Pediatric Phenylketonuria in Fayoum Governorate (Retrospective study)

Elrab, EssaamEldeen Gad; Kamel, Ashraf Sayed; Masoud, Mohamed; Abdeltwab, Fatma

doi:10.21608/fumj.2019.55035

Cited by 2 publications

(1 citation statement)

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“…Mothers of children with PKU can lower their blood Phe concentrations through dietary and/or pharmacological therapy (Khaton, 2016). Overall, it was calculated that the incidence rate in Egypt was 1 in 7500 (Gad et al, 2019).…”

Section: Significance Of the Studymentioning

confidence: 99%

Effect of Online Education on Mothers' Knowledge and Practice regarding Caring for Children with Phenylketonuria

Magor

Shalaby²,

Mohammed³

et al. 2023

Egyptian Journal of Health Care

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Background: Phenylalanine hydroxylase activity is deficient in phenylketonuria. Phenylketonuria is an inherited metabolic disease of protein metabolism. Aim: The study aimed to determine the effect of online education on mothers' knowledge and practice regarding caring for children with phenylketonuria. Design: A quasi-experimental research design was used in this study (pre/post-test). Setting: The research was carried out in a genetic counselling clinic in a basic health care facility affiliated with the Ministry of Health in Sohag City. Sample: A non-probability purposive sampling technique included 50 mothers and their children with Phenylketonuria. Tools: Two tools were used: Tool (I) Self-administering questionnaire included Part (1): Demographic data of the mothers and their children, Part (2): Children's medical history, and Part (3): Mothers' knowledge about phenylketonuria, and Tool (II): Mothers' reported practice about phenylketonuria. Results: The study indicated that there was a statistically significant improvement in mothers' knowledge and reported practices regarding caring for children with phenylketonuria post-online education than pre-online education. A statistically significant correlation was observed between mothers' knowledge and reported practices post-online education. Conclusion: The study results concluded that online education had positive effects on improving mothers' knowledge and practice in caring for their children with phenylketonuria. Recommendations: Online education for mothers regarding caring for children with phenylketonuria is recommended to increase their knowledge and reported practices.

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Section: Significance Of the Studymentioning

confidence: 99%