Os múltiplos papéis sociais de mulheres cuidadoras-leigas de crianças hospitalizadas

Wegner, Wiliam; Pedro, Eva Néri Rubim

doi:10.1590/s1983-14472010000200019

Cited by 43 publications

(37 citation statements)

References 7 publications

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“…Many studies have discussed the role of mothers/ family caregivers accompanying hospitalized children and the results coincide with those of this study in which the companion of a hospitalized child receive responsibilities imposed by the nursing staff, which often delegate various activities of its own area of responsibility to the caregiver accompanying the child at the time (17)(18)(19)(20) . We note that some basic care actions related to providing hygiene or comfort and feeding the child can be shared with the companion as long these activities are monitored, the companions are prepared to perform such activities, and negotiation regarding the care actions is established on a daily basis.…”

Section: Discussionsupporting

confidence: 73%

Patient safety in care circumstances: prevention of adverse events in the hospitalization of children

Wegner

Pedro

2012

Rev. Latino-Am. Enfermagem

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This case study with a qualitative approach presents an analysis of the perceptions of family caregivers/companions and health workers concerning adverse events in care contexts. A total of 15 companions and 23 health workers from pediatric hospitalization units of a university hospital in Porto Alegre, Brazil participated in this study from August to December 2010. Data were collected through semi-structured interviews and analyzed through thematic content analysis using QSR's Nvivo version 7.0. Seven thematic categories emerged from the analysis.The results highlight reviewing and checking workers' interventions and implementing effective communication among workers, caregivers and children. The main recommendations concern changing the organizational culture of health facilities, emphasizing safe care and a systemic view of the evaluation of adverse events. Alegre, RS, Brasil, no período entre agosto e dezembro de 2010. A entrevista semiestruturada foi utilizada na coleta das informações, sendo submetida à técnica da análise temática com apoio do software QSR Nvivo, versão 7.0. A análise das informações evidenciou sete categorias temáticas. Nos resultados, destacam-se a revisão e conferência permanentes em qualquer intervenção do profissional e o processo de comunicação efetivo profissional/acompanhante/ criança. O estudo traz como principais recomendações as mudanças na cultura organizacional das instituições de saúde para uma cultura de segurança, com ênfase no cuidado seguro em saúde e visão sistêmica na avaliação da ocorrência de eventos adversos.Descritores: Segurança; Criança Hospitalizada; Erros Médicos; Cuidadores; Profissionais da Saúde. La seguridad del paciente en las circunstancias de cuidado: prevención de eventos adversos en la hospitalización infantilSe trata de una investigación estudio de caso cualitativo, cuyo objetivo fue analizar cómo las acompañantes/cuidadoras y profesionales de salud reconocen los eventos adversos en las circunstancias de cuidado. Fue realizada con 15 acompañantes/cuidadores y 23 profesionales de salud de las unidades de internación de pediatría de un hospital-escuela de Porto Alegre, Brasil entre agosto y diciembre de 2010. Entrevista semi-estructurada fue utilizada para la recolección de las informaciones, siendo sometidas a análisis temático con apoyo del software QSR Nvivo 7.0. El análisis de las informaciones dejó en evidencia siete categorías.Los resultados sugieren la revisión y control permanente en cualquier intervención del profesional y el proceso de comunicación efectivo profesional-acompañante-niño. El estudio trae como recomendaciones los cambios en la cultura organizacional de las instituciones de salud para una cultura de seguridad, con énfasis en el cuidado seguro y visión sintética en la evaluación de la ocurrencia de eventos adversos.

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Section: Discussionsupporting

confidence: 73%

Patient safety in care circumstances: prevention of adverse events in the hospitalization of children

Wegner

Pedro

2012

Rev. Latino-Am. Enfermagem

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“…Of these, 170 lived in the city of Maringa and the others were from other cities belonging to the 15 th Regional of Health of Paraná. Of the 170 selected contacts, 74 were excluded because of: impossibility of telephone contact -incorrect or disabled number (47); death (9); switching to other cities (5); failure to identify the primary caregiver (3); caregivers of children with cancer (2); refusal to participate in the study (8). Therefore, the final population of this study consisted of 96 caregivers.…”

Section: Methodsmentioning

confidence: 99%

Relationship between wellness and sociodemographic characteristics of caregivers of people with cancer

