Strategies for Families of Children Served in Pediatric First Aid: The Search for the Construction of Integrality

Buboltz, Fernanda Luisa; Silveira, Andressa da; Neves, Eliane Tatsch

doi:10.1590/0104-0707201500002040014

Cited by 9 publications

(15 citation statements)

References 13 publications

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“…In the results, the perception of family caregivers regarding the role of PHC was not in line with the guidelines of the network, whose objective is to strengthen the actions of primary care services as a care coordinator, aiming to guarantee the continuous care and the strengthening of bonds between professionals, families and health institutions (11) . However, similar results have also been found in other studies, emphasizing that emergency services and tertiary services are preferred at the expense of primary level services, even to address the demands of PHC (8,12,28) . According to a Chilean study, when the attention to the health of CSHCN is focused on secondary and tertiary care services financial costs increase, the continuity of care is impaired and the accessibility to the benefits available in primary health care is restricted (30) .…”

Section: Discussionsupporting

confidence: 87%

“…According to international literature, inequity in access to health services is common among CSHCN, especially for the subgroup of children with medical complexities (27) . The search for private services thus becomes a strategy adopted to ensure the resolution of problems (13,28) .…”

Section: Discussionmentioning

confidence: 99%

“…The work of the multidisciplinary team in the health care network proposal can offer a humanized and integral care to these children and their families, and the nurse must be the mediator between the patient and the team professionals, since nurses have the competencies to manage care (28) . In cases where psychosocial monitoring for children was required, caregivers considered the professionals, i.e., pediatric psychologists and psychiatrists, more difficult to access.…”

Section: Discussionmentioning

confidence: 99%

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Accessibility of children with special health needs to the health care network

et al. 2019

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Objective: To know how children with special health needs access the health care network. Method: This is a qualitative research of descriptive-exploratory type, developed using semi-structured interviews mediated by the Talking Map design. Participants were 19 family caregivers of these children in two Brazilian municipalities. Data were submitted to inductive thematic analysis. Results: Difficulties were mentioned from the diagnosis moment to the specialized follow-up, something represented by the itinerary of the c hild and his/her family in the search for the definition of the medical diagnosis and the access to a specialized professional; a gap between the children's needs and the care offered was observed in primary health care. Conclusion: The access of children with special health needs is filled with obstacles such as slowness in the process of defining the child's diagnosis and referral to a specialist. Primary health care services were replaced by care in emergency care units. Descritores: Criança; Acesso aos Serviços de Saúde; Cuidadores; Doença Crônica; Enfermagem Pediátrica. RESUMOObjetivo: Conhecer como se dá o acesso de crianças com necessidades especiais de saúde na rede de atenção à saúde. Método: Pesquisa qualitativa do tipo descritivo-exploratória, desenvolvida por meio de entrevistas semiestruturadas mediadas pelo desenho do Mapa Falante. Participaram 19 familiares cuidadores dessas crianças em dois municípios brasileiros. Os dados foram submetidos à análise temática indutiva. Resultados: Apontou-se dificuldades, do diagnóstico ao acompanhamento especializado, algo denotado pelo itinerário da criança e sua família na busca pela definição do diagnóstico médico e pelo acesso ao profissional especializado; no atendimento na atenção primária à saúde, observou-se um distanciamento entre as necessidades das crianças e a assistência ofertada. Conclusão: O acesso de crianças com necessidades especiais de saúde apresenta-se permeado por obstáculos, como a morosidade no processo de definição diagnóstica da criança e o encaminhamento para o especialista. Houve substituição dos serviços da atenção primária pelos atendimentos em unidades de pronto-atendimento. Descritores: Criança; Acesso aos Serviços de Saúde; Cuidadores; Doença Crônica; Enfermagem Pediátrica. RESUMENObjetivo: Conocer cómo ocurre el acceso de niños con necesidades especiales de salud a la red de atención primaria a la salud. Método: Investigación cualitativa, de tipo descriptiva y exploratoria, en la cual se utilizó entrevistas semiestructuradas mediadas por la elaboración de un Mapa hablante. Participaron 19 familiares que cuidan a estos niños en dos municipios brasileños. Se sometieron los datos al análisis temático inductivo. Resultados: Del diagnóstico al acompañamiento especializado, se apuntaron dificultades durante la trayectoria del niño y su familia por la búsqueda de la definición del diagnóstico médico y del acceso al profesional especializado; en la atención en la red de atención primaria a la salud, se observó un distanciami...

