Caracterização Das Pessoas Com Doença Falciforme Em Uma Cidade Do Estado Da Bahia

Rodrigues, Catharinne Da Silva Souza; Xavier, Aline Silva Gomes; Carneiro, Jayanne Moreira; Silva, Tamillys Damasceno; Araújo, Roberta Lima Machado de Souza; Passos, Silvia da Silva Santos

doi:10.18471/rbe.v32.26065

Cited by 3 publications

(2 citation statements)

References 7 publications

(18 reference statements)

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“…A qualitative study that interviewed 12 mothers of children and adolescents with SCA showed that absences were justified when a medical certificate was provided, however, when they occurred due to painful crises without a history of hospitalization, absences were counted. 12,13 The above scenario shows that the school is unaware of the student's health condition. The academic performance of this audience would be sufficient to conclude the grade, however, most of the time, school failure occurs merely because of bureaucratic issues, such as absences in the school year above the required frequency obeying the guidance of the Brazilian Education Guidelines and Bases Act (LDB -Lei de Diretrizes e Bases da Educação Brasileira), without taking into account the specificities of the students and the need for flexibility.…”

Section: Resultsmentioning

confidence: 99%

Social implications in the lives of people with sickle cell anemia / Implicações sociais na vida da pessoa com anemia falciforme

Barroso

Nascimento

Leal

et al. 2021

RPCF

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Objetivo: Analisar as implicações sociais advindas da anemia falciforme na vida da pessoa com a doença. Método: Estudo descritivo, exploratório, quantitativo, realizado com 80 pessoas com anemia falciforme. Os dados foram coletados no período de janeiro a julho de 2016 no Centro de Hematologia e Hemoterapia do Piauí, por meio de um questionário para a obtenção de dados socioeconômicos, demográficos e clínicos. Os dados foram tabulados no programa Microsoft Excel 2010 e dispostos em forma de tabelas e gráficos. Resultados: As crises dolorosas foram às complicações mais frequentes (70%), (77,5%) relataram não ter recebido orientação sobre a doença e (62,5%) não residiam na cidade onde realizava o tratamento. Conclusão: A anemia falciforme acarreta implicações negativas na vida da pessoa, como por exemplo, a reprovação/evasão escolar. Desse modo, os profissionais de saúde devem elaborar estratégias de enfrentamento da doença, assim, aumentando a qualidade de vida desse público.

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Section: Resultsmentioning

confidence: 99%

Social implications in the lives of people with sickle cell anemia / Implicações sociais na vida da pessoa com anemia falciforme

Barroso

Nascimento

Leal

et al. 2021

RPCF

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“…Quanto ao perfil das crianças, houve predomínio do sexo feminino, semelhante a outro estudo transversal, com 668 prontuários de pacientes com doença falciforme, dos quais 53% eram mulheres (14) . A anemia falciforme (HbSS), ainda, tem sido evidenciada como o tipo de doença falciforme mais prevalente, corroborando os resultados do presente estudo (14)(15) .…”

Section: Discussionunclassified

Effect of reading an educational booklet about sickle cell disease on family members' knowledge

et al. 2021

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Objective: to analyze the effect of reading an educational booklet about sickle cell disease related to family members’ knowledge. Methods: quasi-experimental study, with 20 children´s family members with sickle cell disease. A form was used before and 30 days after medical consultation (pre- and post-test). The booklet was given to the family member on the day of the consultation. Analysis was performed using Statistical Package for the Social Science version 20 with the Shapiro-Wilk, Student’s t, McNemar’s chi-square and Odds Ratio statistical tests. Results: all participants were female, mostly mothers aged 20 to 30 years with high school education. The analysis revealed increase in the number of correct answers after reading the booklet with statistical significance (p<0.001). Conclusion: the reading of the booklet and the strategies used to encourage it contributed to increase the knowledge of family members about some disease aspects, enabling them to better deal with this disease.

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The Relationships between Self-care and Coping Strategy among People Living with Human Immunodeficiency Virus

Ibrahim

Resnawati²,

Rahayuwati

et al. 2021

Open Access Maced J Med Sci

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AIM: This study aims to examine the relationships between self-care and coping strategy among people living with human immunodeficiency virus (HIV) (PLWH). METHODS: A cross-sectional design involving 76 subjects of PLWH who attended the HIV clinic at a District Hospital in West Java Province, Indonesia. They met inclusion criteria such as being adult, has been living with HIV for over 1 year, and be able to communicate both verbal and written in Bahasa Indonesia. Self-care was measured by the 41-item Self-care Assessment Worksheet instrument, and coping strategies were measured by the 60-item Jalowiec Coping Scale. Pearson-product moment correlation was performed to examine the relationships between self-care and coping strategy scores. RESULTS: The majority of respondents (57.8%) used the emotion focused coping strategy such as supportant (31.5%) followed by fatalistic (21%) and optimistic (17.1%) when they deal with stressful situations. Optimistic coping was reported as the most effective coping by the respondents. Nearly half of respondents (42%) have intermediate self-care level which the highest number of self-care was medication. There was a significantly relationship between problem-focused coping strategy and the self-care scores (r = 0.378, p < 0.01). Confrontive coping strategy has positive correlation with symptoms management (r = 0.264, p < 0.05) and stress management (r = 0.280, p < 0.05). Self-care information has positive correlation with palliative coping strategy (r = 0.281, p < 0.05) and supportant coping strategy management (r = 0.236, p < 0.05). Prevention and medication have positive correlation with optimistic emotional coping strategy (r = 0.264, p < 0.05). CONCLUSION: Understanding PLWH coping strategies could assist nurses to reinforce patient’s positive coping strategies and change maladaptive coping strategies. Nurses could facilitate patients to develop a more adaptive coping strategies in enhancing self-care capability among PLWH.

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Caracterização Das Pessoas Com Doença Falciforme Em Uma Cidade Do Estado Da Bahia

Cited by 3 publications

References 7 publications

Social implications in the lives of people with sickle cell anemia / Implicações sociais na vida da pessoa com anemia falciforme

Social implications in the lives of people with sickle cell anemia / Implicações sociais na vida da pessoa com anemia falciforme

Effect of reading an educational booklet about sickle cell disease on family members' knowledge

The Relationships between Self-care and Coping Strategy among People Living with Human Immunodeficiency Virus

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