Scoring interventions in family relations regarding the care for the child with a chronic condition

Barbosa, Daniele Castro; Sousa, Francisca Georgina Macêdo de; Leite, Jósete Luzia

doi:10.1590/0104-07072015001820013

Cited by 9 publications

(11 citation statements)

References 13 publications

(21 reference statements)

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“…Strong and intense ties transform the emotional climate of the family system, reduce stress, decrease risks of ruptures, resulting in greater organization of this system, with a positive contribution to the care of children with chronic conditions (11) .…”

Section: Discussionmentioning

confidence: 99%

“…It is noteworthy that nurses should be open to listen and communicate sensitively with the family caregiver of children with chronic conditions, in order to know and understand their multiple experiences and difficulties, conflicts, unions, relationships, interactions and retroactions, so that they can encompass the child, the family and its members as care units, addressing them in their multidimensionalities. Involving the family and the relationships within the family system can strengthen ties, produce and maintain channels of communication that are open to the management of care (11) . Thus, professionals can obtain elements for proper planning, to overcome the drawbacks arising from the disease (5) .…”

Section: Introductionmentioning

confidence: 99%

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Rede e apoio social no cuidado familiar da criança com diabetes

et al. 2016

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Section: Discussionmentioning

confidence: 99%

Section: Introductionmentioning

confidence: 99%

Rede e apoio social no cuidado familiar da criança com diabetes

et al. 2016

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“…To evaluate the factors associated with the time taken to access the specialists and explore the issues experienced by parents before evaluation in a specialized service. As for the year of publication, there was one (2.57%) article published in the years 2007 43 , 2009 14 and 2010 37 , three (7.69%) articles published in the year 2016 12,40,47 , five (12.82%) in 2012 20,29,31,41,44 , six (15,38%) in 2011 21,26,34,36,39,49 seven (17,95%) in 2015 22,24,45,48 and 2014 13,23,30,32,35 and eight (20,51%) in 2013 25,33,38,42,46,50 .…”

Section: Schiariti Et Al / 2014 35mentioning

confidence: 99%

“…Regarding the object of the studies, 11 (28.20%) articles focused on the family 12,14,19,21,31,39, , three (7,69%) on the mothers 13,40-1 , one (2.57%) on the children, parents and health professionals 15 , seven (17.95%) studies dealt with children 16,20,22,25,28,34,48 , four (10,26 %) with children and their families 17,35 , six (15,38%) studies focused on parents (mother and father) 18,24,27,38,[49][50] , two (5,12%) studies on parents and health professionals 23,26 , one (2.57%) on the child and the parents 29 , one (2.57%) on the health professionals 30 , two (5.12%) on the nursing professionals, 45,47 and, finally, one (2.57%) focused on the nursing professionals and the family. 46 A synthesis of the results found in the articles gave origin to two thematic categories: Facing the diagnosis of a chronic disease, change of habits and family reorganization; Care routines of families with children with chronic conditions.…”

Section: Schiariti Et Al / 2014 35mentioning

confidence: 99%

Cuidado à família da criança com doença crônica

Vaz

Milbrath

Gabatz

et al. 2018

Rev enferm UFPE on line.

