Expectations and reality: perceptions of support among African American breast cancer survivors

Felder, Tisha M.; Estrada, Robin Dawson; Quinn, Jada C; Phelps, Kenneth W.; Parker, Pearman D; Heiney, Sue P.

doi:10.1080/13557858.2017.1373072

Cited by 11 publications

(8 citation statements)

References 27 publications

Supporting

Mentioning

Contrasting

Order By: Relevance

“…Emotional support was particularly important to some participants [58,59]. In one study, participants identified support as helpful only when it was in line with what they expected/desired [60]. Many survivors appreciated the impact of survivorto-survivor relationships [59,[61][62][63].…”

Section: Social Supportmentioning

confidence: 99%

“…In terms of sources of support, some survivors expressed a desire for family members to support the healthcare provider's plan and/or provide instrumental support such as driving to treatment [60]. Others mentioned their relationship with healthcare providers positively influencing their emotional health [61] and believed it was part of providers' jobs to…”

Section: Social Supportmentioning

confidence: 99%

“…Beyond treatment, another study cited physical issues persisting [58]. In fact, following treatment some AABCS reported feeling a sense of isolation following the initial celebration [61] or losing support after completion of treatment [60].…”

Section: Negative Impacts Of Treatment (Complications Body Image and ...mentioning

confidence: 99%

See 2 more Smart Citations

Psychosocial protective interventions associated with a better quality of life and psychological wellbeing for African American/Black female breast cancer survivors: an integrative review

Gordon

Lee

Tchangalova

et al. 2021

Support Care Cancer

View full text Add to dashboard Cite

show abstract

Section: Social Supportmentioning

confidence: 99%

Section: Social Supportmentioning

confidence: 99%

See 1 more Smart Citation

Psychosocial protective interventions associated with a better quality of life and psychological wellbeing for African American/Black female breast cancer survivors: an integrative review

Gordon

Lee

Tchangalova

et al. 2021

Support Care Cancer

View full text Add to dashboard Cite

show abstract

“…The purpose of this concurrent convergent mixed methods study [28] was to provide further data to guide the development of the proposed culturally sensitive mHealth app, STORY+ for African-American women with breast cancer. Our initial work has been reported [14,[29][30][31][32][33][34]. The aims of this study were to (1) assess the use of smartphones and computers related to health care in African-American women with breast cancer, and (2) identify foundational aspects to support endocrine therapy adherence for incorporation in an mHealth app.…”

Section: Introductionmentioning

confidence: 99%

Perceptions of Endocrine Therapy in African-American Breast Cancer Survivors: Mixed Methods Study

Donevant¹,

Heiney²,

Wineglass³

et al. 2021

JMIR Form Res

View full text Add to dashboard Cite

Background Although the incidence of breast cancer is lower in African-American women than in White women, African-American women have a decreased survival rate. The difference in survival rate may stem from poor endocrine therapy adherence, which increases breast cancer recurrence. Therefore, accessible and culturally sensitive interventions to increase endocrine therapy adherence are necessary. Objective The purpose of this concurrent convergent mixed methods study was to provide further data to guide the development of the proposed culturally sensitive mHealth app, STORY+ for African-American women with breast cancer. Methods We recruited 20 African-American women diagnosed with estrogen-positive breast cancer and currently prescribed endocrine therapy. We used a concurrent convergent data collection method to (1) assess the use of smartphones and computers related to health care and (2) identify foundational aspects to support endocrine therapy adherence for incorporation in a mobile health app. Results Overwhelmingly, the participants preferred using smartphones to using computers for health care. Communicating with health care providers and pharmacies was the most frequent health care use of smartphones, followed by exercise tracking, and accessing the patient portal. We identified 4 aspects of adherence to endocrine therapy and smartphone use for incorporation in app development. The factors that emerged from the integrated qualitative and quantitative data were (1) willingness to use, (2) side effects, (3) social connection, and (4) beliefs about endocrine therapy. Conclusions Further research is needed to develop a culturally sensitive app for African-American women with breast cancer to improve adherence to endocrine therapy. Our work strongly suggests that this population would use the app to connect with other African-American breast cancer survivors and manage endocrine therapy.

show abstract

“…African American women with breast cancer are at a higher risk for diminished health and emotional support information for survivorship from healthcare providers [ 7 ] and negative responses from family and friends. A social connectedness to others is an important aspect of survivorship for African American women with breast cancer, and yet, many of these women encounter feelings of social isolation within their networks of family and friends who may not understand the psychosocial issues encountered during post-treatment [ 13 ]. These challenges were likely heightened for African American women with breast cancer during the COVID pandemic.…”

mentioning

confidence: 99%

African American Women Breast Cancer Survivors: Coping with the COVID-19 Pandemic

et al. 2023

View full text Add to dashboard Cite

African American women breast cancer survivors are among those with the greater burden of cancer. Breast cancer is the second leading cause of death among black women, and this death rate is 40% higher than that of white women. The COVID-19 pandemic increased the burden of morbidity and mortality among this population of cancer survivors. In this report, we explore the ways in which the COVID-19 pandemic was a source of stress for African American women breast cancer survivors and their subsequent responses to these stressors. This is a qualitative descriptive study with content analysis of data from the narratives of 18 African American breast cancer survivors. Participants were interviewed via phone and video conferencing platform and asked questions related to their experiences with the COVID-19 pandemic. The findings suggest stressors associated with (1) potential COVID-19 spreaders in their immediate environments; (2) closures and restricted access to social-and faith-based activities; (3) televised news broadcasts of COVID-19; and (4) disruptions to planned cancer prevention and control healthcare. Three categories emerged that captured the ways in which these women responded to stressors during the early phase of this pandemic: (1) seeking control in their social environments; (2) following the rules; and (3) seeking support from God, family, and friends. These findings can be used to better support breast cancer patients during the early phases of a pandemic.

show abstract

Expectations and reality: perceptions of support among African American breast cancer survivors

Cited by 11 publications

References 27 publications

Psychosocial protective interventions associated with a better quality of life and psychological wellbeing for African American/Black female breast cancer survivors: an integrative review

Psychosocial protective interventions associated with a better quality of life and psychological wellbeing for African American/Black female breast cancer survivors: an integrative review

Perceptions of Endocrine Therapy in African-American Breast Cancer Survivors: Mixed Methods Study

African American Women Breast Cancer Survivors: Coping with the COVID-19 Pandemic

Contact Info

Product

Resources

About