Background Patient-reported outcomes (PROs) are information provided directly by patients that helps in improving patient diagnosis and treatment. Validated translations of PROs can be used to treat international patients. Electronic systems and especially mobile devices provide a great opportunity for their collection; however, these systems are normally study-oriented and therefore single language, not scalable, and not interoperable. Objectives This article reports the development of a multicenter, multilingual, and interoperable electronic PRO (ePRO) system and evaluates its user satisfaction in an international clinical study. Methods The ePRO named “MoPat2” was developed using Java 8 and jQuery Mobile 1.4.5. The system was evaluated in the context of the European dermatology project “European Network on Assessment of Severity and Burden of Pruritus”(PruNet), which aimed to unify the assessment of itch in routine dermatological care in Europe. Twenty-six clinicians and 468 patients from 8 European clinical centers were asked to complete a user satisfaction questionnaire regarding the use of MoPat2 with a tablet personal computer. The results were then analyzed and correlated with the age, gender, and language of the respondents. Results MoPat2 was enhanced with multilingual capabilities and is now able to conduct surveys in several languages, as well as store and display the results in the local language. The interviewed clinicians rated the system with an average score of 2.0 (“good”) in a 1 to 5 Likert scale. Note that 93.9% of the patients (439 of 468) reported having got on well using the system and 88.9% (416 of 456) would be willing to further use it. The age of the patients not willing to further use MoPat2 was, in average, considerably higher than the age of patients willing to use the system. Conclusions This study represents the first use of an ePRO system for the collection of multilingual PROs in an international, multicenter setting. MoPat2 has been evaluated by both clinicians and patients in the context of a European dermatological study, resulting in a high user satisfaction. The system will be further developed to include new features such as patient follow-ups outside of the clinical setting.
In order to improve diagnosis and treatment, physicians require information about the social context and quality of life of their patients. The Center for Chronic Pruritus at the University Hospital Münster achieves this goal using the electronic patient-reported outcome system "Mobile Patient Survey", which assesses pruritus and quality of life measures. The aim of this study is to evaluate the consistency and reliability of such measures. A total of 42 patients, age range 19-82 years, participated in the study and were asked to assess the measures at baseline via a paper questionnaire, and to use the "Mobile Patient Survey" at baseline and after 1 h in order to test reliability. Statistical analysis was performed using coefficient r for metric variables and weighted kappa κ for categorical variables. The internal consistency of all measures was unaffected. It was shown that 6 out of 7 measures can be assessed without loss of reliability. It is recommended that questionnaires for electronic usage are assessed for validity and reliability.
Background: The interoperability between information systems in healthcare is still an issue despite of the large number of institutions seeking solutions. One of the most commonly accepted ones is the use of standards. Patient reported outcomes (PROs), information provided directly by the patient, improve patient diagnosis and treatment, and their translations may be used to treat international patients. Electronic systems and especially mobile devices provide a great opportunity for the collection of PROs. These systems are normally study oriented and therefore single language, not scalable and not interoperable. Objective: To demonstrate the feasibility of an open standard based electronic PRO system in a multilingual and multi-centre context. Methods: MoPat was developed using Java 8 and jQuery Mobile 1.4.5. The system was evaluated in the context of the European dermatology project "PruNet", which aimed to unify the assessment of itch in routine dermatological care in Europe. Clinicians and patients participating in the PruNet study were interviewed and the user acceptance of MoPat was assessed. Results: MoPat's initial implementation was enhanced with multilingual capabilities and is now able to perform surveys in several languages and collect the results in a single one. 26 clinicians and 495 patients from 8 European clinical centres participated in a satisfaction survey, resulting in a high acceptance of the system by both groups. The age of the patients not willing to further use MoPat was, in average, considerably higher than the ones willing to use the system. Conclusions: This study represents the first use of an electronic PRO system for the collection of multilingual PROs in an international multi-centre setting. MoPat has been evaluated by both clinicians and patients in the context of a European dermatological study resulting in a high user acceptance. The system will be further developed in order to include new features such as patient's follow up outside of the clinical setting.
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