Instrumentos em Língua Brasileira de Sinais para avaliação da qualidade de vida da população surda

Abstract

OBJECTIVE:To construct versions of the WHOQOL-BREF and WHOQOL-DIS instruments in Brazilian sign language to evaluate the Brazilian deaf population's quality of life. METHODS:The methodology proposed by the World Health Organization (WHOQOL-BREF and WHOQOL-DIS) was used to construct instruments adapted to the deaf community using Brazilian Sign Language (Libras). The research for constructing the instrument took placein 13 phases: 1) creating the QUALITY OF LIFE sign; 2) developing the answer scales in Libras; 3) translation by a bilingual group; 4) synthesized version; 5) fi rst back translation; 6) production of the version in Libras to be provided to the focal groups; 7) carrying out the Focal Groups; 8) review by a monolingual group; 9) revision by the bilingual group; 10) semantic/syntactic analysis and second back translation; 11) re-evaluation of the back translation by the bilingual group; 12) recording the version into the software; 13) developing the WHOQOL-BREF and WHOQOL-DIS software in Libras. RESULTS:Characteristics peculiar to the culture of the deaf population indicated the necessity of adapting the application methodology of focal groups composed of deaf people. The writing conventions of sign languages have not yet been consolidated, leading to diffi culties in graphically registering the translation phases. Linguistics structures that caused major problems in translation were those that included idiomatic Portuguese expressions, for many of which there are no equivalent concepts between Portuguese and Libras. In the end, it was possible to create WHOQOL-BREF and WHOQOL-DIS software in Libras. CONCLUSIONS:The WHOQOL-BREF and the WHOQOL-DIS in Libras will allow the deaf to express themselves about their quality of life in an autonomous way, making it possible to investigate these issues more accurately.

A elaboração de um instrumento para investigar o domínio da percepção dos contrastes mínimos na língua brasileira de sinais

“…In a study for adaptation of an instrument on quality of life into LIBRAS, the researchers found it difficult to make such adjustment. The authors reported limitations, because Brazilian Portuguese and LIBRAS are different languages, with different language expressions and structures (19) . Also, the authors of the battery of instruments that was used to evaluate the reading comprehension of the deaf individuals stressed that there is a lack of instruments for assessment of sign languages (10,17,18) .…”

Análise da qualidade de vida de famílias de crianças surdas atendidas em um centro de referência do Sistema Único de Saúde

“…Para isso, traduziram o WHOQOL para língua de sinais, visando melhor caracterizar a qualidade de vida dos surdos, levando em consideração as particularidades da cultura da população surda. Um instrumento traduzido para a língua de sinais proporciona autonomia linguística aos sujeitos, possibilitando que os próprios surdos dimensionem e classifiquem seu bem-estar 16,17 . 20 .…”

A content validity study of signs, symptoms and diseases/health problems expressed in LIBRAS

“…Another study, conducted by Brazilian researchers, constructed and validated LIBRAS versions of the WHOQOL-BREF and WHOQOL-DIS instruments, to evaluate the quality of life of the Brazilian population with deafness. These validations have the potential to optimize the accessibility of people with deafness, including participation in research projects and their access to information ( 20 ) .…”