Adaptação transcultural do Self-Evaluation of Communication Experiences after Laryngectomy (SECEL) para o Português Brasileiro

Abstract

Purpose: To cross-culturally adapt the Self-Evaluation of Communication Experiences after Laryngectomy questionnaire into Brazilian Portuguese and to apply the first version of adaptation to patients. Methods: Initially, SECEL was independently translated from English into Brazilian Portuguese by a health professional and by an English teacher experienced in translation. Both translations were similar and used similar words and expressions. Later, these two translations were analyzed and a new translation was compiled by the researchers based on the previous two. It was back-translated -also independently -into English by a health professional and a Brazilian Portuguese speaker with English as his/her native language. These back-translations were combined into a single template by the researchers and sent to the author who developed the original questionnaire. After the author's approval, the questionnaire was applied to 39 patients who underwent total laryngectomy with at least one year after surgery. Results: The first block of the questionnaire -General Scale -was proved less suitable; the second -Environmental Scale -achieved high correction; the third -Attitudinal Scale -showed the highest correlation. Conclusion: This study achieved the first step of the validation of the questionnaire into Brazilian Portuguese -translation, cultural adaptation and preliminary analysis of the results, identifying failing questions. The new proposal after application of SECEL is presented to be used in a representative Brazilian population.Keywords: Laryngectomy; Quality of life; Translating; Communication; Surveys and questionnaires RESUMOObjetivo: Adaptar transculturalmente o questionário Self-Evaluation of Communication Experiences after Laryngectomy (SECEL) para o português do Brasil e aplicar esta primeira versão da adaptação em pacientes. Métodos: Inicialmente, o instrumento foi traduzido do inglês para o português por um profissional de saúde e por um professor de inglês com experiência em tradução, de forma independente. Ambas as traduções foram semelhantes e usaram palavras e expressões similares. Posteriormente, nova versão foi criada, a partir da compilação das anteriores, e reconvertida para o inglês por um profissional de saúde e um falante do português, que tinha o inglês como língua nativa, também de forma independente. As retrotraduções foram reunidas em um documento único, que foi enviado para o autor que desenvolveu o questionário original. Após a aprovação do autor, o questionário foi aplicado em 39 pacientes submetidos à laringectomia total, com, pelo menos, um ano de pós-operatório. Resultados: O primeiro bloco do questionário -Questões Gerais -revelou-se menos adequado; o segundo bloco de questões -Aspectos Ambientais -apresentou alta correção e o terceiro -Questões Atitudinais -apresentou a maior correlação. Conclusão: O primeiro passo da validação do questionário em português -tradução, adaptação cultural e análise preliminar dos resultados, identificando falhas nas perguntas -foi realizado. ...

Validation of “Self-Evaluation of Communication Experiences after Laryngectomy” (SECEL) Questionnaire for Spanish-Speaking Laryngectomized Patients

“…Items that used the word "habla" (speech) referring to patient's new way of communication (items 1, 3-13 and 21) were also problematic, so they were modified to "forma de hablar". This problem was also observed in the Portuguese version [16]. Finally, "¿por qué?"…”

“…This homogeneity provides added value to the assessment of communication skills. Other validation studies include patients treated with exclusive radiotherapy or partial laryngectomies that preserve, to a greater or lesser extent, the ability to speak with a laryngeal voice [ 13 , 14 , 16 ]. One of the advantages of translating SECEL into several languages is that this will allow international cross-cultural comparison, contributing for the improvement of health care quality.…”

“…Furthermore, in the back-translation, both translators agreed than item number 5 (Do you think your speech improves with the amount of time you use it?) and 14 (In different rooms of your house (apartment, residence)) were unclear in the Spanish version, so we decided to modify them similar to the Brazilian Portuguese model (16). In addition, in item 5, which was formulated in an inverse way, "mejora" (improves) was replaced by "empeora" (worsens), so that all the items assessed the communication problem directly and did not have to assign it an inverse value, taking as a reference what had been performed in other studies [35].…”

“…SECEL has already been translated into five languages: Swedish [ 13 ], Italian [ 14 ], European Portuguese [ 15 ], Brazilian Portuguese [ 16 ], and Turkish [ 17 ]. However, there are a lack of specific instruments applied to assess communication problems after TL in Spanish.…”

The influence of vocal rehabilitation methods on communication in patients with total laryngectomy

“…The same weakness was pointed out in the Portuguese version of the questionnaire. According to the authors, a possible explanation for the lack of this option is the increased frequency of post-operative vocal rehabilitation utilized in the country of origin, the United States of America 14 .…”