Donar, un cambio de vida: comprender la experiencia de familiares que aceptaron la donación de órganos

R, Lissette Avilés; S, María Isabel Catoni

doi:10.4067/s0034-98872014000600003

Cited by 4 publications

(4 citation statements)

References 15 publications

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“…Con respecto a las barreras en la donación de órganos, los estudios coinciden con nuestra investigación en que los factores preponderantes son el temor frente a la mutilación del cuerpo, la falta de información, de comunicación y de educación, la religión y creencias que influyen en que la muerte sea vista culturalmente como algo negativo. Los estudios revisados agregan como barreras importantes la falta de interés y conocimiento en relación al proceso de muerte encefálica de los profesionales, insistencia médica con la familia, incredulidad sobre las capacidades médicas para realizar proceso de donación, además de la falta de apoyo por parte de los profesionales hacia los familiares del donante, situación que no se aprecia en este estudio (17,18).…”

Section: Discussionunclassified

Representaciones Sociales Acerca De La Donación De Órganos en Enfermeros De Una Unidad De Paciente Crítico

Ramírez-Pereira

Vásquez

Martiz

et al. 2016

ECH

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Chile has one of the lowest organ donation rates in the world, seven donors per million. The aim of this research is to understand the social representations of nurses working in a critical care unit in relation to organ donation. This research is a qualitative study with a Grounded Theory perspective. Data from interviews with professional nurses was collected, transcribed and coded. Data was then grouped into eleven categories in three main families: the feelings about organ donation, organ donation knowledge and the management of the process of organ donation. It was determined that the organ procurement process is complex due to various reasons expressed by the professionals interviewed, which sometimes condition the response given by the donor's relatives. Nurses has different feelings about organ donation; however, they recognize its importance, viewing it as a chance of survival.

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Section: Discussionunclassified

Representaciones Sociales Acerca De La Donación De Órganos en Enfermeros De Una Unidad De Paciente Crítico

Ramírez-Pereira

Vásquez

Martiz

et al. 2016

ECH

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“…Para la estandarización del proceso de procuramiento se desarrolló la siguiente metodología: 1) Revisión de la literatura biomédica y Orientaciones Técnicas del Minsal, para tener una primera aproximación al proceso de procuramiento en Chile e identificar buenas prácticas en el tema [12][13][14][15][16][17] .…”

Section: Metodologíaunclassified

Diseño de una propuesta de protocolo de estandarización y gestión de calidad para el proceso de procuramiento de órganos

2019

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Proposal of a management and standardization protocol for organ procurement in Chile Background: Organ donation rates for transplantation are low in Chile and there is a paucity of a technical-structured-normalized procurement process. Aim: To design a protocol to standardize the organ procurement process based on the Chilean reality. Material and Methods: After a first phase of bibliographic reviews and analyzing de Chilean legislative and normative frame, a proposal was elaborated in collaboration with five expert coordinators. In the second phase, two Delphi rounds with the local coordinators of the organ procurement centers were carried out. Their responses were analyzed and the stages and criteria to standardize the organ procurement process were determined. Results: The expert defined organ procurement process, validated by local coordinators, comprised nine stages and 36 criteria. The expert opinion coincidence was high and significant (Cronbach's alpha > 0.8, p < 0.01). Conclusions: The protocol describing the procurement process, constructed and validated by experts, will allow to standardize a clinical protocol contributing to a successful national organ procurement.

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“…As a result, López et al (2018) suggested measuring the impact of emotional reactions in family decisions and experiences, highlighting the relevance of sensitive support for families throughout the process, during the loss of their family member and the organ donation conversation. Despite the evidence of the importance of loss and grief in these families in the literature (Ma et al, 2021; Sque & Galasinski, 2013), few studies have explored families' experiences in Chile (Avilés et al, 2014).…”

Section: Introductionmentioning

confidence: 99%

Ambiguous loss in organ donor families: A constructivist grounded theory

Avilés

Kean

Tocher

2022

Journal of Clinical Nursing

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Aims and ObjectivesExplore families' experiences when being approached for organ donation authorisation after brainstem death.BackgroundThe complexities of potential organ donor families' experiences include challenges related to emotional distress, coping with the loss and the organ donation decision‐making process, and support needed. A lack of conceptual clarity was found concerning families' experiences when being approached for organ donation authorisation, which guided the study.DesignConstructivist grounded theory.MethodsSeventy‐one participants, including healthcare professionals and families, were recruited from two large hospitals in Chile between 2017 and 2019. Field notes, documents (n = 80), interviews (n = 27) and focus groups (n = 14) were collected and analysed following Charmaz's constructivist grounded theory principles and practices until theoretical saturation was reached. The study is reported using the COREQ checklist.ResultsA third type of ambiguous loss of bereaved families' experience was developed as a fourfold process: (1) impending loss, (2) confirming loss, (3) ambiguous loss and organ donation decision‐making and (4) organ donation as a third type of ambiguous loss. This grounded theory expands the concepts of ambiguous loss by Boss, dying by Glaser and Strauss and grief by Brinkmann, enabling explanation of families' experiences.ConclusionFamilies of potential organ donors develop a highly complex grieving process, which may play a significant role in the organ donation decision‐making process. Ambiguity is embedded in how donor families reframe the existence of the donor through the act of giving life.Relevance to clinical practiceThe findings shed light on families' experiences on the organ donation process after brainstem death. The study can be used in nursing practice, education and to inform policy nationally and globally, mainly due to the current focus on quantitative measures and legislative changes fostering individual decision‐making.Patient or Public ContributionFamilies contributed through their first‐hand experiences of the organ donation process.

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Donar, un cambio de vida: comprender la experiencia de familiares que aceptaron la donación de órganos

Abstract: (Rev Med Chile 2014; 142: 702-706)

Cited by 4 publications

References 15 publications

Representaciones Sociales Acerca De La Donación De Órganos en Enfermeros De Una Unidad De Paciente Crítico

Representaciones Sociales Acerca De La Donación De Órganos en Enfermeros De Una Unidad De Paciente Crítico

Diseño de una propuesta de protocolo de estandarización y gestión de calidad para el proceso de procuramiento de órganos

Ambiguous loss in organ donor families: A constructivist grounded theory

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