Breast-feeding Success Among Infants With Phenylketonuria

Banta-Wright, Sandra A.; Shelton, Kathleen; D., Lowe, Nancy; Knafl, Kathleen A.; Houck, Gail M.

doi:10.1016/j.pedn.2011.03.015

Cited by 22 publications

(22 citation statements)

References 26 publications

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“…As regard to type of feeding during infancy : breast feeding was 76.1%, artificial feeding (standard formula) was 22.5 %, mixed breast and artificial was 1.4 %. This is not in agreement with Banta-Wright et al, 2012 (1) who reported that diet has been the main focus of treatment and mothers were advised against breastfeeding infants, although breast milk is lower in phenylalanine than most formulas.…”

Section: 4contrasting

confidence: 61%

Pediatric Phenylketonuria in Fayoum Governorate (Retrospective study)

Elrab¹,

Kamel²,

Masoud³

et al. 2019

Fayoum University Medical Journal

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Section: 4contrasting

confidence: 61%

Pediatric Phenylketonuria in Fayoum Governorate (Retrospective study)

Elrab¹,

Kamel²,

Masoud³

et al. 2019

Fayoum University Medical Journal

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“…The supports and strategies used by mothers that facilitated breastfeeding success while maintaining desired Phe levels should be incorporated into the management of breastfeeding infants with PKU and will be reported elsewhere. 25 Despite the increased work associated with breastfeeding a child with PKU, a substantial number of these mothers did so, with the sample as a whole meeting or exceeding the majority of breastfeeding percentages reported in both the United States and Canada. In comparison with U.S. National Breastfeeding Percentages, 26 this group of mothers exceeded the expected rate of breastfeeding initiation (86% vs. 77%) and breastfeeding at 6 months (55% vs. 47%) but did not meet the expected rate of breastfeeding at 12 months (17% vs. 26%).…”

Section: Discussionmentioning

confidence: 98%

“…Consequently, comparison of Phe levels between breastfed and formula-fed infants with PKU was not conducted. Previous studies 2,3,[8][9][10][11]18 have consistently reported that breastmilk supplemented with Phe-free medical beverage is an acceptable dietary treatment for infants with PKU as Phe levels could be maintained within the desired range.…”

Section: Discussionmentioning

confidence: 99%

“…[12][13][14] Although the practice of breastfeeding infants with PKU has been discussed in the literature, there is limited research describing patterns of breastfeeding in mothers of infants with PKU. 2,3,[9][10][11][15][16][17][18] It is notable that there is no published research identifying factors associated with breastfeeding duration within this unique population of breastfeeding mothers or to support clinical guidelines that specifically address the unique challenges of mothers breastfeeding infants with PKU. Therefore, the purpose of this analysis was to describe the prevalence and duration of breastfeeding among mothers of infants with PKU living in the United States and Canada and to identify factors that affected the duration and success of breastfeeding in this unique population.…”

mentioning

confidence: 99%

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Breastfeeding Infants with Phenylketonuria in the United States and Canada

Banta-Wright

Press

Knafl

et al. 2014

Breastfeeding Medicine

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Objective: This study described the prevalence and duration of mothers' breastfeeding infants with phenylketonuria (PKU) and explored factors related to duration of breastfeeding as a surrogate for breastfeeding success. Subjects and Methods: Descriptive analysis as performed from an international Internet survey of mothers (n = 103) who met the inclusion criteria: (1) at least 21 years of age, (2) able to read and write in English, (3) child with PKU, and (4) living in the United States or Canada. Results: Of the 103 mothers, 89 (86%) initiated breastfeeding immediately following delivery, whereas 14 (14%) chose bottle feeding. In comparison to breastfeeding after delivery, significantly fewer mothers breastfed after diagnosis (McNemar's v 2 = 30.33, p < 0.001; n = 72 vs. n = 89). Breastfeeding duration ranged from less than 1 month to 24 months with one modal duration category (n = 20, 22%) at less than 1 month. The timing of the addition of commercial infant formula to supplement breastfeeding or expressed mothers' milk was associated with a shorter duration of breastfeeding among infants with PKU: v 2 (42, n = 73) = 88.13, p < 0.001. Conclusions: PKU is treated with phenylalanine (Phe) restriction. Breastfeeding infants with PKU is challenging in part because Phe intake is difficult to determine precisely. We studied breastfeeding duration in infants with PKU and factors associated with success. Further research should identify the unique needs of mothers' breastfeeding infants with PKU to guide the development of interventions specific to these mothers to support their efforts to continue breastfeeding after the diagnosis of PKU.

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“…Although many mothers successfully continue to breastfeed, many mothers decide not to continue to breastfeed after the diagnosis of PKU (Banta-Wright, Press, Knafl, Steiner, & Houck, 2014). In addition, investigators have consistently reported that few mothers of infants with PKU persist in breastfeeding beyond an initial period and breastfeed for a shorter duration than mothers of other healthy term infants (Agostoni, Verduci, Fiori, Riva, & Giovannini, 2000;Banta-Wright et al, 2014;Banta-Wright, Shelton, Lowe, Knafl, & Houck, Breastfeeding infants with phenylketonuria is challenging in part because it is virtually impossible to precisely determine phenylalanine intake. Cornejo et al, 2003;Demirkol et al, 2001;Huner & Demirkol, 1996;Kanufre et al, 2007;Motzfeldt et al, 1999;Segev, Abraham, Anikster, & Schwartz, 2004;van Rijn et al, 2003).…”

mentioning

confidence: 99%