A experiência de sofrimento: histórias narradas pela criança hospitalizada

Abstract

The objective of this study was to learn about the experience of suffering in hospitalized school-aged children. The methodological strategy used was narrative inquiry, and the Model of Suffering as the theoretical framework. Participants were 14 children. Data collection was performed using semi-structured interviews, guided by the following question: Tell me your story about getting sick and coming to the hospital. Results show that hospital events comprise the child's experience of suffering, represented by five categories: knowing the suffering caused by the disease; enduring to survive the experience of being ill, relaxing from enduring to free their emotions, living the suffering, and floating between enduring and suffering. The suffering or enduring of the child is determined by the context of the experience and by the support or interactions that surrounds them. In conclusion, nurses have the duty to offer children opportunities to express themselves and make the suffering bearable.

A espiritualidade na prática pediátrica

“…To facilitate this aid, it is essential that health professionals be alert to patients feedback and develop communication skills and the ability to evaluate the spiritual dimension of those under their care. In their narrative, patients describe the experience of their illness and give meaning to it through spiritual connections and relationships, which is demonstrated through a desire to relate, to establish links within the hospital with the staff and other patients, and to continue being what they were before hospitalization 12 …”

“…The experience of suffering helps the child approach the spiritual dimension, through which they find the strength to be hopeful about the future 12 …”

Network and Social Support in Children With Chronic Diseases: Understanding the Child's Perception

“…Faith is an important social support found by the child, which helps the child to not feel alone and to believe in their recovery and in the future, with the possibility of a normal life, where there is no chronic condition. 25 Support offered by members of the social network aims to minimize the demands presented in coping with the chronic disease. Qualified listening to children's experiences is a way for health professionals to understand the uniqueness of the social support in their lives.…”

Vivenciando O Processo Cirúrgico: Percepção E Sentimentos Da Criança

“…Para tanto, é necessário ouvir as crianças para apreender a dimensão da doença em sua vida e o modo como é vivida, já que esses aspectos são singulares para cada criança (4) .…”