Developing a measure to assess identity reconstruction in patients with multiple sclerosis.

Abstract

Identity reconstruction provides needed context for understanding adjustment to and living with MS. Examination of the IRAS within a larger sample and in other disease groups can provide additional construct validity evidence. (PsycINFO Database Record

Young adults’ adjustment to a recent diagnosis of multiple sclerosis: The role of identity satisfaction and self-efficacy

“…In line with literature, we found that the adjustment to MS was related to both identity satisfaction [19][20][21][22] and self-efficacy 23,25,26 . In particular, the construct of identity seems to be particularly relevant for patients of this age.…”

“…The illness negatively changes the body functioning and perception, as well as life plans, chances of personal realization and social roles which the individual is engaged in 18 This is particularly dramatic for young people who suddenly perceive themselves as ill and have to reorganize their future perspectives. The few studies that focused on identity and MS among patients with long disease duration found that identity restructuring is a key aspect for the psychosocial adjustment to the illness [19][20][21][22] . Moreover, in our previous study on recently diagnosed patients aged from 18 to 65, it was found that higher identity satisfaction was related to lower depression, higher affective well-being and higher optimism 23 .…”

“…Moreover, we explored if depression, positive and negative affect varied as a function of gender, age, and disease duration, as found in our previous research on newly diagnosed patients 23 . With respect to the second aim, lower depression, lower negative affect and higher positive affect were expected to be linked to higher levels of identity satisfaction [19][20][21][22] and to higher self-efficacy in dealing with MS [25][26] . Finally, we expected that self-efficacy would account for a portion of the effect of identity satisfaction on adjustment.…”

The Role of Identity Motives on Quality of Life and Depressive Symptoms: A Comparison Between Young Adults With Multiple Sclerosis and Healthy Peers

“…This means to reorganize their future perspectives and their life goals, taking into account limits and possibilities linked to the illness, and elaborating a self-image that includes the illness, and does not merely coincide with it (Bonino, 2020). Previous studies showed that successfully redefining one's identity is related to lower depressive symptoms and higher quality of life and psychological well-being among MS patients (Irvine et al, 2009;Mozo-Dutton et al, 2012;Tabuteau-Harrison et al, 2016;Calandri et al, 2017aCalandri et al, , 2019Rahn et al, 2017). It is therefore crucial to deepen knowledge about identity, as one of the factors that might promote young adults' adjustment to MS.…”

Calidad de vida y variables asociadas: Reflexiones, concepciones teóricas y los desafíos de su evaluación

“…Una actitud negativa de los familiares o personas cercanas a la persona con discapacidad puede potenciar a su vez sentimientos negativos en quienes la poseen. Teniendo en cuenta que la identidad está relacionada con la socialización del individuo con su medio, por lo mismo, una interacción negativa dentro de su círculo familiar o social, llevará asimismo a un potencial conflicto de identidad (Hauser-Cram et al, 2009;Nuñez, 2014, Stepleman, et al, 2017. El término discapacidad involucra en sí mismo una dificul-tad, una falta de capacidad u oportunidad, por lo que ya desde que se involucra a este término, se relaciona con la exclusión (Garzón, 2007).…”