Children With Diabetes Mellitus Type 1: Vulnerability, Care and Access to Health

Wolkers, Paula Carolina Bejo; Pina, Juliana Coelho; Wernet, Mônika; Furtado, Maria Cândida de Carvalho; Mello, Débora Falleiros de

doi:10.1590/1980-265x-tce-2016-0566

Cited by 6 publications

(13 citation statements)

References 28 publications

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“…. Entretanto, quanto mais forte forem os vínculos, menores serão as tensões e maior será a organização do sistema familiar para o desenvolvimento de um cuidado colaborativo, permanente e contínuo ao adolescente (23) .…”

Section: Discussionunclassified

Vivências De Familiares De Adolescentes Diagnosticados Com Diabetes Mellitus Tipo 1: Convivência, Cuidados E Mudanças

et al. 2022

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Objetivo: conhecer as vivências de familiares de adolescentes diagnosticados com Diabetes Mellitus tipo 1, relacionadas à convivência, cuidados e mudanças geradas pela doença crônica. Método: estudo qualitativo, realizado entre novembro 2017 e maio 2018 com 48 familiares de adolescentes com Diabetes Mellitus tipo 1, membros da rede social Facebook. Dados analisados segundo análise de conteúdo. Resultados: maioria de participantes eram mães, residentes no Centro-Oeste do Brasil, com idades entre 41 e 60 anos, nível superior e empregadas. Foram construídas três categorias para abordar a convivência familiar, cuidados constantes e adaptações requeridas pela doença crônica. Considerações finais: familiares de adolescentes diagnosticados com Diabetes Mellitus tipo 1 vivenciavam desafios diários, permeados por dificuldades, medos, culpas e incertezas quanto ao futuro. Dentre os desafios destacaram-se as mudanças decorrentes da condição crônica na rotina, cuidados constantes, dedicação exclusiva ao adolescente. A doença crônica possibilitou adoção de hábitos saudáveis de vida e maior cumplicidade familiar. Descritores: Adolescentes. Diabetes Mellitus. Doença Crônica. Enfermagem. Família.Objective: to know the experiences of family members of adolescents diagnosed with Type 1 Diabetes Mellitus, related to coexistence, care, and changes generated by the chronic disease. Method: qualitative study conducted between November 2017 and May 2018 with 48 family members of adolescents with Type 1 Diabetes Mellitus, members of the social network Facebook. Data analyzed according to content analysis. Results: most participants were mothers, living in the Midwest of Brazil, aged between 41 and 60 years, with a college degree, and employed. Three categories

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Section: Discussionunclassified

Vivências De Familiares De Adolescentes Diagnosticados Com Diabetes Mellitus Tipo 1: Convivência, Cuidados E Mudanças

et al. 2022

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“…Of the included articles, 2 originated in Brazil [26][27] , 1 in China 31 , 1 in Italy 28 , 1 in Sweden 24 , 1 in Canada 30 , and 2 in the United States of America 29,25 .…”

Section: Countries Of Originmentioning

confidence: 99%

Interventions to facilitate the transition of children with Type 1 Diabetes Mellitus into the community: a scoping review

Pinto¹,

Malheiro²

2022

Pensar Enf

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Objective: This review aims to map and identify in the scientific evidence the facilitating interventions in the transition to the community of school-age children with Type 1 Diabetes Mellitus. Method: This scoping review is based on Joanna Briggs Institute’s methodology. Published studies of a quantitative, qualitative, or mixed nature, as well as grey literature in Portuguese, English, Spanish, or French, produced between 2016 and 2021, were included. Eight studies were included in this review, selected from the following databases: CINHAL; MEDLINE; MedicLatina; Eric; Cochrane CRCT; Cochrane CA; Cochrane DSR; Cochrane MR; Nursing Reference; JBI. Results were extracted using an instrument constructed by the authors, aligned with the question/objective, and expressed in a narrative summary, including areas of emphasis for future research. Results: We identified three major categories of facilitating interventions in transitioning school-age children with Type 1 Diabetes Mellitus into the community; the existence of resources and support systems, the development of disease management skills (knowledge, modeling, and training), communication, and continuity of care. Conclusions: Factors related to environmental, professional, organizational, and family conditions, influence the transition of school-age children with Type 1 Diabetes Mellitus into the community. They highlighted support systems, the development of Type 1 Diabetes Mellitus management skills (knowledge and training), and communication/continuity as a focus of attention in developing interventions promoting a safe transition.

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“…Therefore, insulin pumps have positive effects on the health and well-being of T1D patients. In children, T1D is a particularly significant topic for public health services as this group is extremely vulnerable and might benefit significantly from new technologies (Wolkers et al, 2019 ).…”

Section: Vulnerability Diabetes Technologies and Carementioning

confidence: 99%

Contested Daily Routines, Contested Care. Children with Type 1 Diabetes in Covid-19 Times

Şahinol

Başkavak

2021

Childhood Vulnerability

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The conventional treatment of Type 1 Diabetes (T1D) is especially demanding for children, both physically and psychologically (Iversen et al. Int J Qual Stud Health Well-being,13(1), 1487758, 2018). Continuous Glucose Monitoring Systems (CGM) are an important aid for children and their families in dealing with the disease. In their work, however, Şahinol and Başkavak (2020) point out that CGM carry the risk of viewing T1D as a technologically solvable problem instead of considering the disease as a whole. This is mainly creating confidence in technology due to CGM experiences while neglecting significant dietary measures and exercises needed to be integrated into daily routines. During the current pandemic, this problem seems to take on a whole new level. Based on two periods of in-depth interviews and observations conducted with 8 families with T1D children aged 6 to 14 living in Istanbul and Ankara (Turkey) from May to November 2019 and again from May to June 2020, we compare and focus on the experiences prior to and during the pandemic time. We argue that despite the possibility of technological regulation of the disease, the vulnerability of children is increased and, more than ever, depends on socio-bio-technical entanglements.

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Children With Diabetes Mellitus Type 1: Vulnerability, Care and Access to Health

Cited by 6 publications

References 28 publications

Vivências De Familiares De Adolescentes Diagnosticados Com Diabetes Mellitus Tipo 1: Convivência, Cuidados E Mudanças

Vivências De Familiares De Adolescentes Diagnosticados Com Diabetes Mellitus Tipo 1: Convivência, Cuidados E Mudanças

Interventions to facilitate the transition of children with Type 1 Diabetes Mellitus into the community: a scoping review

Contested Daily Routines, Contested Care. Children with Type 1 Diabetes in Covid-19 Times

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