The use of the Family Management Style Framework to evaluate the family management of liver transplantation in adolescence

Abstract

It is concluded that the use of a model to evaluate the management can help professionals to direct and plan specific interventions.

A vivência do cuidado familiar em casas transitórias de apoio

“…To prevent social isolation, the caregiver and the patient build new relationships with other patients, caregivers and health professionals (14) . So, establishing relationships is an important action for the family to settle in the TSH, and conversations with families about experiences lived, contribute to the understanding and acceptance of the moment lived (15) .…”

“…Acquiring knowledge and skills to properly care reduces the distress of the caregiver (14,16) . Thus, the main demands of the chronically ill families are guidelines, which require intervention by the nursing staff, since a trained caregiver takes control of the situation and they consider themselves able to request a partnership with the health staff in all decision-making (15) .…”

Validation of Family Management Measure for the Brazilian culture

“…Such chronic conditions can affect the routine and quality of life of children and families in different ways, which in turn can influence even the prognosis of the disease. Knowing the challenges and ways in which the family handles caring for chronically ill child is a fundamental part of the planning and implementation of quality nursing care and has therefore become a focus of researchers' attention in the last decade (3)(4)(5) .…”

Family management for pediatric transplant recipients with grandparents as caregivers: a case study

“…O FMSF tem sido aplicado, tanto no Brasil quanto internacionalmente, em diferentes situações de doença. Os resultados reforçam que ele pode ser utilizado com sucesso na avaliação das famílias de crianças com doenças crônicas e permite planejar intervenções personalizadas (2)(3)(4)(5)(6) .…”