Cancer in childhood: Children's and parents’ aspects for quality of life

Matziou, Vasiliki; Perdikaris, Pantelis; Feloni, Dimitra; Moshovi, Maria; Tsoumakas, Konstantinos; Merkouris, Anastasios

doi:10.1016/j.ejon.2007.10.005

Cited by 49 publications

(45 citation statements)

References 38 publications

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“…Parent-reported happiness scores were generally equal to or lower than those reported by patients. This is consistent with previous reports of patient and parent quality of life after a diagnosis of cancer; disparities in patient and parent cognition of prognosis and caregiver stress are attributed to these differences [25].…”

Section: Discussionsupporting

confidence: 82%

What is the Emotional Acceptance After Limb Salvage with an Expandable Prosthesis?

Henderson¹,

Pepper

Marulanda

et al. 2010

Clinical Orthopaedics &Amp; Related Research

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Background Limb preservation surgery for extremity sarcomas offers the promise of improved function and cosmesis over amputation. Application of limb salvage surgery for pediatric patients with expandable metallic endoprostheses is gaining acceptance. The few studies reporting these devices have focused on functional outcomes; one has addressed quality of life. Questions/purposes We asked the following questions: (1) how happy are these patients; (2) how do these patients perceive their bodies; (3) do these children have difficulty with social interactions; and (4) how satisfied are patients and their parents with their outcomes?

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Section: Discussionsupporting

confidence: 82%

What is the Emotional Acceptance After Limb Salvage with an Expandable Prosthesis?

Henderson¹,

Pepper

Marulanda

et al. 2010

Clinical Orthopaedics &Amp; Related Research

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“…La carga interfiere en el manejo adecuado del enfermo y en la propia evolución de la enfermedad; ya que disminuye la calidad de la atención que el cuidador brinda, impactando con esto en la adherencia al tratamiento y el pronóstico de la enfermedad (28)(29)(30)(31)(32)(33) . Además de que puede ocasionar por un lado, episodios de maltrato, tanto físico como psicológico hacia el enfermo (26) .…”

Section: Introductionunclassified

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Pardo¹,

Cárdenas²,

Venegas³

2015

Psicooncología

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ResumenEl propósito del estudio fue identificar las variables psicológicas y las características del cuidado que predicen la aparición de carga en cuidadores primarios informales (CPI) de niños con cáncer, en un hospital de la ciudad de México. La muestra no probabilística constó de 100 participantes, quienes contestaron una batería integrada por la encuesta de salud para el CPI, la escala de carga del cuidador de Zarit, los inventarios de ansiedad y depresión de Beck, la escala de apoyo familiar para CPI y la escala de modos de afrontamiento al estrés de Lazarus y Folkman. Los resultados confirmaron que las mujeres (en la mayoría de los casos la madre del paciente) actúan como CPI de niños con cáncer. Las variables predictoras de la carga en el modelo de regresión múltiple por pasos fueron la depresión (R 2 =0,228), el número de áreas afectadas en la vida del cuidador (R 2 =0,319) y la ansiedad (R 2 =0,348). En total las tres variables explicaron el 34% de la varianza. Mientras que el estilo de afrontamiento, el apoyo familiar, el tiempo de cuidado del paciente, las horas diarias de cuidado de éste y el número de actividades que realiza no resultaron variables relevantes en la predicción de la carga. Los hallazgos podrían ser útiles para diseñar intervenciones que promuevan el bienestar físico, social y emocional de esta población, previniendo que los cuidadores se conviertan en pacientes.Palabras clave: Niños con cáncer, cuidadores, carga, ansiedad y depresión. AbstractThe purpose of the study was to identify the psychological characteristics and care variables that predict the onset of primary informal caregivers burden (CPI) of children with cancer, in a hospital in Mexico City. The nonrandom sample consisted of 100 participants, who answered an integrated battery conformed by a health interview for the CPI, the load scale for the Zarit caregiver, the anxiety and depression of Beck inventory, the family support for the CPI scale and the scale modes of coping with stress by Lazarus and Folkman. The results confirmed that women react as CPI to children with cancer, and in most cases the patient's mother. The variables of burden model stepwise multiple regressions were depression (R 2 =0.228), the number of affected areas in the caregiver's life (R 2 =0.319) and anxiety (R 2 =0.348). In all the three variables explained 34% of variance. While coping style, family support, time to patient care, daily care hours and the number of activities carried out were not significant variables in predicting overload. The findings of this study could be useful for designing interventions that promote physical, social and emotional wellbeing of this population, preventing the patient from becoming caregivers.

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“…Evrensel bir kavram olan yaşam kalitesi, kişi için önemli olan yaşamsal olaylarla ilgili memnun olma ya da olmamadan kaynaklanan, kişinin iyi hal hissidir (26) (28).…”

Section: Yorgunluğun Yaşam Kalitesi üZerine Etkileriunclassified

Effect of Fatigue on Quality of Life in Pediatric Oncology Patients

Kudubeş¹,

Bektaş²

2017

jpr

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Cancer in childhood: Children's and parents’ aspects for quality of life

Cited by 49 publications

References 38 publications

What is the Emotional Acceptance After Limb Salvage with an Expandable Prosthesis?

What is the Emotional Acceptance After Limb Salvage with an Expandable Prosthesis?

Variables que predicen la aparición de sobrecarga en cuidadores primarios infor¬males de niños con cáncer

Effect of Fatigue on Quality of Life in Pediatric Oncology Patients

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