1467 – Symptoms of depression, anxiety and stress in patients with thalassemia in a greek transfusion center

Lyrakos, G.; Servou, M. Drossou; Vini, D.; Aslani, H.; Spinaris, V.

doi:10.1016/s0924-9338(13)76495-2

Cited by 3 publications

(3 citation statements)

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“… 15 Mean age of our caregivers was 41.25 years, it is similar to researches conducted in Rawalpindi 16 , Bahawalpur 17 and Greece. 18 No significant association was seen between stress in relation gender of patients and caregivers in the study conducted in India 19 and Greek transfusion center 6 , which is also similar to our results.…”

Section: Discussionsupporting

confidence: 90%

Perceived stress and monetary burden among thalassemia patients and their caregivers

et al. 2018

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Objective:To find the perceived stress level and monetary burden in the thalassemia patients and their caregivers related to thalassemia treatment sessions.Methods:A descriptive cross sectional study was conducted at Rawalpindi Thalassemia Centre and Military Hospital Rawalpindi of six months’ duration from November 2016 to April 2017. A total of 87 sample size was calculated by using WHO sample size calculator. Participants were inducted through purposive sampling technique from thalassemia centers. A validated standardized Cohen’s Perceived Stress score was used. Data were entered and analyzed in SPSS 22.Results:Mean age of the participants was 30.42 ± 14.53 years. There were 30 (34.2%) males and 57 (65.8%) females. There were 39 (51.3%) patients and 48 (48.7%) caregivers. The mean income per month of the participants was 48706.9 ± 39492.68 PKR. The mean total expenditure per treatment session was 48706 ± 4037.12 PKR. Among the patients, there were 15 (38.5%) who were having average stress, while 4 (10.3%) were having moderate stress while 45 (51.7%0 were having severe stress. Among the caregivers, 10 (20.8%) were having mild stress, 13 (27.1%) were having moderate stress while 25 (52.1%) were having severe stress. The stress among the two groups was not statistically significant (p=0.066).Conclusion:More than half of the patients and caregivers were having a high perceived stress levels and there was a significant association between the two groups. The monetary burden was a lot to bear by the patients and the cost of treatment session most expensive.

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Section: Discussionsupporting

confidence: 90%

Perceived stress and monetary burden among thalassemia patients and their caregivers

et al. 2018

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“…Among the caregivers, more than 70% were married women, aged around 50 years old, and more than three-fths cared for patients without help from others, and also needed to take care of others besides adult patients with β-thalassemia major. Studies conducted in Rawalpindi and Greece reported similar results [26,34]. Males are expected to be breadwinners in familial and societal contexts, and because of their unique physical and psychological characteristics, females are regarded as better caregivers than males.…”

Section: Discussionmentioning

confidence: 67%

“…Higher scores indicate a higher burden. Burden was differentiated into three levels: mild (< 21), moderate (21)(22)(23)(24)(25)(26)(27)(28)(29)(30)(31)(32)(33)(34)(35)(36)(37)(38)(39)(40), and severe (> 40) [22]. The Chinese version of the ZBI has been widely used in China [23].…”

Section: Zarit Burden Interview (Zbi)mentioning

confidence: 99%

Caregiver burden and related determinants of adult patients with β- thalassemia major in mainland China

Zhang

Ming

et al. 2023

Preprint

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Purpose The caregivers of adult patients with β-thalassemia major bear not only physical but also emotional and economic pressures of providing care. The aim of this study was to examine the determinants of caregiver burden in adult patients with β-thalassemia major in mainland China. Methods In this cross-sectional study, we conducted an online survey with snowball sampling covering seven provinces between September 1, 2021, and January 31, 2022, of patients aged ≥18 years with β-thalassemia major and their caregivers. Caregiver burden was assessed using the Zarit Burden Interview (ZBI). Data on patient demographics, disease and therapy characteristics, and caregivers’ demographic characteristics were collected and analyzed using independent t-tests, analysis of variance, and multiple linear regression. Results Of 75 included patients, more than half (50.7%) were male. The mean patient age was 24.69±5.59 years. The mean age of the caregivers was 50.60±9.16 years, with women (74.7%) being predominant. The ZBI score was 38.00 ±17.02. Multiple linear regression analysis showed that patients with interrupted blood transfusion therapy and caregivers required to care of others were positively associated with caregiver burden (p<0.05). Married caregivers were negatively associated with caregiver burden (p<0.05). Conclusions The caregivers of adult patients with β-thalassemia major in mainland China experienced a moderate-to-severe level of caregiving burden. The burden was higher in patients with a history of interrupted blood transfusion therapy or in caregivers caring for others. Additionally, married caregivers experienced lower burdens compared to non-married caregivers. These findings provide a reference to identify caregivers with higher burdens among patients with β-thalassemia major.

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Prevalence of Psychological distress among mothers of β-Thalassemia children in a developing country

Anwar

Zafar²,

Jahangir

et al. 2022

PJHS

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Beta-thalassemia major (BTM) is one of the most common hereditary hemoglobinopathies in Pakistan, with 9.8 million persons in the general population and gene carriers (5-7%). The mothers of these chronically ill patients often endure many challenges associated with caregiving. Objective: To determine the prevalence of psychological distress experienced by mothers of children suffering from BTM in a developing country. Methods: From March 2022 to August 2022, this descriptive cross-sectional study was done among mothers of thalassemic children who presented to the Outpatient Department of Benazir Bhutto Hospital in Rawalpindi. A self-structured questionnaire consisting of 1) Socio-demographic characteristics and 2) the Kessler-10 (K-10) Distress Measure was used to collect data. To determine the level of psychological distress among mothers of children, a descriptive analysis was done. The Spearman correlation was used to explore the relationship between demographic factors and the level of psychological distress experienced by mothers of children with thalassemia. Results: The mean age of mothers being interviewed was 37.65±3.63 years. Out of 83 mothers, 54 (65.1%) had psychological distress. The children's age (r= -.275) and any psychological support taken by mother (r= -.253) were correlated (p < .05) negatively with the severity of psychological distress. Conclusions: Our study identified that most mothers of children suffering from thalassemia had psychological distress. Thus, these mothers are at risk of poor health outcomes and should be targeted for screening and treatments focused on improving their health and well-being

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1467 – Symptoms of depression, anxiety and stress in patients with thalassemia in a greek transfusion center

Cited by 3 publications

References 0 publications

Perceived stress and monetary burden among thalassemia patients and their caregivers

Perceived stress and monetary burden among thalassemia patients and their caregivers

Caregiver burden and related determinants of adult patients with β- thalassemia major in mainland China

Prevalence of Psychological distress among mothers of β-Thalassemia children in a developing country

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