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RESUMOObjetivo: conhecer o que vem sendo produzido sobre o cuidado à família da criança com doença crônica. Método: revisão integrativa que buscou conhecer as publicações dos últimos 10 anos nas bases de dados MEDLINE, LILACS, BDENF, INDEX PSICOL e na biblioteca virtual SciELO. Após a leitura dos artigos selecionados, foram analisados os dados dos estudos referentes à autoria, objetivos, ano de publicação, método e nível de evidência. Resultados: com base nos achados, foram definidas duas categorias temáticas << Enfrentando o diagnóstico da doença crônica, mudança de hábitos e reorganização familiar >> e << Rotinas de cuidado das famílias com crianças com condição crônica >>. Conclusão: as famílias das crianças com doença crônica são afastadas de suas rotinas, muitas vezes, perdendo o controle sobre suas vidas. Acredita-se que se a família for bem informada sobre a patologia e empoderada para os cuidados à criança, esta poderá desenvolver autonomia sobre a organização da sua vida. Descritores: Família; Criança; Doença Crônica; Empatia; Enfermagem Pediátrica; Revisão.ABSTRACT Objective: to know what has been produced about the care provided for families of children with chronic disease. Method: integrative review that sought to survey the publications of the last 10 years in the MEDLINE, LILACS, BDENF, INDEX PSICOL databases and in the virtual library SciELO. After reading the selected articles, we analyzed data of the studies regarding authorship, objectives, year of publication, method and level of evidence. Results: the findings led to two thematic categories << Facing the diagnosis of a chronic disease, change of habits and family reorganization >> and << Care routines of families with children with chronic conditions >>. Conclusion: Families of children with chronic diseases have their routines modified, often losing control over their lives. We believe that if families are well informed about the pathology and if they are empowered to care for the child, they will be able to develop autonomy over the organization of their lives. Descriptors: Family; Child; Chronic disease; Empathy; Pediatric Nursing; Review.RESUMEN Objetivo: conocer lo que viene siendo producido sobre el cuidado a la familia del niño con enfermedad crónica. Método: revisión integradora que buscó conocer las publicaciones de los últimos 10 años en las bases de datos MEDLINE, LILACS, BDENF, INDEX PSICOL y en la biblioteca virtual SciELO. Después de la lectura de los artículos seleccionados, fueron analizados los datos de los estudios referentes a la autoría, objetivos, año de publicación, método y nivel de evidencia. Resultados: con base en los hallados, fueron definidas dos categorías temáticas << Enfrentando el diagnóstico de la enfermedad crónica, cambio de hábitos y reorganización familiar >> y << Rutinas de cuidado de las familias con niños con condición crónica >>. Conclusión: las familias de los niños con enfermedades crónica son alejados de sus rutinas, muchas veces, perdiendo el control sobre sus vidas. Se cree que si la familia fuera bien informada sobre la patología y empoderada para los cuidados al niño, esta podrá desarrollar autonomía sobre la organización de su vida. Descriptores: Familia; Niño; Enfermedad Crónica; Empatía; Enfermería Pediátrica; Revisión.

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“…Love and affection are essential to demonstrate how important the child is to the family. 20 In families of children with chronic illness, the mother typically leads the care activities, which demands a considerable amount of work. 21 Because the direct care activities make the mother realize that the child has a limited understanding of the condition, the mother tries to ease this tension with dialogue and affection.…”

Section: Have To Pay Close Attention To My Child's Eating Habits Imentioning

confidence: 99%

Mothers of experiences in diabetic child

Cruz¹,

Collet²,

Andrade³

et al. 2017

Escola Anna Nery - Revista De Enfermagem

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Objective: To evaluate the experience of mothers of children with diabetes mellitus type 1 (DM1). Methods: This qualitative study evaluated five mothers of children with DM1 treated at the clinic of a public hospital in October 2014. The data were analysed considering Humanistic Nursing Theory. Results: The following topics emerged: the behaviour of the mothers after their children were diagnosed with DM1; maternal care as a self-giving relationship (an I-You relationship); the difficulties faced by mothers in caring for children with DM1; the conflictual coexistence between children with DM1 and their mothers; the mothers' receipt of support from the family and the multi-professional team (a We relationship); and the behaviour of the mothers in the face of the fear of death. Conclusion: In the I-You relationship established between the researcher and the mothers, we observed that the care that they provide to their children is full of engagement, love, sensitivity, and accountability, despite the difficulties and conflicts faced. resumen Objetivo: Conocer la experiencia de las madres de niños con diabetes mellitus tipo 1. Métodos: La investigación cualitativa entre los cinco madres de niños diabéticos tratados en la clínica de un hospital público en octubre de 2014. Los datos fueron analizados a la luz de la teoría humanística de enfermeira. Resultados: Emergiendo los siguientes temas: las madres antes del diagnóstico de la diabetes mellitus tipo 1; Cuidados maternos como dar a la relación (la relación YO-TU); Las dificultades que enfrentan las madres en el cuidado del niño diabético; convivencia conflictiva entre los niños y sus madres diabéticas; Las madres reciben apoyo de la familia y el equipo multiprofesional (la relación NOSOTROS); Las madres en el miedo a la muerte.Conclusión: En la experiencia de la relación YO-TU establecida entre el investigador y las madres se puede ver que el cuidado de ellos con sus hijos está lleno de compromiso, amor, la sensibilidad y la rendición de cuentas el uno al otro, a pesar de las dificultades y conflictos diuturnamente experimentados.

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Scoring interventions in family relations regarding the care for the child with a chronic condition

Cited by 9 publications

References 13 publications

Rede e apoio social no cuidado familiar da criança com diabetes

Rede e apoio social no cuidado familiar da criança com diabetes

Cuidado à família da criança com doença crônica

Mothers of experiences in diabetic child

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