Caring for a demented elderly person — burden and burnout among caregiving relatives

Almberg, Britt; Grafström, Margareta; Winblad, Bengt

doi:10.1046/j.1365-2648.1997.1997025109.x

Cited by 126 publications

(121 citation statements)

References 28 publications

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“…This restriction in social life has been established previously in the caregiving research. 28 Financial stress was increased as a result of caring for a person with dementia. Increased funds were needed for food, medication and transport costs to the clinic or hospital.…”

Section: Impact Of Caregivingmentioning

confidence: 99%

Caregiving for people with dementia in a rural context in South Africa

Gurayah

2015

South African Family Practice

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Background: This research is an exploratory pilot study into the phenomenon of caregiving for people with dementia in a rural context in South Africa. Method: This study used a qualitative method of inquiry for conducting individual interviews with five caregivers to collect the data. The interviews were conducted in the local language of isiZulu. All interviews were audiotaped, and then transcribed into English. Transcriptions were analysed using thematic analysis. Findings: There were three main emergent themes, namely views and responsibilities of the caregiver, impact of caregiving, and skills and services to assist the caregiver. There were numerous subsidiary themes such as acceptance of the ageing process, a sense of duty and kinship in African culture, and dealing with problem behaviours. Caregiving was also viewed as a character-building experience, and has major implications such as promoting social isolation, restricting activities of daily living, reducing employment and increasing financial burden. Services that would alleviate caregiver burden are education, caregiver training, a financial grant and respite care. Conclusions: Although these findings are not generalisable, it would appear that caregivers of people with dementia suffer significant psychosocial distress, and would benefit from emotional and financial support. It remains to be seen who will provide this support, but policy-makers as well as governmental and non-governmental organisations will have to factor this into their forward planning to render an effective service for people with dementia and their families. Advocacy groups should also disseminate information on dementia and caregiving responsibility, whilst healthcare professionals should screen for caregiver stress or caregiver burden in individuals caring for people with dementia.

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Section: Impact Of Caregivingmentioning

confidence: 99%

Caregiving for people with dementia in a rural context in South Africa

Gurayah

2015

South African Family Practice

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“…Não encontramos nenhum estudo sobre sín-drome de burnout e cuidador familiar oncoló-gico, porém, sua relevância já é bem conhecida entre os profissionais de oncologia 32,33 e, em especial, no estudo dos cuidadores primários de pacientes com demência 34,35 . Segundo Carvalho 36 , o burnout caracteriza-se por uma constelação de sintomas funcionais, psíquicos e comportamentais, tais como irritabilidade, fadiga intensa, exaustão, cefaléia, distúrbios do sono, depressão, irritabilidade, postura crítica e pressa em realizar as atividades.…”

Section: ôNus Familiar E Sobrecarga Ao Cuidadorunclassified

Cuidador do idoso com câncer avançado: um ator vulnerado

Floriani

Schramm

2006

Cad. Saúde Pública

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“…Few studies on this issue have established the poor selfperceived health of family caregivers when compared with caregiver groups for non-demented patients 3 . Also, the worse quality of perceived health profile has been correlated with high levels of burden and burnout in dementia family caregivers 4 .…”

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confidence: 99%

Health self-perception by dementia family caregivers: sociodemographic and clinical factors

Valente

Truzzi

Souza³

et al. 2011

Arq. Neuro-Psiquiatr.

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Caring for a demented family member has been associated with burden. Studies concerning health self-perception of family caregivers are still scarce. Objective: To investigate caregivers perceived health and to look into relationships with patients and caregivers' sociodemographic and clinical data. Method: Dyads of dementia outpatients and family caregivers (n=137) were assessed with Mini Mental State Examination, Functional Activities Questionnaire, Neuropsychiatric Inventory and Clinical Dementia Rating. Caregivers answered Sociodemographic Questionnaire, Beck Depression and Anxiety Inventories, Zarit Burden Interview and Maslach Burnout Inventory. Results: Caregivers poor perceived health was associated with emotional exhaustion, burden, depression and anxiety. Logistic regression analyses revealed caregivers' age, anxiety and physical problem as the main predictors of health self-perception. Conclusion: Aged family caregivers with anxiety who also report physical problem characterize a group at risk for poor self-perceived health. Evaluation of health self-perception may be useful for designing interventions to improve anxiety and physical health. Key words: dementia family caregiver, dementia, health self-perception, age, anxiety.Autopercepção de saúde em cuidadores familiares de pacientes com demência: fatores sociodemográficos e clínicos RESUMO Cuidar de familiar com demência tem sido associado a sobrecarga. Estudos sobre autopercepção de saúde em cuidadores ainda são escassos. Objetivo: Investigar autopercepção de saúde em cuidadores e relação entre dados sociodemográficos e clínicos de cuidadores e pacientes. Método: Díades de pacientes demenciados e cuidadores familiares (n=137) foram avaliados pelo Mini Exame do Estado Mental,

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Caring for a demented elderly person — burden and burnout among caregiving relatives

Cited by 126 publications

References 28 publications

Caregiving for people with dementia in a rural context in South Africa

Caregiving for people with dementia in a rural context in South Africa

Cuidador do idoso com câncer avançado: um ator vulnerado

Health self-perception by dementia family caregivers: sociodemographic and clinical factors

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