Adult Day Services Outcomes: Delphi Review of an Integrated Participant Assessment System

Jarrott, Shannon E.; Ogletree, Aaron M.

doi:10.1177/0733464816675423

Cited by 9 publications

(23 citation statements)

References 32 publications

(41 reference statements)

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“…In terms of the first aim, results from a national survey revealed that only 10 states (or 20% of all states) were required to regularly collect outcome data in ADS. Given the recent calls for increased uniform data collection in ADS, 12,14 this result was anticipated yet the implications of this result merit discussion. The lack of regular outcome data collection hampers our ability to understand the impact of ADS on the individual, programmatic, and industry levels.…”

Section: Discussionmentioning

confidence: 95%

Dementia patient and caregiver relevant outcomes currently being reported by adult day service centers in the United States

Sadarangani

Anderson

Westmore

et al. 2022

A&D Transl Res & Clin Interv

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Background Approximately one third of adults in adult day services (ADS) centers have Alzheimer's disease (AD) and AD‐related dementias (ADRD). Understanding of the impact and effectiveness of ADS on persons living with dementia (PLWD) is limited by a lack of patient and caregiver relevant outcomes (PCRO) data. We identified PCROs collected at ADS sites in states that mandate serial data collection and examined the degree to which these data align with established Dementia Care Practice Recommendations (DCPR) and PCROs used in other areas of long‐term care. Methods We conducted an item analysis of regulatory forms used by ADS. Consistent with the methodology used by the Imbedded Pragmatic AD/ADRD Clinical Trials (IMPACT) Collaboratory for PCROs collected in other long‐term care settings, we created a matrix informed by DCPR. We matched each item in regulatory forms reflecting a PCRO to one of the seven DCPR domains as well as to the 53 PCROs from other long‐term care sectors. Results Ten states routinely collect outcome data in ADS. Among these, 80% assess cognitive function. All 10 states capture PLWD's ability to complete activities of daily living. Presence and frequency of behavioral symptoms were collected by 80% of states. Very few or, in some cases, none of the 10 states, collected PCROs related to care planning and coordination, education, social support, and/or family caregiver burden and support. Discussion Lack of standardized collection of PCROs hampers researchers’ understanding of ADS. The vast majority of PCROs collected center on participants’ physical health; conversely, data on socialization, social support, and caregiver well‐being, which are purportedly the most impactful services offered by ADS centers, are rarely collected. ADS would be well served to focus on these outcome domains as the resulting data could paint a more complete picture of the holistic impact of ADS on PLWD and their caregivers.

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Section: Discussionmentioning

confidence: 95%

Dementia patient and caregiver relevant outcomes currently being reported by adult day service centers in the United States

Sadarangani

Anderson

Westmore

et al. 2022

A&D Transl Res & Clin Interv

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“…Again, researchers can play a role in developing and testing simple yet effective protocols for collecting outcome data in ADC programs. Although such protocols have been proposed (Anderson et al, 2020; Jarrott & Ogletree, 2019), they have yet to be implemented and tested in large-scale national studies.…”

Section: Discussionmentioning

confidence: 99%

A National Survey of Data Currently being Collected by Adult Day Service Centers Across the United States

Sadarangani¹,

Anderson

Vora

et al. 2021

J Appl Gerontol

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An understanding of adult day service centers’ (ADC) impacts on clients’ health and well-being has been hampered by a lack of large-scale data. Standardizing data collection is critical to strengthening ADC programs, demonstrating their effectiveness, and enabling them to leverage additional funding streams beyond Medicaid. We distributed an electronic survey on current data collection efforts to ADCs nationally to determine categories of data ADCs are collecting related to clients’ health. In our sample ( N = 248), only 32% of ADCs collected patient-level data for research and analysis—most commonly on activities of daily living, cognition, nutrition, and caregiver strain. However, validated assessment tools were used in less than 50% of the cases. ADCs are willing to collect data: More than 70% reported a willingness to participate in future studies. National studies piloting data collection protocols with uniform outcome measures are needed to advance the understanding of ADCs’ capabilities and impacts.

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“…The center developed and launched an integrated Adult Day Services Outcomes system in 2007 (see Jarrott & Ogletree, 2019 for details on the Outcomes system). Center staff track standardized outcome measures administered at the time of enrollment, bi-annually, and as dictated by participant health changes.…”

Section: Methodsmentioning

confidence: 99%

“…The center developed and launched an integrated Adult Day Services Outcomes system in 2007 (see Jarrott & Ogletree, 2019 for details on the Outcomes system).…”

Section: Study Procedures and Participantsmentioning

confidence: 99%

Intergenerational Programming Increases Solid Food Consumption for Adult Day Center Attendees

2022

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We examined whether participation in intergenerational programming would impact daily food and liquid intake for adult day service center (ADSC) participants, many of whom are at risk for malnutrition and dehydration. Data came from 75 ADSC participants who, on average, attended the center for 472.32 days between 2007 and 2018. We analyzed daily data using multilevel modeling, nesting attending days within ADSC participants. On days when participants joined intergenerational programming, they consumed significantly more solid food ( β = 1.54, SD = .37, p < .001), but no different liquid ( β = −.16, SD = .09, p = .06), than their own average across all days they attended the ADSC. Intergenerational programming may be an effective way to support ADSCs participants’ nutrition. Future research is needed to determine the longer-term health benefits of daily increases in food consumption and to explore why intergenerational programming may differentially impact eating and drinking.

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Adult Day Services Outcomes: Delphi Review of an Integrated Participant Assessment System

Cited by 9 publications

References 32 publications

Dementia patient and caregiver relevant outcomes currently being reported by adult day service centers in the United States

Dementia patient and caregiver relevant outcomes currently being reported by adult day service centers in the United States

A National Survey of Data Currently being Collected by Adult Day Service Centers Across the United States

Intergenerational Programming Increases Solid Food Consumption for Adult Day Center Attendees

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