Longitudinality and continuity of care for children and adolescents with chronic diseases

Caminhos Percorridos Por Crianças E Adolescentes Com Tuberculose Nos Serviços De Saúde

“…Thus, the care level is unable to grant conditions for the development of this attribute, reflecting the caregiver's merely occasional demand for this care level. 17 Therefore, the good relationship between user and service is essential for compliance with the Directly Observed Treatment (DOT) strategy, which consists of observing the medication intake and requiring that the PHCU reorganizes the team's structure and work process. 18 Therefore, the health team needs to closely monitor the family, using a home visit, an FHS work tool, essential for the follow-up of tuberculosis cases in DOT.…”

Doença Crônica Na Infância E Adolescência: Vínculos Da Família Na Rede De Atenção À Saúde

“…It needs to provide the continuity and the coordination of care of chronic diseases in childhood and adolescence, since these are essential components for the high quality of the service provided. [5][6][7][8] Despite this, studies indicate that, not always, the primary care is sought by families in an episode of illness, 9 which makes it impossible to create a bond with this service and what leads to the non-recognition of the APS as a caregiver source. 5,7,9 The bonding is an innovative relational technology to organize care, which can transform work processes, making them comprehensive in health.…”

“…[5][6][7][8] Despite this, studies indicate that, not always, the primary care is sought by families in an episode of illness, 9 which makes it impossible to create a bond with this service and what leads to the non-recognition of the APS as a caregiver source. 5,7,9 The bonding is an innovative relational technology to organize care, which can transform work processes, making them comprehensive in health. 10 The promotion of care encounters centered on creating bonds should be one of the priorities of the healthcare teams in the healthcare network.…”

“…Among these obstacles it is possible to mention the lack of accessibility, lack of responsibility for the care, lack of resoluteness, lack of knowledge about aspects of chronic illness, and the direct search for specialized services. [5][6][7] From the reflections presented, it is questioned: how are the bonds created between the family of the child/adolescent with a chronic disease and the different services of the healthcare network, having the APS as the organizing center for care? To answer this guiding question, the objective was to: explain how the bonds between the family of the child/adolescent with a chronic disease and the dif-ferent services of the healthcare network are created, having the APS as the organizing center for care.…”

Social rights of children with chronic conditions: a critical analysis of brazilian public policies

“…7,8 However, current studies verified family difficulties in home care, access to and use of health services, education and social assistance, medication, special nutrition and assistive technologies. [9][10][11][12] These difficulties can prevent the fulfillment of the needs of the CCC, compromising their possibilities in terms of autonomy and social participation. In addition to social rights constitutionalised in procedural and legal norms, it is necessary to have institutionalized rights, through a state institutional apparatus, which includes knowledge and practices to implement public policies, allowing the consolidation of citizenship and social inclusion.…”