Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis

Afonso, Selene Beviláqua Chaves; Minayo, Maria Cecília de Souza

doi:10.1590/1413-81232017221.14592016

Cited by 23 publications

(28 citation statements)

References 22 publications

Supporting

Mentioning

Contrasting

Unclassified

Order By: Relevance

“…To report on parental response to the disclosure and realization that their child has neurofibromatosis 1. (11)(12) privacy (13)(14) training (11)(12)(13)(14)(15)(16)(17)(18)(19)(20) educational level (16,(21)(22)(23)(24)(25)(26)(27)(28) family preparation (14,(22)(23)(25)(26)(29)(30) with companion (13)(14)(21)(22)(31)(32) maturity (21,23,(25)(26)(27)(29)(30)(33)(34)(35)(36)(37)(38)(39)(40) the right to know…”

Section: / Australiamentioning

confidence: 99%

“…Regarding the professionals, the work culture is related to the organization and functioning of the team. Communication is facilitated when the common objective is to take good care of the child and the family, combined with mutual support in the team (11) . Communication is impaired when professionals believe that the child should not participate in discussions and decisions about prognosis and treatment (12) .…”

Section: Context Of Communicationmentioning

confidence: 99%

“…Participating in work or study groups, scientific events and researches, as well as accessing scientific articles, protocols and guidelines, favors the communicative process (11)(12)(13)(15)(16) . Training reflects on the ability to assess the child's and family's preparation to receive the news (17) , on the appropriate emotional attitude to position themselves in front of the family and to deal with their own feelings (11,15) . Having specialization in the area of the news, length of professional experience and the bond established with the children and their family facilitate communication (18)(19) .…”

Section: Context Of Communicationmentioning

confidence: 99%

“…Among the prognoses, terminality predominated (24)(25)39,48) . The communication must be honest, which was evidenced as considering the particularities of the children and their family and telling the family members about the child's health status clearly, without lying or omitting information concerning the diagnosis (11,17,34,43,(47)(48)50) . The message communicated in an objective or direct manner must contain all information for the understanding of the child's diagnosis, using a clear language and avoiding scientific terminology (11,25,32,42,46,49) .…”

Section: Messagementioning

confidence: 99%

“…A pessimistic perspective, with information and facts about the worst cases, generates dissatisfaction (22,43) . However, the team finds it difficult not to show a pessimistic perspective when it comes to recurrence (11) .…”

Section: Messagementioning

confidence: 99%

See 4 more Smart Citations

Communication of bad news in pediatrics: integrative review

et al. 2020

View full text Add to dashboard Cite

Objectives: to identify the scientific evidence of the elements of communication in the process of communicating bad news in pediatrics. Methods: integrative review searched in the LILACS, PubMed and WoS databases. Primary studies in Portuguese, Spanish or English were included. Results: the evidence from the 40 studies were organized according to the elements of communication: sender (family and/or professional), receiver (family and/or child), message (bad or difficult news about diagnosis/prognosis; empathetically, honestly, objective, hopeful and available), channel (materials, quality, quantity and pace), context and effects (social and emotional changes), noise (feelings and language) and failures (silencing and misleading information). Conclusions: there is a need to prepare the institution and team, as well as the family and the child, in order to promote co-responsibility in this process, to minimize suffering and communication noise and to avoid failures, recognizing the child’s right to know their condition.

show abstract

Section: / Australiamentioning

confidence: 99%

Section: Context Of Communicationmentioning

confidence: 99%

Section: Context Of Communicationmentioning

confidence: 99%

Section: Messagementioning

confidence: 99%

Section: Messagementioning

confidence: 99%

See 3 more Smart Citations

Communication of bad news in pediatrics: integrative review

et al. 2020

View full text Add to dashboard Cite

show abstract

Pediatric cancer communication in low‐ and middle‐income countries: A scoping review

Graetz

Garza

Rodríguez‐Galindo

et al. 2020

Cancer

View full text Add to dashboard Cite

The burden of global childhood cancer lies in low‐ and middle‐income countries (LMICs). Communication is essential to pediatric cancer care, and the National Cancer Institute (NCI) has defined 6 functions of communication between patients, family members, and providers, including 1) fostering healing relationships, 2) responding to emotions, 3) exchanging information, 4) making decisions, 5) managing uncertainty, and 6) enabling self‐management. Nevertheless, communication needs and practices in LMICs remain incompletely understood. For this review, the Web of Science, Scopus, PubMed, and Turning Research Into Practice databases were searched according to the Preferred Reporting Items for Systematic Reviews and Meta‐Analysis Extension for Scoping Reviews. Searching identified 2988 articles, with 11 added through snowballing. Forty articles met the inclusion criteria. Two reviewers extracted data on study characteristics, communication functions, enablers, barriers, and additional major themes. This review included work from 17 countries. Most studies (85%) used qualitative methodology; the number of participants ranged from 7 to 304. All 6 of the NCI‐defined communication functions were identified in included studies, with rates ranging from 100% of studies for information exchange to 28% of studies for decision making. Communication barriers included cancer misconceptions, stigma, and hierarchy between parents and providers. Provider training and community education facilitated communication. Additional themes included disclosure to children, family dynamics, and the multidisciplinary health care team. In conclusion, all 6 of the communication functions defined by the NCI were applied by pediatric cancer researchers in LMICs. Additional barriers, enablers, and communication themes noted in LMICs deserve further exploration, and a relative paucity of research in comparison with high‐income countries highlights the need for further work.

show abstract

Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review

Sisk

Harvey

Friedrich

et al. 2021

Pediatric Blood & Cancer

View full text Add to dashboard Cite

Multiple factors can facilitate or impede the fulfillment of communication functions in pediatric cancer. In this systematic review, we evaluated 109 studies from the preceding 20 years that presented qualitative or quantitative evidence of barriers or facilitators to communication in pediatric cancer. Using a multilevel framework developed in our prior study, we then analyzed and categorized the levels of barriers and facilitators identified in included studies. The vast majority of studies focused on individual‐level barriers, rather than team, organization/system, collaborating hospital, community, or policy‐level barriers. Future studies should explore the full range of factors that affect communication.

show abstract

Relações entre oncohematopediatras, mães e crianças na comunicação de notícias difíceis

Cited by 23 publications

References 22 publications

Communication of bad news in pediatrics: integrative review

Communication of bad news in pediatrics: integrative review

Pediatric cancer communication in low‐ and middle‐income countries: A scoping review

Multilevel barriers and facilitators of communication in pediatric oncology: A systematic review

Contact Info

Product

Resources

About