Attributions and adjustment to life‐threatening illness

Turnquist, Dawn C.; Harvey, John H.; Andersen, Barbara L.

doi:10.1111/j.2044-8260.1988.tb00753.x

Cited by 107 publications

(58 citation statements)

References 23 publications

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“…An individuals desire for 'feedback' and the provision of information about how the trial is going can be seen in the context of the process of adaptation within the context of life threatening situations (Turnquist et al, 1988), a kind of 'search for meaning'. Research in this area suggests that an individual's ability to search for and find a meaning in their illness and treatment may have a significant impact on psychosocial well-being and adjustment to the impact of cancer on their lives (Lewis, 1989;Luker et al, 1996).…”

Section: Discussionmentioning

confidence: 99%

A randomised controlled trial of nurse-managed trial conclusion following early phase cancer trial participation

et al. 2005

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The effect of a nurse-managed intervention, for early phase cancer trial participants at trial conclusion, on psychosocial outcomes was evaluated at two cancer centres in the Midlands, England using a randomised controlled trial. It involved 117 patients who were participating in an early phase cancer clinical trial. It was a nurse-managed trial exit, which included a trial exit interview, trial feedback information leaflet and telephone follow-up compared with standard care at trial conclusion. Psychological distress at 1 week and 4 -6 weeks post-trial conclusion, patient's knowledge and understanding and patient's satisfaction were assessed. The results showed there was no significant difference between the two groups regarding scores for anxiety and depression at time one and time two. There is some suggestion that the intervention reduced anxiety from trial conclusion to follow-up (P ¼ 0.27). Patients in both groups felt they had contributed to cancer research through trial participation. However, intervention patients were more likely to feel that they knew how the trial was going (Po0.001), knew how other people in the trial were doing (P ¼ 0.001), had all the feedback they needed about the trial they took part in (Po0.01) and knew how they would be followed up (P ¼ 0.02). Patient satisfaction with the intervention was high (median score ¼ 4.5 where 5 is greatest satisfaction). In conclusion, nurse-managed trial conclusion led to positive outcomes for patients who had recently completed a clinical trial.

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Section: Discussionmentioning

confidence: 99%

A randomised controlled trial of nurse-managed trial conclusion following early phase cancer trial participation

et al. 2005

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“…The validity of existing measures is unclear (see Turnquist et al, 1988) and none of them assess self/other-blaming attributes in the context of a family relationship. In this study the SOBS demonstrated a potential for exploring interactional aspects of self-and other-blaming processes in family interviews.…”

Section: Discussionmentioning

confidence: 99%

“…Studies using more than one measure do not show convergence between measures (e.g. Bulman and Wortman, 1977;Taylor et al, 1984), hence the validity of the measures remains questionable (Turnquist et al, 1988). None of these studies assessed self-other-blaming attributions in the context of family interaction.…”

Section: Dictionarymentioning

confidence: 99%

The Self‐ and Other‐Blame Scale (SOBS). The background and presentation of a new instrument for measuring blame in families

Besharat¹,

Eisler

Dare

2001

Journal of Family Therapy

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This article presents an account of the development and reliability of an observational instrument to measure blame: the Self-and Other-Blame Scale (SOBS). Fifty-one eating disordered patients together with eighty of their relatives were interviewed using a semi-structured family interview. Videotapes were assessed by two independent raters. Inter-rater reliability was good for both dimensions of SOBS: self-blame (SB) and other-blame (OB). One of the aims in developing the instrument was to be able to explore the relationship between self-and other-blame and criticism. Preliminary data are presented showing the distribution of SOBS scores within families rated as high or low on Expressed Emotion (EE). High EE was associated with high levels of self-blame in the parents, but not in the patients. Fathers in high EE families were more blaming of the patient than those in Low EE families but this was not true for mothers' levels of daughter blaming.

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“…Or, cette analyse des perceptions de ces nouvelles technologies par les patients atteints de cancer, et leur prise en compte dans les pratiques cliniques en oncologie, paraissent impor- [15,20], tendent même à diminuer les niveaux d'anxiété [13]. Aussi les notions de médecine personnalisée et de chimiothérapie individualisée pourraient-elles avoir un effet positif chez les patientes auxquelles vient d'être annoncé un cancer et qui se trouvent bien souvent en situation de détresse et de vulnérabilité psychique lors de cette annonce [23].…”

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Chimiothérapie ciblée du cancer du sein basée sur une analyse génomique de la tumeur

et al. 2012

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> Cette revue de la littérature a pour objectif de présenter le point de vue de patientes atteintes d'un cancer du sein vis-à-vis de l'utilisation des profils d'expression génique de la tumeur pour définir une stratégie thérapeutique. Nous identifions les idées, les attentes ou les craintes qui pourraient constituer une entrave, ou une facilitation, à la mise en oeuvre et à la diffusion de ces méthodes en pratique clinique. Globalement, les patientes s'avèrent très favorables à l'utilisation d'un test génomique pour sélectionner le traitement le plus approprié, dans la logique du concept de médecine personnalisée. Un certain nombre de confusions et d'inquiétudes sont néanmoins observées. Leur connaissance et leur clarification ultérieure par les cliniciens devraient permettre aux patientes de prendre une part plus active et plus éclairée aux prises de décision thérapeutique, de mieux vivre la période d'annonce des traitements et d'améliorer leur vécu ultérieur. < génomiques permettaient d'identifier les patientes les plus susceptibles de bénéficier d'une chimiothérapie adjuvante [10,11]. Bien que la validité clinique des signatures génomiques soit maintenant bien établie, on commence seulement à en explorer l'utilité clinique, c'est-à-dire la façon dont elles influencent effectivement les décisions médicales et bénéficient au patient [12][13][14]. La majorité des médecins oncologues se déclarent très favorables à l'utilisation de ces tests comme aide à la décision thérapeutique [13,15] . Dans un contexte où les stratégies thé-rapeutiques visent à s'adapter au plus juste à chaque patient, la démarche actuelle consiste à essayer de mieux individualiser les traitements en se basant sur l'analyse des profils d'expression génétique (GEP) de la tumeur [2]. Plusieurs études ont suggéré que les GEP pouvaient être utilisés pour définir le risque de récidive après un traitement incluant ou non une chimiothérapie adjuvante, et prédire la réponse à la chimiothérapie néo-adjuvante (administrée avant la chirurgie) [3][4][5][6][7][8][9]. Il a également été rapporté que certaines signatures

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Attributions and adjustment to life‐threatening illness

Cited by 107 publications

References 23 publications

A randomised controlled trial of nurse-managed trial conclusion following early phase cancer trial participation

A randomised controlled trial of nurse-managed trial conclusion following early phase cancer trial participation

The Self‐ and Other‐Blame Scale (SOBS). The background and presentation of a new instrument for measuring blame in families

Chimiothérapie ciblée du cancer du sein basée sur une analyse génomique de la tumeur

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