Cuidadores de crianças com câncer: aspectos da vida afetados pela atividade de cuidador

Abstract

This study aimed at demonstrating that the caregiving role affected the lives of caregivers of children with cancer the child's degree of dependence regarding the performance of daily life activities (DLA), the degree of help offered by others and the degree to which some aspects of the caregiver's life were affected by caregiving activities. Interviews were held with fifty caregivers of children between the ages of three and ten in a children's hospital, a referral center for cancer and hematological disorders in Campinas, Sao Paulo. These caregiving activities seriously affect the lives of the caregivers and, therefore, an assessment of these aspects may help the nurse detect the problems and plan the healthcare needed by the caregivers of children with cancer.

Câncer no lactente: readaptações na vida familiar

“…[ The reports are in line with a study about aspects of caregivers' lives the children's disease affect 22 , whose social life is compromised. During the hospitalization, contact with other people decreases and they only interact with the other caregivers (mothers and fathers).…”

“…This fact exposes the caregiver to an intense daily care burden, as the age range of the person receiving the care should be considered when assessing the implications this care demand may entail for the mother's life. 22 As observed, the infant demonstrates a growing need to have the mother around at all times, as she represents security and care; at the same time, the mother feels that the burden is unavoidable.…”

“…Concern with the care routine was a noteworthy characteristic, mainly when this responsibility is not shared with the other family members. 22 As this care demands that much attention from the mother, in most cases, she needs to give up her job to take care of the child. 11 In this study, the mothers worked before their children got ill and, therefore, they had to quit to dedicate themselves to their child with cancer.…”

“…22 Although difficulties increase when they leave work, the mothers demonstrate their satisfaction with being able to take care of their children; in this trajectory, they fully surrender to the struggle for the child's life.…”

A Terapia Ocupacional Em Um Processo De Capacitação Sobre Vigilância Do Desenvolvimento Infantil Na Atenção Básica Em Saúde

“…Quando nos referimos à criança, a mãe geralmente assume o papel de principal cuidadora no âmbito familiar, tendo em vista que a própria criança sente na figura materna uma proteção ímpar (BECK;LOPES, 2007).…”