African American Women’s Recollected Experiences of Adherence to Breast Cancer Treatment

Heiney, Sue P.; Messias, DeAnne K. Hilfinger; Felder, Tisha M.; Phelps, Kenneth W.; Quinn, Jada C

doi:10.1188/17.onf.217-224

Cited by 3 publications

(3 citation statements)

References 0 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…15 The selection of the participants was randomized within the subgroups to minimize researcher bias associated with convenience sampling. 15 Pre-determined interview questions were chosen to inform the following research questions: (1) before diagnosis, how did the participant's culture influence the experience of breast cancer and their corresponding health behaviors; (2) what, if any, were the participant's perceived benefits of treatment; (3) what, if any, were the participant barriers or negative consequences of treatment; (4) what cultural influences prompted participant decision making and action throughout their breast cancer experience; and (5) what was the impact of culture and breast cancer on behavioral and mental health throughout the experience?…”

Section: Procedure/data Collectionmentioning

confidence: 99%

“…Women face a 1 in 8 chance of being diagnosed 1 , with discrepancies showing a higher number of African American women will lose their battle with breast cancer each year. 2 These women face a 42% higher mortality rate than their white counterparts, due to later diagnosed and more aggressive cancers, known to respond less favorably to treatment. 3 Younger women are more likely to be diagnosed late as compared to other age groups, potentially leading to a higher mortality rate with more Black women falling into this category along with rising incidence rates noted for Asian or Pacific Islander and White women in the 20-44 year range.…”

Section: Introductionmentioning

confidence: 99%

See 1 more Smart Citation

The Impact of Breast Cancer and Culture on Mental and Behavioral Health in the Cayman Islands: A Qualitative Study

Saunders¹,

Zolnikov²

2023

Arch Breast Cancer

View full text Add to dashboard Cite

Background: Outcomes of breast cancer are affected by ethnicity, age, socioeconomic status, religious affiliation, medical preferences and more. The purpose of this study was to examine the breast cancer experience through the lens of the Health Belief Model to uncover support successes, failures, differences in care, and its connection to behavioral and mental health in the diverse population of the Cayman Islands. Methods: Twenty-five participants volunteered to engage in semi-structured interviews and qualified for this qualitative phenomenological study with a breast cancer diagnosis and treatment provided by the Cayman Islands healthcare networks. The interview questions informed the targeted research questions, and the resultant data was examined for meaningful thematic units that encompassed the breast cancer experience in the Cayman Islands. Results: The correlation between cultural identity and behavioral and mental health was evident in diagnosis and treatment. Participant behavior and action was influenced by the perceived threat of breast cancer, self-efficacy, belief in ability to face the challenges, and trust in treatment protocols and professionals. Results of this study emphasized the need for individualized, culturally sensitive care across age, socioeconomic status, ethnicity, and religion. Conclusion: Significant concerns were identified in the need to support breast cancer thrivers in survivorship, managing expectations of self and others, finding meaning in individual experiences, supporting behavioral health changes, managing and understanding the emotional and psychological experiences in breast cancer, and continuing efforts to support all segments of any population in the areas of prevention and early identification.

show abstract

Section: Procedure/data Collectionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

The Impact of Breast Cancer and Culture on Mental and Behavioral Health in the Cayman Islands: A Qualitative Study

Saunders¹,

Zolnikov²

2023

Arch Breast Cancer

View full text Add to dashboard Cite

show abstract

“…The purpose of this concurrent convergent mixed methods study [28] was to provide further data to guide the development of the proposed culturally sensitive mHealth app, STORY+ for African-American women with breast cancer. Our initial work has been reported [14,[29][30][31][32][33][34]. The aims of this study were to (1) assess the use of smartphones and computers related to health care in African-American women with breast cancer, and (2) identify foundational aspects to support endocrine therapy adherence for incorporation in an mHealth app.…”

Section: Introductionmentioning

confidence: 99%

Perceptions of Endocrine Therapy in African-American Breast Cancer Survivors: Mixed Methods Study

Donevant¹,

Heiney²,

Wineglass³

et al. 2021

JMIR Form Res

View full text Add to dashboard Cite

Background Although the incidence of breast cancer is lower in African-American women than in White women, African-American women have a decreased survival rate. The difference in survival rate may stem from poor endocrine therapy adherence, which increases breast cancer recurrence. Therefore, accessible and culturally sensitive interventions to increase endocrine therapy adherence are necessary. Objective The purpose of this concurrent convergent mixed methods study was to provide further data to guide the development of the proposed culturally sensitive mHealth app, STORY+ for African-American women with breast cancer. Methods We recruited 20 African-American women diagnosed with estrogen-positive breast cancer and currently prescribed endocrine therapy. We used a concurrent convergent data collection method to (1) assess the use of smartphones and computers related to health care and (2) identify foundational aspects to support endocrine therapy adherence for incorporation in a mobile health app. Results Overwhelmingly, the participants preferred using smartphones to using computers for health care. Communicating with health care providers and pharmacies was the most frequent health care use of smartphones, followed by exercise tracking, and accessing the patient portal. We identified 4 aspects of adherence to endocrine therapy and smartphone use for incorporation in app development. The factors that emerged from the integrated qualitative and quantitative data were (1) willingness to use, (2) side effects, (3) social connection, and (4) beliefs about endocrine therapy. Conclusions Further research is needed to develop a culturally sensitive app for African-American women with breast cancer to improve adherence to endocrine therapy. Our work strongly suggests that this population would use the app to connect with other African-American breast cancer survivors and manage endocrine therapy.

show abstract

Expectations and reality: perceptions of support among African American breast cancer survivors

et al. 2017

View full text Add to dashboard Cite

Applying transitions theory, we found that social support is a process of bidirectional negotiation where African American women with breast cancer perceive support as helpful and acceptable depending on who offers support, what type of support is offered, and when it is offered. Members of their social support network (e.g. family, friends, providers) should periodically assess the survivor's evolving needs to ensure the social support harmonizes with the needs and expectations of the survivor.

show abstract

African American Women’s Recollected Experiences of Adherence to Breast Cancer Treatment

Cited by 3 publications

References 0 publications

The Impact of Breast Cancer and Culture on Mental and Behavioral Health in the Cayman Islands: A Qualitative Study

The Impact of Breast Cancer and Culture on Mental and Behavioral Health in the Cayman Islands: A Qualitative Study

Perceptions of Endocrine Therapy in African-American Breast Cancer Survivors: Mixed Methods Study

Expectations and reality: perceptions of support among African American breast cancer survivors

Contact Info

Product

Resources

About