Oliveira

Matsuda²,

Sales³

2016

Invest Educ Enferm

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Objective. To investigate the association between wellness and sociodemographic characteristics of caregivers of people with cancer. Methods. This was a cross-sectional study conducted in Maringá, Paraná, Brazil, with 96 caregivers. Data were collected between July 2011 and February 2012. A global wellness assessment scale was used to measure wellness and data on sociodemographic characteristics were gathered using a complementary form. Results. The characteristics associated with reduced wellness among caregivers of people with cancer were: being separated, being a mother, having a higher education degree, being employed, being the sole caregiver, having a family income of up to one minimum wage and presenting health problems. Conclusion. Some demographic characteristics are associated with loss of wellness among these caregivers. Nurses must take this information into account when formulating strategies to improve the wellness of caregivers, considering their context.

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“…The parents' quality of life during the event of childhood cancer is directly related to the patient's quality of life during treatment (Vance, Morse, Jenney, & Eiser, 2001;Wegner & Pedro, 2009). As the experience cancer influences the emotional response of parents in relation to their child's needs, the ability of the child or adolescent to deal with adverse situations is related to the parents' ability to manage situations of crises.…”

Section: The Psychosocial Impact Of Childhood Cancer On Parentsmentioning

confidence: 99%

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

Kohlsdorf

Costa

2012

Paidéia (Ribeirão Preto)

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A diagnosis of childhood cancer represents challenges for patients, family members, and health workers. The parents of a child or adolescent have to play an expanded role because they need to reconcile parental tasks and treatment demands. This study presents an integrative literature review concerning difficulties experienced by pediatric caregivers during onco-hematological treatment. The CAPES periodicals portal and the Scientific Library Online (SciELO) were searched for papers published between 1999 and 2009. Relevant themes are highlighted in Brazilian and international studies published in the field, such as psychological disorders experienced by caregivers, the professional and financial impact associated with treatment, changes in educative practices and family dynamics, and the influence of cultural practices on the experience of treatment. Suggestions for further research are presented to support efficient psychosocial interventions and minimize the psychosocial costs experienced by pediatric caregivers over the course of onco-hematological treatments.Keywords: Childhood Cancer, Caregivers, Children, Psycho-oncology. Impacto Psicossocial do Câncer Pediátrico para Pais: Revisão da LiteraturaResumo: O diagnóstico de câncer infantil representa desafios para pacientes, familiares e profissionais de saúde. Os pais de uma criança ou adolescente em tratamento têm seu papel estendido, pois precisam administrar práticas parentais e exigências do tratamento. Este artigo objetiva realizar revisão integrativa da literatura relacionada a dificuldades vivenciadas pelos cuidadores pediátricos durante tratamento onco-hematológico. Foi realizada revisão da literatura publicada entre 1999 e 2009, a partir da busca em bases de dados Portal de Periódicos CAPES e Scientific Library Online (SciELO). Com base na literatura nacional e internacional recentemente publicada na área destacam-se temas importantes, como perturbações psicológicas vivenciadas pelos cuidadores, impacto profissional e financeiro associado ao tratamento, mudanças em práticas educativas, alterações na dinâmica familiar e influência de práticas culturais na vivência do tratamento. São apresentadas sugestões para pesquisas que possam subsidiar intervenções psicossociais eficientes para diminuir custos psicossociais vivenciados por cuidadores pediátricos ao longo do tratamento onco-hematológico. Palavras-chave:Câncer em Crianças, Cuidadores, Crianças, Psico-oncologia. Impacto Psicosocial del Cáncer en la Infancia para Padres: Revisión de la LiteraturaResumen: El diagnóstico del cáncer en la infancia es desafío para enfermos, familia y profesionales Hoekstra de salud. Los padres del niño o adolescente en tratamiento tienen su papel extendido y necesitan asociar prácticas de paternidad a exigencias del tratamiento. Constituí objetivo de este artículo realizar revisión integrativa de literatura, con atención para dificultades vivenciadas por cuidadores pediátricos en tratamiento onco-hematológico. Fue realizada busca en la literatura publicada entre...

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Os múltiplos papéis sociais de mulheres cuidadoras-leigas de crianças hospitalizadas

Cited by 43 publications

References 7 publications

Patient safety in care circumstances: prevention of adverse events in the hospitalization of children

Patient safety in care circumstances: prevention of adverse events in the hospitalization of children

Relationship between wellness and sociodemographic characteristics of caregivers of people with cancer

Impacto psicossocial do câncer pediátrico para pais: revisão da literatura

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