2021
DOI: 10.1590/1983-1447.2021.20190318
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Factors associated with the quality of life of caregivers of children and adolescents with chronic conditions

Abstract: Objective To evaluate the quality of life and associated factors in caregivers of children and adolescents with chronic conditions. Method Cross-sectional study, developed with data from the Children Information System of Adolescents with Chronic Diseases. The sample consisted of 143 caregivers. Data collection took place between August and October 2018. For data analysis, chi-square statistics and Binary Logistic Regression were used. Results Through the study it was possible to identify that the variables … Show more

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Cited by 7 publications
(4 citation statements)
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“…Psychological Counselling is something that family members need to support and understand the repercussions of the disease in the family context during the transition process (32) . Emotional support works have a protective factor regarding the quality of life of the caregiver, which reduces the negative aspects of care by the formation of groups of caregivers who experience the same reality or are developed through qualified listening (33) . Nurses have part of a professional category whose main focus is care, and must consider the individual as a whole, considering that the psychological, biological, and social aspects are all interconnected and interfere with the health of individuals (33) .…”
Section: Discussionmentioning
confidence: 99%
“…Psychological Counselling is something that family members need to support and understand the repercussions of the disease in the family context during the transition process (32) . Emotional support works have a protective factor regarding the quality of life of the caregiver, which reduces the negative aspects of care by the formation of groups of caregivers who experience the same reality or are developed through qualified listening (33) . Nurses have part of a professional category whose main focus is care, and must consider the individual as a whole, considering that the psychological, biological, and social aspects are all interconnected and interfere with the health of individuals (33) .…”
Section: Discussionmentioning
confidence: 99%
“…Desta forma, as ações de educação em saúde devem ser compatíveis com a realidade de vida de familiares que desenvolvem cuidados, onde deve ser priorizada a escuta, o diálogo e a troca de saberes. (22) A CRIANES e a sua família necessitam de cuidado diferenciado e contínuo, o que implica a existência de uma rede de apoio e cuidado com interação entre os diferentes níveis de atenção profissional, em especial os da atenção primária, dada a proximidade com essas famílias, para acolher e atender às demandas de cuidados cotidianos e, quando necessário, fazer os encaminhamentos a outros serviços de saúde. (23) É imprescindível a existência de programas educacionais focados no cuidado pediátrico, que vislumbrem a melhoria das condições de saúde, acolhimento e cuidados de adolescentes, para além da hospitalização.…”
Section: Discussionunclassified
“…Alguns estudos demonstram a importância da rede social no cuidado de crianças com doenças crônicas, demonstrando que uma rede fortalecida contribui para o enfrentamento da condição crônica (Freitag, Milbrath & Motta, 2020;Cabral & Moraes, 2015;Domenico & Castillo, 2017). Essa rede de apoio deve lançar um olhar à família, especialmente ao cuidador principal, que em geral, é a mãe (Cardoso, dos Santos, de Araújo, Neves & do Nascimento, 2021), que acumula várias tarefas.…”
Section: Discussionunclassified