Family refusal to donate organs and tissue for transplantation

Moraes, Edvaldo Leal de; Massarollo, Maria Cristina Komatsu Braga

doi:10.1590/s0104-11692008000300020

Cited by 41 publications

(48 citation statements)

References 7 publications

(4 reference statements)

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“…La muerte del ser querido es siempre una muerte inesperada, provocada por causas médicas o trauma, generando shock e incredulidad [8][9][10] , y es este dolor y sufrimiento tan profundo una de las razones descritas por las familias para rechazar la donación 10,11 . El momento de la despedida, es importante para el adiós y la expresión de sentimientos 12 , momento que debe permitírsele a la familia.…”

Section: Discussionunclassified

“…El respeto a la voluntad del donante se repite como uno de los aspectos más relevantes para la decisión 2,6,9,10,[13][14][15][16] . Sin embargo, en este estudio dos de los ocho participantes manifestaron espontáneamente su deseo de donar, hallazgos no descritos en los estudios revisados.…”

Section: Discussionunclassified

“…Respecto de las creencias religiosas, en nuestro estudio la fe y la religión son coadyuvantes a la decisión, sin embargo, también es una de las causas descrita por familias para rechazar la donación [10][11][12][13]17,18 . El impacto de la decisión genera consecuencias familiares [2][3][4][5][6] , lo cual corroboramos también en los relatos, una experiencia positiva con la donación provoca un cambio favorable en toda la familia 15,19,20 , convirtiéndose en agentes activos y líderes de opinión.…”

Section: Discussionunclassified

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Donar, un cambio de vida: comprender la experiencia de familiares que aceptaron la donación de órganos

2014

Rev. méd. Chile

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Section: Discussionunclassified

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Donar, un cambio de vida: comprender la experiencia de familiares que aceptaron la donación de órganos

2014

Rev. méd. Chile

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Section: Introductionmentioning

confidence: 99%

“…It appears that, in publications, attention is focused more on comprehending the process of bone marrow transplantation for patients (13) , or other members of the family nucleus (2) . The issue of organ donation appears especially in postmortem donations, following the perceptions of family members (14) and professionals (15) .In this context, this study aimed to characterize the sociodemographic profile of participants and to comprehend the perception of sibling bone marrow donors regarding the donation, identifying the motives, feelings and expectations related to the process. …”

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confidence: 99%

Bone Marrow Donation from the Perspective of Sibling Donors

Oliveira-Cardoso

Santos

Mastropietro

et al. 2010

Rev. Latino-Am. Enfermagem

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This study aimed to characterize the sociodemographic profile of sibling bone marrow donors and to describe how they perceive the donation. This was a descriptive, exploratory and longitudinal study. Participants were 20 related bone marrow donors, between 18 and 42 years of age (mean=30.5 years, sd=7.47). Interviews were held before and immediately after the donation. Sociodemographic data were subject to descriptive statistical analysis and qualitative data to categorical content analysis. In the interviews held before the donation, stressor events were the sibling's disease and treatment and the responsibility of being the donors. During the interviews after the donation, the following were mentioned: anxiety on the day before and on the day of the donation, pain the following day, and acknowledgement of the health team's support as a facilitator of the donation process. In view of the findings, it is important for the team to outline intervention strategies to meet to the donors' specific needs.Descriptors: Tissue Donors; Family; Bone Marrow Transplantation; Mental Health. 1 Paper extracted from Master's Thesis "Repercussões psicológicas da doação da medula óssea no doador relacionado", presented to Donación de médula ósea en la perspectiva de hermanos donadoresEste estudio objetivó caracterizar el perfil socio demográfico y describir la percepción, de hermanos donadores de médula ósea, acerca de la donación. Se trata de estudio descriptivo, exploratorio y con recorte longitudinal. Participaron 20 donadoresrelacionados de médula ósea, con edades entre 18 y 42 años (promedio=30,5 años, de=7,47). Fueron utilizadas entrevistas, aplicadas antes e inmediatamente después de la donación. Fue realizado un análisis estadístico descriptivo de los datos socio demográficos y análisis de contenido categorial de los datos cualitativos. En las entrevistas antes de la donación aparecieron como eventos causantes de estrés: el enfermarse, el tratamiento del hermano y la responsabilidad de ser los donadores. En el período posterior a la donación fue relatada ansiedad (en la víspera y en el día de la donación), dolor en el día siguiente, y reconocimiento del apoyo del equipo como elemento facilitador del proceso de donación. Frente a lo encontrado, se recomienda que el equipo planifique estrategias de intervención que permitan atender las necesidades específicas de los donadores.Descriptores: Donadores de Tejido; Família; Trasplante de Medula Ósea; Salud Mental. IntroductionBone Marrow Transplantation (BMT) is becoming an effective alternative treatment for potentially fatal illnesses (1) , the diagnoses of which generate psychological impact for the patient and their family unit (2) . Families who are confronted with this challenge are generally faced with the disruption of quotidian life, as it was prior to diagnosis. Coupled with this grief, the families are forced to face the destruction of the family myth that the fatal diseases only happen to others (3) .The diagnosis introduces a moment of crisis, to the extent that a n...

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A narrative review of family members’ experience of organ donation request after brain death in the critical care setting

et al. 2019

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Family members of critically ill patients suffer from high levels of anxiety and depression in the ICU, and are at risk of developing post-ICU syndrome following ICU discharge. In the case of brain death, and potential organ donation, the family is at the center of the decision process: within a limited time frame, the family will be informed that the patient is brain dead and will be approached about potential organ donation. Family experience with organ donation has been the topic of several research papers allowing to gain knowledge about family members' experience of organ donation, emphasizing specific needs, adequate support and pointing out gaps in current delivery of family-centered care. In this review, experts clinicians and researchers present the various legal systems regarding family implication in organ donation decisions; describe factors that influence the decision-making process; highlight family perspectives of care and respect for potential donors in the ICU environment; describe the impact of organ donation discussions and decisions on post-ICU syndrome; and suggest communication skills and support to be developed in the future. A research agenda for the next decade is also encouraged. Overall, challenges remain and concern all persons involved in the process, ICU doctors and nurses, the organ procurement organization, family members and, in some cases, the patients themselves. Looking at the big picture will provide opportunities for further improvements.

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Family refusal to donate organs and tissue for transplantation

Cited by 41 publications

References 7 publications

Donar, un cambio de vida: comprender la experiencia de familiares que aceptaron la donación de órganos

Donar, un cambio de vida: comprender la experiencia de familiares que aceptaron la donación de órganos

Bone Marrow Donation from the Perspective of Sibling Donors

A narrative review of family members’ experience of organ donation request after brain death in the critical care setting

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