Crianças hospitalizadas com Fibrose Cística: percepções sobre as múltiplas hospitalizações

Abstract

Children with cystic fibrosis are usually admitted to the hospital many times through their lives. This study aims to know the perceptions of these children towards the multiple hospital admissions, as well to identify what they realize about the treatment and the care they get. This is a descriptive study with a qualitative approach. The study subjects were seven children who suffer from cystic fibrosis, at ages between 6 and 11. The data are collected at a pediatrics unit of a general hospital, by means of a focused semi-structrured interviews, and analyzed through the comprehensive analysis. The result of this study show that children value their freedom, but it is very restricted during the time they are in the hospital, which can be softed through our listening, comprehension and attention.

Nursing care satisfaction from school‐aged children's perspective: An integrative review

“…Rigour: study protocol clear High/Low Relevance: study describes the experiences of children' hospitalization Rigour: study protocol clear High/Low Relevance: study describes elements of quality in children's drawings of an ideal hospital Silva & Ribeiro, 2000 Rigour: study protocol clear High/High Relevance: study addresses judgement about actual experiences of hospitalization Gabatz & Ritter, 2007 Rigour: study protocol clear High/Low Relevance: study describes children's perceptions toward multiple hospital admissions question: What is the current knowledge regarding school-aged children's satisfaction with nursing care?…”

Compreendendo o significado de estar hospitalizado no cotidiano de crianças e adolescentes com doenças crônicas

“…É imprescindível que os profissionais cuidadores tenham esse conhecimento e o utilizem ao planejar e executar suas ações de cuidados a essas crianças e suas famílias, pois a maneira como a criança percebe a doença e a hospitalização está ligada diretamente ao seu processo de restabelecimento e resultará em sentimentos que devem ser considerados durante o cuidado de enfermagem. O cuidado à criança engloba a técnica e os conhecimentos relacionados às patologias, mas também o cuidado como um todo, contemplando o físico, o emocional e a família (1)(2)(3)(4) . Diante dessa realidade, percebemos que precisávamos ultrapassar os limites da prática de cuidado, impostos, muitas vezes, pela rotina hospitalar e estender o nosso olhar para além do cuidado físico.…”

A percepção do escolar sobre a hospitalização: contribuições para o cuidado de enfermagem

“…Therefore, the worst part of hospitalization is not the medication or venipuncture, but the rupture it causes in children's routine, the freedom they have at home (5) . Despite the humanizing proposal of kid-friendly hospitals, these still have characteristics of general hospitals with activities having established schedules and times to be performed.…”

“…Hospitalization breaks their daily routine and the child experiences an unfamiliar new reality. An important aspect related to hospitalization is the distance it causes from the child's daily routine, which contributes to negative feelings about hospitalization to arise (5) .…”

“…Children have a much more optimistic view of the disease than adults. Even if they are not clinically well, they find reasons to have joy (5) .…”