Young adults’ adjustment to a recent diagnosis of multiple sclerosis: The role of identity satisfaction and self-efficacy

Calandri, Emanuela; Graziano, Federica; Borghi, Martina; Bonino, Silvia

doi:10.1016/j.dhjo.2018.07.008

Cited by 25 publications

(20 citation statements)

References 37 publications

(55 reference statements)

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“…Some of the key factors that significantly endanger family functioning are as follows: MS affects people and their caregivers, at their most productive years of life, usually in young adulthood (38), chronic course of MS (39), and families cannot foresee the relapses, disease progression, or even the everyday functional capacity of the patient (40), and psychological aspects of the patients (41). All of the mentioned factors influence the development of dysfunctionality and the potential emergence of psychological hardship and poor life quality for the afflicted (42), as well as for other family members.…”

Section: Discussionmentioning

confidence: 99%

The Family of People with Multiple Sclerosis: The Process of Family Stress Adaptation

Brkić-Jovanović

Slavković

Beljanski

et al. 2019

Iran Red Crescent Med J

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Background: Multiple Sclerosis (MS) affects everyday functioning of individuals with MS, and their family dynamics. Furthermore, MS is a chronic disease with unpredictable course imposing a stressful experience on the entire family. Changes in family functioning patterns are necessary so that they can appropriately respond to complex demands imposed by the disease. Objectives: This study aimed to evaluate predictive values of family resources in the encounter with stressful life events and family adaptation. These data are required to provide adequate family support systems. Methods: The sample consisted of 62 people with MS. The following instruments were used: Family Adaptation Scale, Family Social Support Index, Financial Well-Being Scale, and Family Problem Solving Communication Scale. Results: The results of this research indicate that subjective assessment of the quality of family relationships, measures of the quality of family communication (β = 0.353, P < 0.001), and measures of perceived family social support (β = 0.272, P < 0.05) are the only predictors of successful family adaptation. Conclusions: The results infer that the processes essential for successful adaptation of people with MS occurs within their nuclear family. Therefore, adaptation to accidental crisis created by MS onset can be promoted by strengthening support and communication within the nuclear family.

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Section: Discussionmentioning

confidence: 99%

The Family of People with Multiple Sclerosis: The Process of Family Stress Adaptation

Brkić-Jovanović

Slavković

Beljanski

et al. 2019

Iran Red Crescent Med J

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“…All clinical information was retrieved from medical records. Patients who agreed to participate, completed an anonymous self-report questionnaire, administered by a psychologist of the research team, during one of the routine scheduled outpatient visits at the Clinic Center (Calandri et al, 2019). Healthy controls were drawn from the general population.…”

Section: Participants and Proceduresmentioning

confidence: 99%

“…MS symptoms are manifold (fatigue, pain, motor and sensory deficits, bladder, bowel, and sexual disturbances, and cognitive impairment). The most common form of MS is the RR-MS (relapsing-remitting multiple sclerosis) characterized by relapses alternating with periods of symptom remission, whereas for a minority of patients, the course is characterized by worsening of symptoms and disability from the onset without remissions (primary progressive multiple sclerosis, PP-MS) (Lublin et al, 2014;Calandri et al, 2019). Drugs are used to treat attacks and slow down the disease, but at present, there is no cure for it.…”

Section: Introductionmentioning

confidence: 99%

“…Drugs are used to treat attacks and slow down the disease, but at present, there is no cure for it. The characteristics of MS (chronicity, unpredictable course, multiple and fluctuating symptoms over time) have significant psychological effects on patients (Calandri et al, 2019). In particular, MS has a deep impact on the sense of personal identity because the illness affects the self-image and the body functioning, and requires the individual to modify life plans, chances of personal realization, and social roles (Weinreich and Saunderson, 2003).…”

Section: Introductionmentioning

confidence: 99%

“…This means to reorganize their future perspectives and their life goals, taking into account limits and possibilities linked to the illness, and elaborating a self-image that includes the illness, and does not merely coincide with it (Bonino, 2020). Previous studies showed that successfully redefining one's identity is related to lower depressive symptoms and higher quality of life and psychological well-being among MS patients (Irvine et al, 2009;Mozo-Dutton et al, 2012;Tabuteau-Harrison et al, 2016;Calandri et al, 2017aCalandri et al, , 2019Rahn et al, 2017). It is therefore crucial to deepen knowledge about identity, as one of the factors that might promote young adults' adjustment to MS.…”

Section: Introductionmentioning

confidence: 99%

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The Role of Identity Motives on Quality of Life and Depressive Symptoms: A Comparison Between Young Adults With Multiple Sclerosis and Healthy Peers

Calandri

Graziano

Borghi³

et al. 2020

Front. Psychol.

Self Cite

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The diagnosis of a chronic illness during young adulthood represents a non-normative life transition influencing the identity definition process, as well as the individual psychological adjustment. The study examined if relationships between identity motives (self-esteem, efficacy, continuity, distinctiveness, belonging, and meaning), health-related quality of life, and depressive symptoms differ between healthy young adults and young adults diagnosed with multiple sclerosis (MS). Two hundred one people (101 MS patients and 100 healthy controls), aged 18–35 years, completed a self-report questionnaire. Young adults with MS reported lower health-related quality of life and lower efficacy motive than their healthy peers. Among MS patients, high meaning was related to lower depressive symptoms, whereas high continuity and high belonging were related to higher health-related quality of life than in healthy controls. The study highlights the relevance of identity motives for the adjustment to MS and has implications for psychological interventions with young patients.

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The experience of psychological therapies for people with multiple sclerosis: A mixed‐methods study towards a patient‐centred approach to exploring processes of change

Fragkiadaki

Anagnostopoulos

Triliva

2023

Couns and Psychother Res

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Psychological therapies are effective for managing multiple sclerosis (MS) symptoms such as depression, pain and fatigue. Cognitive behavioural therapy (CBT), mindfulness and other theory-led approaches have been applied and were found to have moderate effects. The present study adopts a patient-led approach to investigate people with MS' (PwMS) experiences of psychological therapies and the change processes they identify. In this naturalistic, mixed-methods design, semistructured interviews were conducted and three questionnaires were administered to 20 PwMS at two different times. Qualitative data collection and analysis followed the interpretative phenomenological analysis (IPA) guidelines, and quantitative data were analysed using paired t tests. Four superordinate themes described the participants' experiences of change as related to their psychological therapy: from despair to relief; from feeling their body as alien to becoming acquainted with an unpredictable new body; from helplessness to empowerment; and from punishment to forgiveness. Quantitative results showed that physical function and general health perception improved, and anxiety was significantly reduced. Despite seeking help from diverse psychological therapy modalities, the analysis revealed common themes that the participants found significant in their therapy stories. Following a patient-centred approach, the development of psychological therapies for PwMS should focus on their relationships, everyday lives, body perception, losses, shame and guilt. PwMS also need to be understood and acknowledged beyond their condition.

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Young adults’ adjustment to a recent diagnosis of multiple sclerosis: The role of identity satisfaction and self-efficacy

Cited by 25 publications

References 37 publications

The Family of People with Multiple Sclerosis: The Process of Family Stress Adaptation

The Family of People with Multiple Sclerosis: The Process of Family Stress Adaptation

The Role of Identity Motives on Quality of Life and Depressive Symptoms: A Comparison Between Young Adults With Multiple Sclerosis and Healthy Peers

The experience of psychological therapies for people with multiple sclerosis: A mixed‐methods study towards a patient‐centred approach to exploring processes of change

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