A Qualitative Examination of the Needs of Families Faced With the Option of Organ Donation

Jacoby, Liva; Breitkopf, Carmen Radecki; Pease, Elizabeth A.

doi:10.1097/00003465-200507000-00009

Cited by 57 publications

(64 citation statements)

References 29 publications

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“…Previous research has shown families' emphasis on their desire that such factual information be conveyed with compassion and sensitivity, suggesting a convergence of informational and emotional support. 11,13 quality-of-care items were averaged to yield an overall index of perceived quality of care, yielding an alpha coefficient of 0.87. Table 4 presents intercorrelations between the 3 dimensions of support and the donation decision.…”

Section: Discussionmentioning

confidence: 99%

“…[1][2][3][4][5] Results of research since 2000 have largely supported these findings and provided new insights, such as the importance of families' being given time to bring up concerns with staff, receiving clear information about their relatives' condition and the organ donation process, not being pressured to make a decision, and being shown respect and compassion. [6][7][8][9][10][11][12] About the Authors Liva Jacoby is an associate professor in the Department of Medical Education and the Alden March Bioethics Institute at Albany Medical College in Albany, New York. Jim Jaccard is a professor in the Department of Psychology at Florida International University in Miami.…”

Section: Data Collection Proceduresmentioning

confidence: 99%

“…A 65-item structured survey questionnaire was developed by the researchers based on prior research and theoretical work, results from focus groups with donor and nondonor family members, 11 recommendations from donor families, and pilot testing. Survey items consisted of close-ended nominal-level questions and 3-and 4-point Likert scales.…”

Section: The Instrumentmentioning

confidence: 99%

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Perceived Support Among Families Deciding About Organ Donation for Their Loved Ones: Donor Vs Nondonor Next Of Kin

Jacoby

Jaccard²

2010

American Journal of Critical Care

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Background Families' experiences in the hospital influence their decisions about donating organs of brain-dead relatives. Meeting families' support needs during this traumatic time is an obligation and a challenge for critical care staff. Objectives (1) To elicit family members' accounts of various types of support received and perceived quality of care for themselves and their loved ones when they made the donation decision, and (2) to examine the relationship between these factors and the families' donation decision. Methods Retrospective telephone interviews of 199 families from different regions of the country were completed. Aside from demo graphic data, the survey addressed perceptions of informational, emotional, and instrumental support and quality of care. Results One hundred fifty-four study participants consented to donation; 45 declined. White next of kin were significantly more likely than African Americans to consent. Specific elements of reported support were significantly associated with consent to donate. Donor and nondonor families had differing perceptions of quality care for them selves and their loved ones. Receiving understandable information about organ donation was the strongest predictor of consent. Conclusions Specific supportive behaviors by staff as recounted by family members of potential donors were significantly associated with consent to donation. These behaviors lend themselves to creative training and educational programs for staff. Such interventions are essential not only for next of kin of brain-dead patients, but also for staff and ultimately for the public as a whole. (American Journal of Critical Care. 2010;19:e52-e62) Notice to CE enrollees:A closed-book, multiple-choice examination following this article tests your under standing of the following objectives:1. Identify at least 2 types of information that family members found to be helpful when considering organ donation for a brain-dead relative. 2. Describe bereavement care. 3. Discuss at least 3 reasons why relatives did not consent to donation for their loved ones.

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Section: Discussionmentioning

confidence: 99%

Section: Data Collection Proceduresmentioning

confidence: 99%

Section: The Instrumentmentioning

confidence: 99%

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Perceived Support Among Families Deciding About Organ Donation for Their Loved Ones: Donor Vs Nondonor Next Of Kin

Jacoby

Jaccard²

2010

American Journal of Critical Care

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“…Multidisciplinary research on donation and organ transplant has contributed effectively to extending transplant, necessarily related to obtaining permission to extract the organs of a recently deceased relative (Jacoby, Breitkopf, & Pease, 2005;Sanner, 2006). Some of the studies on the psychosocial determinants of organ donation have attempted to analyze the opinions and emotions generated by the donation process in the relatives of potential organ donors, in order to identify factors that may facilitate or inhibit granting permission.…”

mentioning

confidence: 99%

“…Recently, Jacoby, Breitkopf, and Pease (2005), by means of the focus group technique, analyzed the perceived needs of 11 donor families and 5 nondonors. Both groups expressed similar needs with regard to clear information, emotional support, and the wish to consult someone who had experienced a similar situation who would really understand their anguish and who could interpret the information for them.…”

mentioning

confidence: 99%

Family Perception of the Process of Organ Donation. Qualitative Psychosocial Analysis of the Subjective Interpretation of Donor and Nondonor Families

et al. 2008

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Family perception of organ donation has been explored by numerous authors using statements by the people who decided whether or not to donate the organs of a relative in a situation of brain death. Within this tradition, in this work, we analyze the discourse of six families who granted permission for organ donation and three who refused. We describe the process-based interpretation of this experience and identify psychosocial variables and processes that further our understanding of the decision finally adopted. We have identified two heuristics that guide family decision when organ donation is requested: the explicit or inferred will of the deceased and family attitudes to organ donation and transplant. It is postulated that the interaction of these two factors explains a large amount of the decisions made. We also hypothesize that a marked discrepancy between these two factors increases the importance of other aspects, especially the role of the transplant coordinator and of other healthcare personnel. These results support, at a social level, the implementation of transplant promotion programs; and at a healthcare level, the combined use of techniques of crisis intervention and attitude change. Keywords: qualitative study, organ donation, perception, families, interview El estudio de la percepción familiar sobre donación de órganos ha sido abordado por numerosos autores partiendo de declaraciones de personas que habían decidido si donaban los órganos de un familiar en situación de muerte cerebral. Inserto en esta tradición, este trabajo analiza cualitativamente el discurso de seis familias que concedieron la donación de órganos y de tres que la denegaron. Describe la interpretación procesal de esta experiencia e identifica variables y procesos psicosociales que permitan comprender la decisión adoptada. Se identifican dos heurísticos que orientan la decisión familiar ante la petición de donación de órganos: la voluntad manifestada o inferida del fallecido y las actitudes familiares hacia la donación y el trasplante de órganos de los decisores; se postula que la interacción de ambos explica una parte significativa de las decisiones adoptadas. También se hipotetiza que una fuerte discrepancia entre estos dos procesos favorece que otros factores (especialmente la actuación del coordinador de trasplantes y del personal sanitario) adquieran mayor importancia en la decisión familiar. Los resultados apoyan, a nivel social, la aplicación de programas de promoción del trasplante y, a nivel hospitalario, la aplicación de intervenciones que integren técnicas de intervención en crisis y de persuasión y cambio de actitudes. Palabras clave: estudio cualitativo, donación de órganos, percepción, familias, entrevista

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Organ Donation

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2009

Understanding Organ Donation

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A Qualitative Examination of the Needs of Families Faced With the Option of Organ Donation

Cited by 57 publications

References 29 publications

Perceived Support Among Families Deciding About Organ Donation for Their Loved Ones: Donor Vs Nondonor Next Of Kin

Perceived Support Among Families Deciding About Organ Donation for Their Loved Ones: Donor Vs Nondonor Next Of Kin

Family Perception of the Process of Organ Donation. Qualitative Psychosocial Analysis of the Subjective Interpretation of Donor and Nondonor Families

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