Family Management and socioeconomic situation of children and adolescents with neurological disorders

Abstract

<jats:p>ABSTRACT Objectives: to identify the relation between family management and socioeconomic situation of children and adolescents with neurological disorders. Methods: a descriptive and correlational study with 141 family members who answered a questionnaire on socioeconomic and family management information. Data collection took place between May and September 2016 in a pediatric neurology center. A descriptive and analytical analysis was carried out with the use of statistical tests in order to assess the relation of the variables researched. Results: a higher early childhood disease time was related with higher scores of management difficulty. There was relation between the highest family income and management skills and the lowest scores of family difficulty. The highest schooling level of mothers was associated with the lowest scores of disease impact view and family difficulty. Conclusions: family members with unfavorable socioeconomic situation had more difficulty with family management.</jats:p>

Ability of management of families of children with chronic conditions for care at home

“…This characteristic of the population studied can contribute to a better understanding of the care to be performed and the engagement of caregivers to meet the demands of the child. 27,28 The occupation of the participants seems to reflect their level of education and is concentrated in technical/ labor activities (58.49%). It is also worth noting that 30.19% of the participants are engaged in domestic activities, which may result from the need for women to leave their jobs to take care of their children in situations of illness.…”

“…27 The families of children in chronic conditions are financially more vulnerable due to the expenses involved with care, such as increased costs for transportation, medication, consultations, and diets, among others. 28 Understanding the relationship between socioeconomic factors and family management is necessary for health professionals to promote interventions that improve the living conditions of families. 28 The data shows the absence of association between the marital status of family members and the Management Skill.…”

Habilidade de manejo de famílias de crianças com condições crônicas para o cuidado no domicílio

“…Esta característica da população estudada pode contribuir para o melhor entendimento dos cuidados a serem realizados e o engajamento dos cuidadores para o atendimento às demandas da criança. 27,28 A ocupação dos participantes parece refletir o seu nível de escolaridade e concentra-se em atividades técnicas/braçais (58,49%). Cabe ainda destacar que 30,19% dos participantes se ocupam das atividades domésticas, o que pode decorrer da necessidade de as mulheres deixarem seus trabalhos para assumir o cuidado dos filhos em situações de adoecimento.…”

“…27 As famílias de crianças em condição crônica são financeiramente mais vulneráveis devido aos gastos envolvidos com o cuidado, como o aumento dos custos direcionados ao transporte, à medicação, às consultas, às dietas, dentre outros. 28 Compreender a relação dos fatores socioeconômicos e o manejo familiar fazse necessário para que os profissionais de saúde promovam intervenções que melhorem a condição de vida das famílias. 28 Os dados mostram a ausência de associação entre a situação conjugal dos familiares e a Habilidade de Manejo.…”

“…28 Compreender a relação dos fatores socioeconômicos e o manejo familiar fazse necessário para que os profissionais de saúde promovam intervenções que melhorem a condição de vida das famílias. 28 Os dados mostram a ausência de associação entre a situação conjugal dos familiares e a Habilidade de Manejo. É importante relatar que, independentemente da situação conjugal, os participantes descreveram a presença de uma rede social que os apoiava no cuidado.…”