Translating patient-reported outcome measures: a multi-step process is essential

Acquadro, C.; Bayles, Ana; Juniper, Elizabeth F.

doi:10.1590/s1806-37132014000300002

Cited by 19 publications

(18 citation statements)

References 4 publications

(8 reference statements)

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“…Perceived comprehensibility and difficulty are concepts related to each other (11,12) . We hypothesise that providing sufficient clarity is conditional to be able to accurately identify and overcome concerns with the difficulty of the PG-SGA.…”

Section: Discussionmentioning

confidence: 99%

“…We hypothesised that perception of comprehensibility may change positively by providing an explanation of the meaning of each item of the PG-SGA and perception of difficulty may change positively by providing background information, instruction and/or training regarding the PG-SGA (12) . Because, in daily practice, dietitians are healthcare professionals who often work with the PG-SGA, in the present study, we aimed to determine whether and how perceived comprehensibility and difficulty changes after providing training comprising lectures on the PG-SGA (rationale and evidence-base), as well as hands-on practice with the PG-SGA, in an omnifarious sample of dietitians.…”

Section: Introductionmentioning

confidence: 99%

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Evaluation of change in dietitians’ perceived comprehensibility and difficulty of the Patient‐Generated Subjective Global Assessment (PG‐SGA) after a single training in the use of the instrument

Sealy

Schans

Roodenburg

et al. 2017

J Human Nutrition Diet

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Evaluation of change in dietitians' perceived comprehensibility and difficulty of the PatientGenerated Subjective Global Assessment (PG-SGA) after a single training in the use of the instrument Sealy, M. J.; Ottery, F. D.; van der Schans, C. P.; Roodenburg, J. L. N.; Jager-Wittenaar, H. Abstract Background: The Patient-Generated Subjective Global Assessment (PG-SGA) is an instrument used to assess malnutrition and its risk factors. Some items of the PG-SGA may be perceived as hard to comprehend or as difficult by healthcare professionals. The present study aimed to determine whether and how dietitians' perceptions of comprehensibility and difficulty of the PG-SGA change after a single training in PG-SGA use. Methods: In this prospective evaluation study, Dutch PG-SGA-na€ ıve dietitians completed a questionnaire regarding perceived comprehensibility and difficulty of the PG-SGA before (T0) and after (T1) receiving a single training in the use of the instrument. Perceived comprehensibility and difficulty were operationalised by calculating item and scale indices for comprehensibility (I-CI, S-CI) and difficulty (I-DI, S-DI) at T0 and T1. An item index of 0.78 was considered acceptable, a scale index of 0.80 was considered acceptable and a scale index of 0.90 was considered excellent. Results: A total of 35 participants completed the questionnaire both at T0 and T1. All item indices related to comprehensibility and difficulty improved, although I-DI for the items regarding food intake and physical examination remained below 0.78. Scale indices for difficulty and comprehensibility of the PG-SGA changed significantly (P < 0.001) from not acceptable at T0 (S-CI = 0.69; S-DI = 0.57) to excellent for comprehensibility (S-CI = 0.95) and acceptable for difficulty (S-DI = 0.86) at T1. Conclusions: The findings of the present study suggest that significant improvement in PG-SGA-na€ ıve dietitians' perception of comprehensibility and difficulty of the PG-SGA can be achieved quickly by providing a 1 day of training in the use of the PG-SGA.58

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Evaluation of change in dietitians’ perceived comprehensibility and difficulty of the Patient‐Generated Subjective Global Assessment (PG‐SGA) after a single training in the use of the instrument

Sealy

Schans

Roodenburg

et al. 2017

J Human Nutrition Diet

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“…The study was divided into two phases: phase one included the translation and linguistic adaptation of the instrument, in accordance with international recommendations for questionnaire validation (Fig. ) . The resulting version was applied to 10 children of the target population for minor adjustments, making sure it was clear, understandable, and feasible …”

Section: Methodsmentioning

confidence: 99%

“…) . The resulting version was applied to 10 children of the target population for minor adjustments, making sure it was clear, understandable, and feasible …”

Section: Methodsmentioning

confidence: 99%

Validation of the Brazilian version of the childhood asthma control test (c‐ACT)

Oliveira

Sarria

Roncada

et al. 2015

Pediatric Pulmonology

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“…PROs have become a valuable tool for the better treatment of patients, improving patient diagnosis and secondary use of health data for clinical research, their selection needs though to be handled carefully [5]. The validation of PROs and their translations ensures their correctness and enables their use in clinical routine and research practice [6]. With the increasing population migration, physicians often need to treat patients who do not speak the local language(s), which hampers patient diagnosis and treatment.…”

Section: Introductionmentioning

confidence: 99%

Electronic collection of multilingual patient reported outcomes across Europe

Soto-Rey¹,

Rehr²,

Bruland³

et al. 2017

Preprint

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Background: The interoperability between information systems in healthcare is still an issue despite of the large number of institutions seeking solutions. One of the most commonly accepted ones is the use of standards. Patient reported outcomes (PROs), information provided directly by the patient, improve patient diagnosis and treatment, and their translations may be used to treat international patients. Electronic systems and especially mobile devices provide a great opportunity for the collection of PROs. These systems are normally study oriented and therefore single language, not scalable and not interoperable. Objective: To demonstrate the feasibility of an open standard based electronic PRO system in a multilingual and multi-centre context. Methods: MoPat was developed using Java 8 and jQuery Mobile 1.4.5. The system was evaluated in the context of the European dermatology project "PruNet", which aimed to unify the assessment of itch in routine dermatological care in Europe. Clinicians and patients participating in the PruNet study were interviewed and the user acceptance of MoPat was assessed. Results: MoPat's initial implementation was enhanced with multilingual capabilities and is now able to perform surveys in several languages and collect the results in a single one. 26 clinicians and 495 patients from 8 European clinical centres participated in a satisfaction survey, resulting in a high acceptance of the system by both groups. The age of the patients not willing to further use MoPat was, in average, considerably higher than the ones willing to use the system. Conclusions: This study represents the first use of an electronic PRO system for the collection of multilingual PROs in an international multi-centre setting. MoPat has been evaluated by both clinicians and patients in the context of a European dermatological study resulting in a high user acceptance. The system will be further developed in order to include new features such as patient's follow up outside of the clinical setting.

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Translating patient-reported outcome measures: a multi-step process is essential

Cited by 19 publications

References 4 publications

Evaluation of change in dietitians’ perceived comprehensibility and difficulty of the Patient‐Generated Subjective Global Assessment (PG‐SGA) after a single training in the use of the instrument

Evaluation of change in dietitians’ perceived comprehensibility and difficulty of the Patient‐Generated Subjective Global Assessment (PG‐SGA) after a single training in the use of the instrument

Validation of the Brazilian version of the childhood asthma control test (c‐ACT)

Electronic collection of multilingual patient reported outcomes across Europe

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