Care needs of children with disabilities – Use of the Pediatric Evaluation of Disability Inventory

Abstract

Objective:To describe the care needs reported by caregivers of children with disabilities going through the school inclusion process using the Pediatric Evaluation of Disability Inventory.Methods:Cross-sectional study with 181 children aged 7-10 years with physical or mental disabilities, undergoing the inclusion process in elementary school in 2007. Location: 31 schools of the Regional Education Board-District of Penha, East Side the city of São Paulo. The children's care needs according to the caregivers were assessed in three areas-self-care, mobility and social function, using the Pediatric Evaluation of Disability Inventory, according to the following score: 5, Independent; 4, Supervision; 3, Minimum Assistance; 2, Moderate Assistance; 1, Maximum Assistance and 0, Total Assistance. For statistical analysis, we used Student's t-test and analysis of variance (ANOVA), with p<0.05 being statistically significant.Results:The lower means, with statistically significant differences, were observed for the items related to social function (55.8-72.0), followed by self-care functions (56.0-96.5); for all types of disabilities, except for children with physical disabilities, who had lower means for self-care (56.0) and mobility (63.8).Conclusions:Social function was the area referred to as the one that needed a higher degree of assistance from the caregiver and the Pediatric Evaluation of Disability Inventory is a tool that can help identify these needs and develop a more targeted intervention.

Psychosocial needs of the parents of children with mental disorder

“…In their interviews, the parents noted in different ways the need for family and friends' support. Teles et al argued that the birth of an impaired child causes notable changes in the organization and structure of family (2). In such case, emotional and social support by the care givers to the child are vital.…”

“…Having a child with physical or mental disability causes notable changes in the organization and structure of family. This has a determinant effect on the process of rehabilitation and independence of the family (2).…”

Gastrostomia em pediatria: aspecto clínico epidemiológico

“…As crianças com gastrostomia dependem de tecnologias em saúde (5)(6) (dispositivo de alimentação) justaposto ao seu corpo para sobreviverem, logo são consideradas pessoas com deficiência física, conforme estabelecido na legislação (2) . As estratégias de acolhimento por parte da equipe de saúde aos pais de crianças com deficiência física são essenciais ao processo de inclusão frente às necessidades que emergem a cada dia (5)(6)(7) .…”

“…Nesse contexto, crianças com deficiência física constituem uma clientela emergente que demanda cuidados especiais de saúde, em virtude da complexidade de cuidados necessários, do tempo, das condições socioeconômicas e da fragilidade clínica (2,5,(7)(8)(9)(10) . Essas apresentam uma diversidade de diagnósticos médicos, dependem de atenção permanente de profissionais dos serviços de saúde (2)(3)(4)(8)(9)11) .…”

“…O cuidado a criança em uso de gastrostomia é feito pela equipe multidisciplinar, cabendo ao enfermeiro planejar, gerenciar e organizar ações educativas que envolvam pais/responsáveis/família/cuidadores, no processo do cuidar durante o período de internação (2,12) . Essas ações devem enfatizar cuidados diários (administração nutrição enteral via gastrostomia e curativo), identificação de complicações na estomia e pele, e incidentes relacionados a saída acidental do cateter, visando proporcionar a família autonomia e segurança no cuidado a seu filho quando este retorna ao domicílio (2)(3)(4)(6)(7)(8)(9) .…”