Narcolepsy in childhood and adolescence

2008

Self Cite

-Objective: To evaluate the perception of Quality of Life (QL) in Brazilian patients with narcolepsy. Method: 40 adult patients aged between 20 and 72 years (mean=41.55; SD=14.50); (28 F; 12M), with the diagnosis of chronic narcolepsy were followed up at the outpatient clinic (Patient Group). The Control Group was composed of 40 adults. The instrument utilized was the World Health Organization Quality of Life (WHOQOL-BREF). Results: The two groups were homogeneous and no difference was found with regards to age, sex, and demographic characteristics. The perception of QL in physical, psychological and social domains showed lower scores in those patients with narcolepsy than in the control group (p<0.05). Concerning physical domain, all the aspects evaluated were significantly impaired, in patient group, including sleep satisfaction (p<0.001); energy for daily activities (p=0.039); capacity to perform activities (p=0.001); and capacity to work (p=0.001). Conclusion: The perception of QL showed severe impairment in patients with narcolepsy for physical, psychological and social domains.KEY WORDS: narcolepsy, sleep, sleep disorders, quality of life. Qualidade de vida de pacientes com narcolepsia: um estudo de WHOQOL-BreveResumo -Objetivo: Avaliar a percepção de qualidade de vida (QV) em pacientes com narcolepsia. Método: 40 pacientes com idades de 20 a 72 anos (média 41,55; desvio padrão=14,50); (28 F; 12 M), com diagnóstico de narcolepsia, crônica, seguidos em ambulatório (Grupo Paciente). O Grupo Controle foi composto de 40 adultos. O instrumento utilizado foi o Instrumento de Qualidade de Vida da Organização Mundial de Saúde (WHOQOL-BREF). Resultados: Os dois grupos foram homogêneos e não foram encontradas diferenças de idade, sexo e características demográficas. A percepção da QV nos domínios físico, psicológico e social mostrou escores menores nos pacientes com narcolepsia do que no Grupo Controle (p<0,05). Quanto ao domínio físico, todos os aspectos avaliados foram significantemente comprometidos, no grupo paciente, como a satisfação com o sono (p<0,001); energia para as atividades diárias (p=0,039); capacidade de desempenhar atividades (p=0,001); e capacidade de trabalho (p=0,001). Conclusão: A percepção de QV mostrou comprometimento acentuado nos pacientes com narcolepsia, nos domínios físico, psicológico e social. PALAVRAS-CHAVE: narcolepsia, sono, distúrbios do sono, qualidade de vida.

mentioning

confidence: 99%

Quality of life in patients with narcolepsy: a WHOQOL-bref study

Rovere

Rossini

2008

Self Cite

“…The objective of the present research is to analyze the influence of nightly use of computer by adolescents on sleep quality. It is part of a larger research evaluating childrens' and adolescents' sleep pattterns and disorders that will be published elsewhere [22][23][24][25][26] .…”

mentioning

confidence: 99%

Nightly use of computer by adolescents: its effect on quality of sleep

Mesquita

2007

Self Cite

The ballance between endogenous and exogenous factors is remarkably relevant for biological rhythms, and it can be impaired by environmental changes and consequently provoke a series of disturbances such as sleep disorders, indisposition, gastro-intestinal changes 1 , mood fluctuations, irritability, tension, confusion, anxiety and reduced performance in tasks that require attention and concentration 2 . The sleep-wakefulness cycle is a circadian rhythm that, under natural conditions oscillates over a 24-hour period. The interchange of day-night (lightdark), school hours, work hours, leisure time, family activities, are exogenous factors that synchronize sleep-wakefulness 3 . Besides this environmental synchronization, the sleep-wakefulness cycle originates and is regulated endogenously by a neural structure located in the hypothalamus, it is the supraquiasmatic nucleus, considered the master circadian biological clock for mamals 4,5 . Optional hours, that prevent us from sleeping at habitual hours, considerably affect psychophysiological balance. The clinical adverse effects of the interruption of circadian rhythms, such as night-shift work include severe impairment during wakefulness 1 . Sleep is an important factor of synchronization between internal fluctuations and environmental cycles. In humans, the best example of organism and environmental synchronization is the sleep/ wake cycle, regulated by light and dark. According to their nature and social organization, human are active during the day, their physical functions are es- NIGHTLY USE OF COMPUTER BY ADOLESCENTSIts effect on quality of sleep

“…In an effort to understand sleep in Native Brazilian children, one should consider the influence of their rich culture and diversity on the child's sleep [1][2][3][4][5][6][7] Literature focusing on Native Brazilian sleep is unknown to us. Therefore, studies on sleep habits of these children are unavailable.…”

mentioning

confidence: 99%

Sleep habits in native brazilian bororo children

Souza

Gaudioso³

1999

Self Cite

-Sleep behavior patterns in childhood are influenced by familial, cultural and environmental factors. In understanding sleep in Native Brazilian Bororo children, one should consider the influence of their culture on the child's sleep. This research analyzes sleep habits of Native Bororo children from the Meruri village, located in an Indian Reservation in the state of Mato Grosso. Fourty four children ( 24 M; 20 F) were evaluated; ages ranged from one month to 10 years, with a mean age of 4.9 years. Sleep characteristics were assessed by means of a standard questionnaire applied to the mothers. Cosleeping -sleeping together with family members -was a remarkable finding, in every child 0-2 year old and in 81.5% in the 2-10 years group. The second characteristic was sleeping with many people in the same room. There was an average of 5.1 people per room in the younger group and 3.9 people in the older group.