Empowerment of family caregiver in front of stroke in hospital environment

Abstract

<jats:p>ABSTRACT Objectives: to understand how the empowerment of family caregivers of people with stroke occurs in the hospital environment. Methods: a qualitative research, participatory action research, articulated with Paulo Freire’s Research Itinerary, developed in April 2018 with family caregivers, in a Stroke Unit. Results: three predominant codes were coded: the need for empowerment and autonomy to experience the care situation; the challenges experienced in becoming a caregiver; and family support. Participants presented a lack of information inherent to the care process, with distancing from empowerment to perform the function in dehospitalization. Dialogue revealed empowerment as a possibility for critical awareness and skill development. Conclusions: it highlights the importance of directing health promotion for caregivers, inserting them in the care process, recognizing their needs and intensifying practices that promote empowerment for care, bypassing curative actions.</jats:p>

Practices used by a home care team: implications for caregivers

“…were women and, of them, 20 had some kind of parent-child relationship with the individual being cared for. In this regard, other studies indicate that the degree of kinship, gender (female) and physical and emotional proximity are factors related to acceptance of the role of caregivers (17)(18)(19) . Family caregivers, in general, take on this function in retribution or for moral obligation, due to the imposition and subjection to what is expected of this subject in established social relationships, especially in family hierarchy and social composition (20) .…”

A longitudinal study of burden among spouse and non-spouse caregivers of older adults with stroke-induced-dependency

“…For example, the dependence of the older adult to develop basic and instrumental activities of daily living, require caregivers to perform care that includes bathing, changing diapers, handling bladder and feeding tubes, mobilizing in bed, transferring from bed to chair, taking care with medication administration, preventing pressure injuries, among others, all of which imply a need for constant caregiver assistance ( 31 - 32 ) . Moreover, in the home care for an older adult with stroke-induced-dependency can be identified factors of burden to caregiver, such as the lack of information and skills for care, fragility in the support, and social network ( 33 ) .…”

Content validity of the Post-Stroke Guidance and Follow-up Booklet

“…After dehospitalization, caregivers will have to experience the attribution of care for a prolonged period of time. Caregivers must be included in the care process, so that they can develop empowerment for care (critical awareness, emancipation, social transformation and achievement of equity in health) and for having autonomy in decision-making, transforming their family, social and economic contexts ( 21 ) . Caregivers should be given attention so that they can increase their ability to face the challenges that occur in caring for the dependent person, recognize care overload factors, list strategies that can positively interfere, facilitate family caregivers’ routine and provide opportunities for their participation in the care process.…”