Prevalence of Psychological distress among mothers of β-Thalassemia children in a developing country

Abstract

Beta-thalassemia major (BTM) is one of the most common hereditary hemoglobinopathies in Pakistan, with 9.8 million persons in the general population and gene carriers (5-7%). The mothers of these chronically ill patients often endure many challenges associated with caregiving. Objective: To determine the prevalence of psychological distress experienced by mothers of children suffering from BTM in a developing country. Methods: From March 2022 to August 2022, this descriptive cross-sectional study was done among mothers of thalassemic children who presented to the Outpatient Department of Benazir Bhutto Hospital in Rawalpindi. A self-structured questionnaire consisting of 1) Socio-demographic characteristics and 2) the Kessler-10 (K-10) Distress Measure was used to collect data. To determine the level of psychological distress among mothers of children, a descriptive analysis was done. The Spearman correlation was used to explore the relationship between demographic factors and the level of psychological distress experienced by mothers of children with thalassemia. Results: The mean age of mothers being interviewed was 37.65±3.63 years. Out of 83 mothers, 54 (65.1%) had psychological distress. The children's age (r= -.275) and any psychological support taken by mother (r= -.253) were correlated (p < .05) negatively with the severity of psychological distress. Conclusions: Our study identified that most mothers of children suffering from thalassemia had psychological distress. Thus, these mothers are at risk of poor health outcomes and should be targeted for screening and treatments focused on improving their health and well-being

Caregivers' Burden and Mental Health of the Caregivers of β-Major Thalassemia Patients: Mediating Role of Religious Coping

“…Participants were also assured that their participation would not result in any physical or psychological harm. Data from literate participants were collected via self-administered questionnaires, while those unable to read participated through face-to-face interviews (1,17,21). Data analysis was performed using SPSS version 27 for descriptive and reliability analyses to assess the demographic characteristics and the psychometric properties of the study variables, respectively.…”

“…However, the dynamics of religious coping and mental health are complex, with the burden of caregiving for thalassemia generally categorized as moderate, yet exacerbated by financial and caregiving responsibilities (16,19). Negative coping strategies can exacerbate anxiety, whereas positive strategies can significantly improve overall well-being (18)(19)(20)(21)(22)(23). This study aims to explore the intricate relationship between caregiver burden, religious coping, and the mental health of caregivers of thalassemia patients.…”