them. Our findings are useful to consider preventive supports to mitigate or avoid functional decline and symptom exacerbation in PWD due to changes in their living environment and the care they receive in the COVID-19 era.

show abstract

“…Additionally, a qualitative study of care services during the COVID-19 pandemic identified issues arising due to the pandemic among the care staff and families of patients [ 14 ]. Older adults receiving care services often have multiple chronic and incurable conditions including dementia, and care professionals tend to prioritize improving their QOL during care delivery.…”

Section: Discussionmentioning

confidence: 99%

“…However, with the outbreak of the COVID-19 pandemic, precautionary measures were taken to limit the number of gatherings in Japan, and the use of outpatient and long-term care services significantly decreased throughout the country [ 13 ]. Furthermore, the services provided in long-term care facilities were also affected by the precautionary measures, which included social distancing and other infection-control measures [ 14 ]. However, despite these preventive measures, COVID-19 infection clusters still formed in nursing homes, and services had to be suspended during specific periods.…”

Section: Introductionmentioning

confidence: 99%

Factors Associated with Behavioral and Psychological Symptoms of Dementia during COVID-19

Kuroda

Sugimoto

Satoh

et al. 2022

IJERPH

View full text Add to dashboard Cite

(1) Background: Preventive measures to control the spread of COVID-19 are essential, but they often cause social isolation and diminish the physical and mental health of older adults. In cognitively impaired individuals, the pandemic has worsened behavioral and psychological symptoms of dementia (BPSD). Here, we explored the factors contributing to the worsening of BPSD during the COVID-19 pandemic. (2) Methods: Potential patients were identified at a memory clinic in Japan between June 2017 and June 2021. Eligible patients had a diagnosis of mild cognitive impairment (MCI) or dementia during the study period. The outcome was BPSD, as assessed by using the Dementia Behavioral Disorders Scale. Information on patients’ lifestyle habits and use of care services was obtained for use as primary explanatory variables; multiple regression analysis was performed to examine the relationship between BPSD and care services use or lifestyle habits. The model was adjusted for sociodemographic factors, and the interaction terms of the pandemic period with lifestyle and service use were included to evaluate the effects of COVID-19. (3) Results: We identified 977 participants with MCI and 1380 with dementia (MCI group: 69.8% age 75 years or older, 54.2% female; dementia group: 79.8% age 75 years or older, 64.8% female). After adjustment for possible confounders, significantly worse BPSD was demonstrated in those who used daycare services during COVID-19 (both MCI and dementia patients; p = 0.007 and p = 0.025 respectively) and in those with poor nutritional function (dementia patients; p = 0.040). (4) Conclusions and Implications: During COVID-19, poor nutritional status and use of daycare services were associated with BPSD in those with cognitive decline. These findings indicate the need to fully examine the quantity and quality of care services for people with cognitive decline during emergencies and to continue to provide effective services.

show abstract

Person-centered dementia care during COVID-19: a qualitative case study of impact on and collaborations between caregivers

Cited by 10 publications

References 29 publications

A Multiple Stakeholder Perspective on the Impact of COVID-19 on Dementia Care

A Multiple Stakeholder Perspective on the Impact of COVID-19 on Dementia Care

Long‐term impact of the COVID‐19 pandemic on facility‐ and home‐dwelling people with dementia: Perspectives from professionals involved in dementia care

Factors Associated with Behavioral and Psychological Symptoms of Dementia during COVID-19

Contact Info

Product

Resources

About