Deaf signers and hearing aids: motivations, access, competency and service effectiveness

Hulme, Celia; Young, Alys; Rogers, Katherine; Munro, Kevin J.

doi:10.1080/14992027.2022.2143431

Cited by 4 publications

(2 citation statements)

References 40 publications

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“…Cultural competence, as a concept (Hulme et al, 2022;Ferguson-Coleman, Keady and Young, 2014), suggests cultural training about minority communities for health-care staff.…”

Section: Discussionmentioning

confidence: 99%

“…Cultural competence, as a concept (Hulme et al , 2022; Ferguson-Coleman, Keady and Young, 2014), suggests cultural training about minority communities for health-care staff. For Deaf carers and people with dementia, frontline staff often lack cultural competence, as the need for BSL interpreters or alternative communication methods is dismissed (Rogers, Ferguson-Coleman, and Young, 2018; Emond et al , 2015; Alexander et al , 2012).…”

Section: Discussionmentioning

confidence: 99%

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“What have YOU done in the past few years?” Deaf BSL users’ experiences of caring for people with dementia during COVID-19

Ferguson-Coleman,

Young

2023

QAOA

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Purpose Deaf people, who are British Sign Language (BSL) users, are, at times, carers for their parent or spouse when they have dementia. This can be a challenging role for the wider population, but if the common language in service provision is not one you share, then this care can be impacted by the lack of formal structures that support the Deaf caring role. This study aims to explore the experiences of Deaf carers supporting people with dementia, in an unpaid role, during the COVID-19 pandemic to understand more about their potential support preferences. Design/methodology/approach Online interviews with seven Deaf carers sharing their experiences of supporting their family member with dementia happened during the first year of the COVID-19 pandemic. Interpretive phenomenological analysis was used to qualitatively examine each Deaf carers’ stories. Findings Findings included Deaf carers’ lack of access to information, surrendering their autonomy to hearing family members to communicate with health-care professionals, with overarching isolation within local communities and online. Findings show a widespread infrastructural failure to meet the linguistic and specific support needs of this minority population. Research limitations/implications Seven Deaf carers took part in this study. This means the findings may not be generalisable. Practical implications Health-care professionals and social care structures need to develop robust clear communication pathways for Deaf carers to receive the support needed to provide effective care. Social implications If health-care professionals undertake training about Deaf people and BSL, that will mean Deaf carers will receive effective support to be able to care for a person living with dementia. This means that their Deaf identity will be recognised within the mainstream and the care provided will be much more effective for the person with dementia. Originality/value To the best of the authors’ knowledge, these are the first interviews undertaken with Deaf carers of people with dementia during the COVID-19 pandemic and its subsequent lockdowns. Understanding everyday barriers and social care limitations in terms of language access will enable Deaf carers to assert their rights and for care professionals to adapt their communication to match the individuals involved in the care package.

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“…Cultural competence, as a concept (Hulme et al, 2022;Ferguson-Coleman, Keady and Young, 2014), suggests cultural training about minority communities for health-care staff.…”

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

“What have YOU done in the past few years?” Deaf BSL users’ experiences of caring for people with dementia during COVID-19

Ferguson-Coleman,

Young

2023

QAOA

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Multilingual and multimodal methods to examining the situated communication among deaf children and their caregivers

Swanwick,

Asomaning,

Casellato

et al. 2024

Journal of Multilingual and Multicultural Development

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“They still phone even though they know I'm deaf”: exploring experiences of deaf people in health services in Wales, UK

Terry,

Meara,

England

2024

Journal of Public Health

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Background Deaf and hard of hearing people persistently experience barriers accessing health services, largely due to ineffective communication systems, a lack of flexible booking arrangements, and a lack of Deaf awareness training for health professional staff. Methods Face to face focus groups were conducted with 66 Deaf and hard of hearing people in Deaf clubs across Wales, UK. Thematic analysis was undertaken. Results Responses identified from focus groups are reported as barriers faced using health services, improvements that would make a difference, impact of accessibility of health services, and a potential Sign language badge for healthcare staff. Conclusions Deaf people report that health professionals lack training on Deaf awareness and do not know how to communicate effectively with Deaf and hard of hearing people. Further research into Deaf awareness and training resources for health professionals are needed to establish what improves Deaf cultural competencies, and ultimately makes healthcare experiences more positive for people who are Deaf.

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Deaf signers and hearing aids: motivations, access, competency and service effectiveness

Cited by 4 publications

References 40 publications

“What have YOU done in the past few years?” Deaf BSL users’ experiences of caring for people with dementia during COVID-19

“What have YOU done in the past few years?” Deaf BSL users’ experiences of caring for people with dementia during COVID-19

Multilingual and multimodal methods to examining the situated communication among deaf children and their caregivers

“They still phone even though they know I'm deaf”: exploring experiences of deaf people in health services in Wales, UK

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