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Section: Discussionsupporting

confidence: 87%

Section: Discussionmentioning

confidence: 99%

Section: Discussionmentioning

confidence: 99%

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Accessibility of children with special health needs to the health care network

et al. 2019

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“…; 73% Female Parent/caregiver Mean: 3 Range:1.5–11 yrs. 68% public insurance, 18% private insurance Not reported Bingham et al, 2015 [ 34 ] 1531 Not reported Parent/caregiver Not reported Not reported Not reported Buboltz et al, 2015 [ 35 ] 12 Not reported; 100% Female Mothers (1 grandmother) Not reported Considered part of a vulnerable population Not reported Burokienė et al, 2017 [ 36 ] 381 < 35 yrs. (69.5%) Gender not reported Parent/caregiver Not reported 65% held a university degree Non-urgent Cabey et al, 2018 [ 37 ] 57 Mean: 33 yrs.…”

Section: Resultsmentioning

confidence: 99%

Factors that influence family and parental preferences and decision making for unscheduled paediatric healthcare – systematic review

Nicholson

McDonnell

Brún

et al. 2020

BMC Health Serv Res

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Introduction Health systems offer access to unscheduled care through numerous routes; however, it is typically provided by general practitioners (GPs), by emergency medicine doctors in in emergency departments (EDs) and by GPs in out-of-hours GP services such as practitioner cooperatives. Unscheduled healthcare constitutes a substantial portion of healthcare delivery. A systematic review was conducted to establish the factors that influence parents’ decision making when seeking unscheduled healthcare for their children. The systematic review question was “ What are the factors that influence the decision making of parents and families seeking unscheduled paediatric healthcare?” Method Five databases (CINAHL, PubMed, SCOPUS, PsycInfo, EconLit) and four grey literature databases (Proquest, Lenus, OpenGrey, Google Scholar) were searched. The titles and abstracts of 3746 articles were screened and full-text screening was performed on 177 of these articles. Fifty-six papers were selected for inclusion in the review. Data relating to different types of unscheduled health services (namely primary care, the emergency department and out-of-hours services) were extracted from these articles. A narrative approach was used to synthesise the extracted data. Results Several factors were identified as influencing parental preferences and decision making when seeking unscheduled healthcare for their children. A number of the included studies identified pre-disposing factors such as race, ethnicity and socioeconomic status (SES) as impacting the healthcare-seeking behaviour of parents. Unscheduled healthcare use was often initiated by the parent’s perception that the child’s condition was urgent and their need for reassurance. The choice of unscheduled service was influenced by a myriad of factors such as: waiting times, availability of GP appointments, location of the ED, and the relationship that the parent or caregiver had with their GP. Conclusion Policy and planning initiatives do not always reflect how patients negotiate the health system as a single entity with numerous entry points. Altering patients’ behaviour through public health initiatives that seek to improve, for instance, health literacy or reducing emergency hospital admissions through preventative primary care requires an understanding of the relative importance of factors that influence behaviour and decision making, and the interactions between these factors.

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“…However, in the results of this research, the families that sought the private health services did not obtain the treatment in these services, but in the public health services. These facts show the problems and weaknesses of both the private service and the public system (17) .…”

Section: The Pilgrimage Of the Family Through The Different Levels Ofmentioning

confidence: 98%

O itinerário terapêutico de famílias de crianças com câncer: dificuldades encontradas neste percurso

Lima

Silva

Góes

et al. 2018

Rev. Gaúcha Enferm.

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Resumo OBJETIVO Conhecer as dificuldades encontradas pelas famílias no itinerário terapêutico de crianças com câncer. MÉTODO Pesquisa descritiva e exploratória, de abordagem qualitativa, realizada de março a novembro de 2016, através de entrevistas semiestruturadas, com 21 familiares de crianças em tratamento oncológico em um hospital universitário federal no Rio de Janeiro, cujos dados foram submetido à análise temática. RESULTADOS As dificuldades das famílias perpassam a identificação e a investigação pelos profissionais de saúde dos sinais e sintomas da criança e a passagem dos familiares por diversos serviços de saúde até a confirmação diagnóstica. CONSIDERAÇÕES FINAIS O diagnóstico precoce do câncer infantil depende de ações de instituições de saúde e de ensino para a apropriada investigação da doença pelos profissionais, entre eles o enfermeiro que atua nas classificações de risco das emergências e na atenção básica, além do adequado funcionamento do sistema de referência e contrarreferência do sistema de saúde.

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Strategies for Families of Children Served in Pediatric First Aid: The Search for the Construction of Integrality

Cited by 9 publications

References 13 publications

Accessibility of children with special health needs to the health care network

Accessibility of children with special health needs to the health care network

Factors that influence family and parental preferences and decision making for unscheduled paediatric healthcare – systematic review

O itinerário terapêutico de famílias de crianças com câncer: dificuldades encontradas neste percurso

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