Abstract:Purpose The caregivers of adult patients with β-thalassemia major bear not only physical but also emotional and economic pressures of providing care. The aim of this study was to examine the determinants of caregiver burden in adult patients with β-thalassemia major in mainland China.
Methods In this cross-sectional study, we conducted an online survey with snowball sampling covering seven provinces between September 1, 2021, and January 31, 2022, of patients aged ≥18 years with β-thalassemia major and their c… Show more
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