AIDS: Psychological stresses on the family

Frierson, Robert L.; Lippmann, Steven; Johnson, Janet Elise

doi:10.1016/s0033-3182(87)72565-1

Cited by 59 publications

(26 citation statements)

References 2 publications

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“…These authors concluded that stigma was the most stressful feature burdening the family and the consequential reduction of social support systems. Studies conducted on HIV caregivers in the West have also found that stigma mediates with loss of existing support system and hence family members try constantly to conceal the diagnosis within the family (Frierson, Lippman, & Johnson, 1987;Poindexter & Linsk, 1998). The unethical attitude and unprofessional behaviour of health care professionals can be a disillusioning experience for the participants and this may influence access to care and services.…”

Section: Stigma and Discriminationmentioning

confidence: 99%

Unheard Voices: Experiences of Families Living with HIV/AIDS in India*

et al. 2005

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This study was aimed at understanding the impact of HIV on the family system in the Indian context. A sample of 20 families caring for a relative living with HIV/AIDS (PLWHAs) was recruited from a HIV counseling clinic at the National Institute for Mental Health and Neuro Sciences and a respite home for PLWHAs in Bangalore City in southern India. Qualitative data were collected from these families using a semi-structured interview guide and recorded in the form of narratives. Analysis of these data revealed the following themes: Stigma and discrimination; disclosure; changes in family functioning; financial difficulties; fears of the family; and helplessness. Each theme was presented in detail and implications for intervention to help these families and their PLWHAs discussed.

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Section: Stigma and Discriminationmentioning

confidence: 99%

Unheard Voices: Experiences of Families Living with HIV/AIDS in India*

et al. 2005

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“…Negative social consequences external to the HIV-positive individual, such as fear expressed by others, ostracism, and degradation may be experienced. Costs in terms of stressors within the individual's family network, such as denial, anger, guilt, and uncertainty are also associated with HIV (Frierson, Lippman, & Johnson, 1987;Herek & Glunt, 1988;Macklin, 1988). Negative emotional consequences of disclosure that have been documented include rejection, abandonment, and isolation (Lovejoy, 1990;Stulberg & Buckingham, 1988;Zuckerman & Gordon, 1988).…”

Section: Consequence Theorymentioning

confidence: 99%

A Test Of Two HIV Disclosure Theories

Serovich¹

2001

AIDS Education and Prevention

173

195

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The purpose of this study was to examine two theories of HIV disclosure. The first is a disease progression theory and the second is the theory of competing consequences. Participants were 138 HIV-positive gay men involved in a larger study of HIV disclosure. Structural equation modeling was used to analyze each model, with the root mean square error of approximation (RMSEA) and the nonnormed fit index (NNFI) used to evaluate goodness of fit. The RMSEA for the disease progression model was .031 and the NNFI was .932. The RMSEA for the consequences model was . 018 and NNFI was .978. Both indices are considered to be a close fit; however, the parameter estimates for disease progression to disclosure in the disease model and disease progression to consequences in the consequences model were nonsignificant, suggesting that disease progression may not play a role in the decision to disclose an HIV diagnosis. Researchers may want to focus on the intentions and possible outcomes from disclosure as predictive factors.

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“…Disclosure may place an HIV-positive individual at risk for losing her / his job, housing, access to education, or health insurance. In addition, social isolation, stigmatization, and helplessness are stressors that frequently accompany an HIV-positive diagnosis (Frierson et al, 1987;Lovejoy, 1990;Stulberg & Buckingham, 1988;Zuckerman & Gordon, 1988). However, vital information, education, and medical assistance may be unavailable without HIV status disclosure.…”

Section: Disclosurementioning

confidence: 99%