Behavioral Responses of Family Members during Critical Illness

Halm, Margo A.; Titler, Marita G.; Kleiber, Charmaine; Johnson, Susan K.; Montgomery, Lou Ann; Craft, Martha J.; Buckwalter, Kathleen C.; Nicholson, Anita; Megivern, Karen

doi:10.1177/105477389300200405

Cited by 56 publications

(66 citation statements)

References 12 publications

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“…The final search strategy used was to review the obtained articles' reference lists for any further pertinent articles. The results yielded a total of 18 studies 3,13,16,[21][22][23][24][25][26][27][28][29][30][31][32][33][34][35] that met the criteria. (The studies are summarized in an appendix available online at www.ajcconline.org.…”

Section: Integrated Literature Reviewmentioning

confidence: 99%

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Symptoms Experienced by Family Members of Patients in Intensive Care Units

McAdam

Puntillo

2009

American Journal of Critical Care

112

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Concern for the family members of patients who are at high risk of dying in intensive care units is both a necessary and integral part of providing holistic nursing care. When patients are at high risk of dying, their families experience burdens such as decision making and treatment choices that can cause the families psychological and physical symptoms, most commonly stress, anxiety, and depression. These symptoms in turn can affect family members' general well-being. Since the late 1990s, several quantitative and qualitative studies have been done to assess symptoms in such family members. In this review of the literature, the current state of the science on symptoms experienced by family members of patients in the intensive care unit is reviewed and critiqued. Risk factors associated with an increase in symptoms experienced are discussed. Overall, surveys that use self-report measures were the most common study design. Limitations of the studies include convenience sampling, small sample sizes, and a lack of description of patients' characteristics, all of which make comparison and use of findings difficult. Recommendations to address gaps in the literature are highlighted, and future research goals are discussed. (American Journal of Critical Care. 2009;18:200-210) 8 Yet, before this recommendation can be incorporated into practice, more research is needed on what types of symptoms patients' family members experience, the effects of these symptoms, and what types of interventions are most effective in reducing the symptoms and improving outcomes for both patients and their families.Most research on family members in the ICU has been focused mainly on family members' needs [10][11][12][13][14][15][16] and satisfaction with care. 13,[15][16][17][18][19][20] Considerably less has been published on family members' symptoms and even less on symptoms experienced by family members of ICU patients at high risk of dying. To provide appropriate care to both ICU patients and the patients' family members, clinicians must first gain knowledge of family members' symptoms. In this article, we critically review the current literature on what is known about symptoms experienced by family members in the ICU and factors that may influence those experiences. We highlight gaps in the literature, provide implications for practice, and suggest areas for future research. Integrated Literature ReviewThe current relevant literature was searched by using the electronic databases PUBMED, PsycInfo, and CINAHL. Key words and combinations of key words searched included family, signs and symptoms, stress, anxiety, depression, critical care, intensive care, end-of-life, terminal care, palliative care, coping, and experiences. No limitations were placed on the dates of the search because of the relatively new emphasis on this topic in the literature. Abstracts were reviewed for relevancy and content. The limitations applied to the search were publications in English only and topics involving adult ICU patients only. Review articles, abs...

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Section: Integrated Literature Reviewmentioning

confidence: 99%

“…A total of 1 crosssectional study 34 and 6 longitudinal and descriptive studies 16,[21][22][23][24]35 had sample sizes from 32 to 284 family members. The studies included mostly families of patients from medical, surgical, cardiac, and trauma ICUs.…”

Section: Stressmentioning

confidence: 99%

Symptoms Experienced by Family Members of Patients in Intensive Care Units

McAdam

Puntillo

2009

American Journal of Critical Care

112

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“…(Hughes et al, 2005;Kleiber et al, 1994;Verhaeghe et al, 2005;McAdam & Puntillo, 2009). Asimismo, cabe señalar que esa variabilidad individual tiene que ver con otros factores como por ejemplo el estado de la enfermedad del paciente, el equilibrio entre los recursos internos y externos y la evaluación cognitiva del acontecimiento (Halm et al, 1993).…”

Section: Principales Síntomas Psicológicos Experimentados Por Los Famunclassified

“…Así, desde este marco, hemos considerado relevante citar uno de los pocos estudios (Halm et al, 1993) que se ha centrado en las respuestas de los familiares a nivel comportamental y cómo éstas podían variar a lo largo del curso de la hospitalización del paciente. Tal y como era de esperar, los resultados de este estudio mostraron que los familiares experimentaban cambios en sus hábitos diarios viéndose reflejados de manera particular en una menor cantidad y/o calidad del sueño y en la menor ingesta de alimentos, lo que a su vez tendría repercusiones sobre la salud a nivel físico y emocional.…”

Section: Principales Síntomas Psicológicos Experimentados Por Los Famunclassified

“…Por una parte, diferentes estudios señalan que la naturaleza de estos síntomas es transitoria (Auerbach et al, 2005;Halm et al, 1993;Paparrigopoulos et al, 2006;Van Horn & Tesh, 2000), disminuyendo considerablemente al alta de UCI, lo que haría poco probable el desarrollo de un TEPT como resultado de la experiencia de tener a un familiar en UCI. Mientras que otros trabajos informan de prevalencias altas de síntomas de estrés postrauma tras el alta de UCI Jones et al, 2000;Jones et al, 2004).…”

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Afectación emocional asociada al ingreso en una Unidad de Cuidados Intensivos

Juliá¹

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Development and psychometric evaluation of the family intensive care units syndrome inventory

et al. 2023

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Background: Family members of patient in the intensive care unit (ICU) experience a set of problems which are entitled Family Intensive Care Units Syndrome (FICUS). Objectives:The aim of this study was to develop and psychometrically evaluate the FICUS Inventory (FICUSI) in Iran. Methods:This sequential exploratory mixed method study was conducted in 2020 in two main phases. In the first phase, FICUSI was developed based on the results of an integrative review and a qualitative study. In the second phase, the psychometric properties of FICUSI, namely, face, content, and construct validity, reliability, responsiveness, interpretability, and scoring, were evaluated. The sample for the construct validity evaluation consisted of 283 ICU family members. Results:The primary item pool of FICUSI had 144 items and was reduced to 65 items or omitting overlapping and similar items. The scale-level content validity index of FICUSI was 0.89. In the construct validity evaluation through exploratory factor analysis, 31 items with factor loading values more than 0.3 were loaded on two factors (namely psychological symptoms and nonpsychological symptoms) which explained 68.45% of the total variance. The Cronbach's alpha and the test-retest intraclass correlation coefficient of FICUSI were 0.95 and 0.97, respectively. Conclusion:FICUSI is a valid and reliable instrument which can be used in clinical settings and studies for FICUS assessment. Further studies for the cross-cultural adaptation of FICUSI in other contexts are recommended.Relevance to clinical practice: Health care providers in clinical settings can use FICUSI to assess FICUS among the family caregivers of patients in ICU. Health care providers' better understanding of FICUS helps them understand the quality of their own services for the family members of patients in ICU. K E Y W O R D Sfamily intensive care units syndrome, family member, intensive care unit, psychometricsThis is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.

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Behavioral Responses of Family Members during Critical Illness

Cited by 56 publications

References 12 publications

Symptoms Experienced by Family Members of Patients in Intensive Care Units

Symptoms Experienced by Family Members of Patients in Intensive Care Units

Afectación emocional asociada al ingreso en una Unidad de Cuidados Intensivos

Development and psychometric evaluation of the family intensive care units syndrome inventory

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